Check made out to order Genetic Alliance

EIN: 52-1571905 

Address to send check: 
Genetic Alliance
26400 Woodfield Road #189
Damascus MD 20872-7509  
Telephone: 202.966.5557
Fax:  202.966.8553
E-mail:  sterry@geneticalliance.org

Help RISE Bring Genomic Answers to Children Who Have Nowhere Else to Turn For a child with an unexplained illness, a genomic diagnosis can end years of uncertainty and change what happens next. It can guide treatment, prevent unnecessary procedures, identify health risks, connect the family with specialists and support, and open the door to research or clinical trials.Yet genomic testing remains out of reach for millions of children because of cost, geography, lack of insurance, and limited clinical infrastructure. RISE is changing that. RISE provides clinical genomic testing and follow-through services at no cost to children with suspected genetic conditions in low- and middle-income countries and under-resourced communities in the United States. The program now operates through 26 clinical sites, nine qualified clinical laboratory partners, and 19 participating countries. RISE is approaching 4,000 children tested and has generated more than 10,000 genomes, including children and available family members.The results demonstrate why this work matters. Across RISE’s experience, approximately half of the children tested receive a diagnosis. Published findings show that results changed core clinical management for 41.4% of those tested—and for 69.2% when genetic counseling and avoidance of unnecessary additional testing were included. The clinical testing is donated, but donated sequencing does not reach a child on its own. RISE must coordinate enrollment and consent, collect and ship samples across borders, manage customs requirements, connect clinics with laboratories, return results, communicate with families, manage information, and help families reach appropriate follow-up care and support. A gift of $100 helps cover the program, shipping, and customs costs required to move one child and both biological parents—a trio—through RISE. Thousands of children still need testing. Your contribution helps RISE:<ul><li>Reach children who cannot obtain genomic testing any other way</li><li>Add clinical sites and laboratory partners</li><li>Ship samples safely across countries and continents</li><li>Coordinate testing, interpretation, and return of results</li><li>Reanalyze unresolved cases as genomic knowledge advances</li><li>Connect diagnosed children with appropriate care, support, research, and treatment opportunities</li><li>Ensure that families retain control over their genomic and health information</li></ul>A diagnosis is not the endpoint. It is the beginning of informed care and a clearer path forward. How many children and families can you help move toward answers?Donate now to help RISE bring advanced genomic medicine to children whose access should not depend on their family’s income, insurance status, or country of residence. Share this campaign so that we can reach more children who have already waited too long. About ZeffyZeffy does not deduct transaction fees from your donation. During checkout, Zeffy will ask whether you would like to add an optional contribution to support its platform. You may choose any amount, including $0, and Genetic Alliance will receive the full amount of your donation. Other Ways to GiveWire Transfer—Checking AccountBank Name: Wells Fargo Bank, N.A. Bank Address: 3314 Wisconsin Avenue NW City: Washington State: DC Postal Code: 20016 Country: United States of America Bank Account Number: 2000002581868 BIC/SWIFT Code: WFBIUS6S ABA Routing Number: 054001220 Sort Code: Not applicable Primary Financial ContactRuth Child, CFO Phone: 202-966-5557 Email: <a href="mailto:rchild@geneticalliance.org" target="_blank">rchild@geneticalliance.org</a>Genetic Alliance 26400 Woodfield Road, #189 Damascus, MD 20872-7509 Image courtesy of Positive Exposure in collaboration with the Wilhelm Foundation. We are deeply grateful for their work with people and families affected by undiagnosed genetic conditions.

US$93,442.52