Not Defined By FND is a nonprofit public charity founded in April 2024 with the mission to raise awareness, provide support, and advocate for individuals affected by Functional Neurological Disorder (FND). We are dedicated to empowering the FND community through education, research, and advocacy, aiming to improve the understanding and treatment of this often misunderstood condition. FND is a complex and frequently misdiagnosed neurological disorder that affects the nervous system and can manifest in a variety of physical and cognitive symptoms. The lack of awareness and recognition, on top of the associated stigma, in both the medical community and the public often leaves those living with FND feeling isolated and unsupported. That’s where we come in. Our organization offers a wide range of programs and services designed to provide both practical support and raise much-needed awareness about FND.<h3>Your Donation Makes a Difference in Our Mission!</h3>Your donation helps us fulfill this mission in the following ways:<ul><li style="box-sizing:inherit">FND Research: Funding studies and surveys to improve understanding, diagnosis, and treatment options for FND.</li><li style="box-sizing:inherit">Educational Resources: Creating videos, articles, and materials to educate patients, caregivers, and medical professionals about FND.</li><li style="box-sizing:inherit">Medical Alert Products: Supplying FND-specific medical alert bracelets, necklaces, and cards to ensure individuals are safely and appropriately recognized in emergencies.</li><li style="box-sizing:inherit">Awareness Campaigns: Organizing local and virtual events, fundraising drives, and petitions to advocate for FND awareness, policy changes, and better healthcare access.</li><li style="box-sizing:inherit">Community Support Programs: Offering tools, resources, and a platform for individuals to connect, share their stories, and find support within the FND community.</li></ul>Your contribution enables us to advance our mission and make a meaningful impact on the lives of those affected by FND. Together, we can create a more informed, compassionate, and supportive world. Thank you for your generosity!

Hello <span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip " fr-original-style style="background-color:rgb(248, 248, 255);border:1px solid rgb(191, 191, 255);border-radius:4px;color:rgb(42, 42, 196);padding:1px 8px;font-size:11px;display:inline-block;margin:0px;overflow-wrap:anywhere;user-select:none;box-sizing:inherit">First name <span contenteditable="false" data-custom-variable="{{lastname}}" fr-original-class="fr-deletable styled-tag-chip " fr-original-style style="background-color:rgb(248, 248, 255);border:1px solid rgb(191, 191, 255);border-radius:4px;color:rgb(42, 42, 196);padding:1px 8px;font-size:11px;display:inline-block;margin:0px;overflow-wrap:anywhere;user-select:none;box-sizing:inherit">Last name, We thank you from the bottom of our heart. This generous donation greatly helps our mission!  If you would like to contribute further, contact us to become a volunteer, or talk to your friends about our cause! Don't forget to come have fun with us at our events! The Not Defined By FND Team<a href="mailto:info@notdefinedbyfnd.org" style="text-decoration-color:initial;user-select:auto;box-sizing:inherit">info@notdefinedbyfnd.org</a><a href="http://www.notdefinedbyfnd.org" rel="noopener noreferrer" style="color:inherit;text-decoration:inherit;user-select:auto;box-sizing:inherit;font-weight:700" target="_blank">www.notdefinedbyfnd.org</a>

Thank you for fundraising with us this year again! Here is more information.

Not Defined By FND is a nonprofit public charity founded in April 2024 with the mission to raise awareness, provide support, and advocate for individuals affected by Functional Neurological Disorder (FND). We are dedicated to empowering the FND community through education, research, and advocacy, aiming to improve the understanding and treatment of this often misunderstood condition. FND is a complex and frequently misdiagnosed neurological disorder that affects the nervous system and can manifest in a variety of physical and cognitive symptoms. The lack of awareness and recognition, on top of the associated stigma, in both the medical community and the public often leaves those living with FND feeling isolated and unsupported. That’s where we come in. Our organization offers a wide range of programs and services designed to provide both practical support and raise much-needed awareness about FND.Your Donation Makes a Difference in Our Mission!Your donation helps us fulfill this mission in the following ways:<ul><li>FND Research: Funding studies and surveys to improve understanding, diagnosis, and treatment options for FND.</li><li>Educational Resources: Creating videos, articles, and materials to educate patients, caregivers, and medical professionals about FND.</li><li>Medical Alert Products: Supplying FND-specific medical alert bracelets, necklaces, and cards to ensure individuals are safely and appropriately recognized in emergencies.</li><li>Awareness Campaigns: Organizing local and virtual events, fundraising drives, and petitions to advocate for FND awareness, policy changes, and better healthcare access.</li><li>Community Support Programs: Offering tools, resources, and a platform for individuals to connect, share their stories, and find support within the FND community.</li></ul>Your contribution enables us to advance our mission and make a meaningful impact on the lives of those affected by FND. Together, we can create a more informed, compassionate, and supportive world. Thank you for your generosity!

Donate to make a difference in the FND community!

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Not Defined By FND

### Context Profile for Not Defined By FND

#### 1. Organization Mission & Cause
Not Defined By FND is dedicated to supporting individuals affected by Functional Neurological Disorder (FND). Their mission is to provide a safe, welcoming, and empathetic environment for those living with FND and their supporters. They aim to foster community, understanding, and empowerment, helping individuals navigate the complexities of FND through shared experiences and support.

#### 2. Type of Activities
- **Support Groups:** They host online support groups, such as the "FND Empowerment Circle," which focuses on creating a structured environment for discussions around FND. These sessions are designed to provide practical guidance and emotional support.
- **Community Engagement:** The organization emphasizes building a community where participants can share their experiences and feelings, thus reducing isolation.
- **Educational Resources:** They likely provide resources and information about FND, although specific details were not extracted from the website.

#### 3. Tone of Voice
The tone of voice used by Not Defined By FND is:
- **Friendly and Supportive:** The language is warm and inviting, aiming to create a sense of belonging.
- **Empowering:** The communication focuses on hope and strength, encouraging participants to share and connect positively.
- **Informal yet Respectful:** The tone is casual enough to feel approachable while maintaining respect for the sensitive nature of the discussions.

#### 4. Emoji Usage
The website and communications do not prominently feature emojis. The tone is conveyed through words rather than visual elements, suggesting a focus on clarity and professionalism in their messaging.

#### 5. Key Facts
- **Founding Info:** Specific founding details were not available on the website.
- **Scale:** The organization has conducted 5 total forms and 25 total email campaigns, indicating an active engagement with their community.
- **Impact Metrics:** While specific metrics were not provided, the focus on community support suggests a commitment to fostering connections and reducing feelings of isolation among participants.
- **Volunteer Info:** The support groups are facilitated by volunteers who understand FND, emphasizing the organization's reliance on community involvement.

#### 6. Writing Guidelines
- **Clarity and Empathy:** Use clear and empathetic language to ensure that all communications are accessible and supportive.
- **Positive Framing:** Focus on positive outcomes and empowerment, encouraging participants to share their stories while maintaining an uplifting atmosphere.
- **Inclusive Language:** Ensure that the language used is inclusive and respectful, allowing for anonymity and comfort in participation.
- **Structured Content:** Organize information in a way that is easy to digest, using headings and bullet points where appropriate to enhance readability.

This context profile serves as a guide for crafting personalized content that aligns with Not Defined By FND's mission, tone, and activities, ensuring that communications resonate with their audience effectively.

Not Defined By FND

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