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Check made out to Pheo Para Alliance
Address to send check:1520 Belle View Blvd., #5740 / Alexandria, VA 22307

Patients with PPGL wait an average of 29 months for a diagnosis. The Pheo Para Alliance has begun to develop the first international Pheo Para Patient &amp; Provider Registry in partnership with the National Organization for Rare Disorders (NORD) IAMRARE&reg; platform. This groundbreaking initiative will accelerate research, improve care, and help bring new treatments to patients faster. Community donation builds the registry and supports patients every step of the way. Gifts of $250 or more are recognized as a Community Founding Registry Partner&nbsp;with quarterly updates and recognition on the PPA website. Industry partners interested in supporting the registry can contact JoBeth McCarthy at <a fr-original-style="" href="mailto:jobeth@pheopara.org" rel="noopener noreferrer" style="text-decoration-color: currentcolor; -webkit-user-select: auto; box-sizing: inherit;" target="_blank">jobeth@pheopara.org</a>.&nbsp;

Patients with PPGL wait an average of 29 months for a diagnosis. The Pheo Para Alliance has begun to develop the first international Pheo Para Patient &amp; Provider Registry in partnership with the National Organization for Rare Disorders (NORD) IAMRARE® platform. This groundbreaking initiative will accelerate research, improve care, and help bring new treatments to patients faster. Community donation builds the registry and supports patients every step of the way. Gifts of $250 or more are recognized as a Community Founding Registry Partner with quarterly updates and recognition on the PPA website. Industry partners interested in supporting the registry can contact JoBeth McCarthy at <a href="mailto:jobeth@pheopara.org" target="_blank">jobeth@pheopara.org</a>.

Build the Future of Pheochromocytoma & Paraganglioma with Us!

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Pheo Para Alliance

What inspired you to support this fundraiser?

If you gifted the PPA $250 or more, can we list you as a Founding Registry Partner on the website?

US$27,395.00