OPWSA and FPWR Canada

**Context Profile for OPWSA and FPWR Canada**

1. **Organization Mission & Cause:**
   - **Mission:** OPWSA (Ontario Prader-Willi Syndrome Association) and FPWR Canada (Foundation for Prader-Willi Research Canada) are dedicated to eliminating the challenges of Prader-Willi Syndrome (PWS) through research, advocacy, and support. Their mission focuses on improving the lives of individuals with PWS and their families by advancing research and providing resources and support.
   - **Cause:** Prader-Willi Syndrome is a complex genetic disorder affecting multiple systems in the body. The organization aims to fund research to understand and treat PWS, raise awareness, and offer support to affected families.

2. **Type of Activities:**
   - **Research Funding:** The organization prioritizes funding scientific research aimed at understanding and finding treatments for PWS.
   - **Advocacy:** They engage in advocacy efforts to increase awareness and influence policy related to PWS.
   - **Support Programs:** OPWSA and FPWR Canada provide resources and support networks for families and individuals affected by PWS.
   - **Events:** They organize events to raise awareness and funds, such as walks, runs, and community gatherings.

3. **Tone of Voice:**
   - The tone is **professional** and **supportive**, with an emphasis on **inspiration** and **hope**. The language is clear and informative, aiming to educate and engage both the scientific community and the general public.
   - The website content reflects a balance between technical information for researchers and accessible language for families and supporters.

4. **Emoji Usage:**
   - The organization does not prominently use emojis in their website content. Their communication style is more formal and focused on delivering clear and concise information.

5. **Key Facts:**
   - **Founding Info:** OPWSA and FPWR Canada are relatively new organizations, focusing on the niche cause of Prader-Willi Syndrome.
   - **Scale and Impact:** While specific impact metrics are not detailed, the organization is actively involved in funding research projects and supporting families across Canada.
   - **Volunteer Info:** The website encourages community involvement, suggesting opportunities for volunteering and participating in events.

6. **Writing Guidelines:**
   - **Clarity and Precision:** Use clear and precise language to convey complex scientific information in an accessible manner.
   - **Supportive and Hopeful:** Maintain a tone that is supportive and hopeful, reflecting the organization's commitment to making a positive impact.
   - **Professionalism:** Ensure content is professional, reflecting the seriousness of the cause and the organization's dedication to research and advocacy.
   - **Engagement:** Encourage community engagement through calls to action for donations, event participation, and advocacy efforts.

This context profile should guide AI assistants in creating content that aligns with the organization's mission, tone, and communication style, ensuring that all generated content is relevant and supportive of their goals.

Early Bird Family Conference Admission

LXCL:$20 off when two adults of the same family attend the Family Conference together.

FAMILY PROMO - Discount for 2

LXCL:Please note that for kids under the age of 6, it is expected that families provide their own volunteer (parent, grandparent, friend, etc.) to look after their child in the Friends and Fun Club.

Early Bird Friends and Fun Club

OPWSA and FPWR Canada are partnering to host the 2026 PWS National Family Conference on Saturday, September 19, 2026 at The Kingbridge Centre in King City. The conference will feature presentations from experts in the field on such topics as the latest in PWS research, behaviour, nutrition, and health considerations. The conference will also provide ample time for parents and caregivers to connect. It&#39;s sure to be a great day of learning, information sharing, networking, peer support, and fun including wonderful programming for individuals with PWS of all ages and their siblings. The Kingbridge Centre has great amenities for our Friends and Fun Club, including a gymnasium, pool, walking track, walking trails (weather permitting), movie theatre, etc. Participants in the Friends and Fun Club will be able to engage in these activities as well as arts and crafts, puzzles, etc. Did you know that SSAH or Passport funding can be used to cover the cost of admission for individuals with PWS into the Friends and Fun Club since it is considered respite? We can provide you with a receipt so that you can claim the expense. Please note that we are hosting a program for Professional Providers on Friday, September 18th. If you are a Professional Provider, please register on the <a fr-original-style="" href="https://www.zeffy.com/en-CA/ticketing/2026-pws-national-professional-providers-day" rel="noopener noreferrer" style="text-decoration-color: initial; user-select: auto; box-sizing: inherit;" target="_blank">Professional Providers Day Event Page</a>. Registration for Professional Providers Day is restricted to professional providers only (agency staff, educators, medical professionals, and other professionals that support individuals with PWS). DATES AND TIMES:Friday, September 18, 2026 - Optional Meet and Greet - 7:00pm-9:00pmSaturday, September 19, 2026 - 9:00am-5:00pm LOCATIONS:Optional Friday Evening Meet and Greet (Location TBD) PWS National Family Conference &amp; Friends and Fun ClubThe Kingbridge Centre - 12750 Jane Street, King City, ONParking is free at The Kingbridge Centre. ACCOMMODATIONS:The Kingbridge Centre - 12750 Jane Street, King City, ONOvernight rooms are available at the Kingbridge Centre and include breakfast for a cost of $300 +HST per night based on single occupancy, or $347 +HST per night based on double occupancy. If you are interested in staying overnight at Kingbridge Centre, we have a block of rooms available until August 19th. To book a room, contact the Kingbridge Centre Reservations Team at 905-833-3086 and let them know that you are attending the PWS Conference. Please note that you will be responsible for abiding by their cancellation policy and paying for cancellation fees incurred. Other Hotel Options:There are other hotels about 15-20 minutes away near Vaughan Mills, and also around Hwy 400 and Hwy 7 if you are looking for more cost effective options. REGISTRATION FEES:Family Conference AdmissionEarly Bird Price* - $135 per person (Save $20 when you buy 2 - $250 for two members of the same family)Regular Price - $185 per person*Early Bird Pricing Available until June 30, 2026. Friends and Fun Club - Program for individuals with PWS of all ages and their siblingsEarly Bird Price* - $90 per personRegular Price - $120 per person*Early Bird Pricing Available until June 30, 2026. **Please note that for kids under the age of 6, it is expected that families provide their own volunteer (parent, grandparent, friend, etc.) to look after their child in the Friends and Fun Club. You do not need to pay for the volunteer, and you will be asked to include the volunteer&#39;s information as part of the registration form. ***Every participant in the Friends and Fun Club must register (regardless of whether you are providing your own volunteer). ****Did you know that SSAH or Passport funding can be used to cover the cost of admission for individuals with PWS into the Friends and Fun Club since it is considered respite? We can provide you with a receipt so that you can claim the expense. IMPORTANT NOTE! Just a quick heads up&mdash;since this is our first time using Zeffy as our&nbsp;conference registration platform, we wanted to flag something you&rsquo;ll see at checkout.&nbsp;We&rsquo;ve chosen to use Zeffy because it allows us to accept payments without platform fees, which helps ensure that more of your money goes directly toward supporting the event, OPWSA, and FPWR Canada. Zeffy adds a suggested contribution to support their platform, which appears as an extra donation by default. If you&rsquo;d prefer not to include this, you can simply select &quot;Other&quot; from the dropdown menu, and adjust the amount to $0 (or any amount you choose) before completing your payment. It&rsquo;s completely optional&mdash;we just didn&rsquo;t want it to catch anyone off guard.&nbsp; VOLUNTEERS:We are looking for volunteers for our Friends and Fun Club! If you know of someone over the age of 15 that would be interested in supporting individuals with PWS and their siblings, please complete the volunteer registration by completing the <a fr-original-style="" href="https://forms.gle/q94WaYpYxxpwhJPT7" rel="noopener noreferrer" style="text-decoration-color: initial; user-select: auto; box-sizing: inherit;" target="_blank">Volunteer Registration Form</a>.

Thank you for registering for the 2026 PWS National Family Conference taking place on Saturday, September 19th at The Kingbridge Centre in King City! More details about the conference will be sent closer to the event date.

OPWSA and FPWR Canada are partnering to host the 2026 PWS National Family Conference on Saturday, September 19, 2026 at The Kingbridge Centre in King City. The conference will feature presentations from experts in the field on such topics as the latest in PWS research, behaviour, nutrition, and health considerations. The conference will also provide ample time for parents and caregivers to connect. It's sure to be a great day of learning, information sharing, networking, peer support, and fun including wonderful programming for individuals with PWS of all ages and their siblings. The Kingbridge Centre has great amenities for our Friends and Fun Club, including a gymnasium, pool, walking track, walking trails (weather permitting), movie theatre, etc. Participants in the Friends and Fun Club will be able to engage in these activities as well as arts and crafts, puzzles, etc. Did you know that SSAH or Passport funding can be used to cover the cost of admission for individuals with PWS into the Friends and Fun Club since it is considered respite? We can provide you with a receipt so that you can claim the expense. Please note that we are hosting a program for Professional Providers on Friday, September 18th. If you are a Professional Provider, please register on the <a href="https://www.zeffy.com/en-CA/ticketing/2026-pws-national-professional-providers-day" target="_blank">Professional Providers Day Event Page</a>. Registration for Professional Providers Day is restricted to professional providers only (agency staff, educators, medical professionals, and other professionals that support individuals with PWS). DATES AND TIMES:Friday, September 18, 2026 - Optional Meet and Greet - 7:00pm-9:00pmSaturday, September 19, 2026 - 9:00am-5:00pm LOCATIONS:Optional Friday Evening Meet and Greet (Location TBD) PWS National Family Conference &amp; Friends and Fun ClubThe Kingbridge Centre - 12750 Jane Street, King City, ONParking is free at The Kingbridge Centre. ACCOMMODATIONS:The Kingbridge Centre - 12750 Jane Street, King City, ONOvernight rooms are available at the Kingbridge Centre and include breakfast for a cost of $300 +HST per night based on single occupancy, or $347 +HST per night based on double occupancy. If you are interested in staying overnight at Kingbridge Centre, we have a block of rooms available until August 19th. To book a room, contact the Kingbridge Centre Reservations Team at 905-833-3086 and let them know that you are attending the PWS Conference. Please note that you will be responsible for abiding by their cancellation policy and paying for cancellation fees incurred. Other Hotel Options:There are other hotels about 15-20 minutes away near Vaughan Mills, and also around Hwy 400 and Hwy 7 if you are looking for more cost effective options. REGISTRATION FEES:Family Conference AdmissionEarly Bird Price* - $135 per person (Save $20 when you buy 2 - $250 for two members of the same family)Regular Price - $185 per person*Early Bird Pricing Available until June 30, 2026. Friends and Fun Club - Program for individuals with PWS of all ages and their siblingsEarly Bird Price* - $90 per personRegular Price - $120 per person*Early Bird Pricing Available until June 30, 2026. **Please note that for kids under the age of 6, it is expected that families provide their own volunteer (parent, grandparent, friend, etc.) to look after their child in the Friends and Fun Club. You do not need to pay for the volunteer, and you will be asked to include the volunteer's information as part of the registration form. ***Every participant in the Friends and Fun Club must register (regardless of whether you are providing your own volunteer). ****Did you know that SSAH or Passport funding can be used to cover the cost of admission for individuals with PWS into the Friends and Fun Club since it is considered respite? We can provide you with a receipt so that you can claim the expense. IMPORTANT NOTE! Just a quick heads up—since this is our first time using Zeffy as our conference registration platform, we wanted to flag something you’ll see at checkout. We’ve chosen to use Zeffy because it allows us to accept payments without platform fees, which helps ensure that more of your money goes directly toward supporting the event, OPWSA, and FPWR Canada. Zeffy adds a suggested contribution to support their platform, which appears as an extra donation by default. If you’d prefer not to include this, you can simply select "Other" from the dropdown menu, and adjust the amount to $0 (or any amount you choose) before completing your payment. It’s completely optional—we just didn’t want it to catch anyone off guard.  VOLUNTEERS:We are looking for volunteers for our Friends and Fun Club! If you know of someone over the age of 15 that would be interested in supporting individuals with PWS and their siblings, please complete the volunteer registration by completing the <a href="https://forms.gle/q94WaYpYxxpwhJPT7" target="_blank">Volunteer Registration Form</a>.

OPWSA and FPWR Canada

2026 PWS National Family Conference

12750 Jane St

Early Bird Family Conference Admission

$135

FAMILY PROMO - Discount for 2

$125

Early Bird Friends and Fun Club

$90

Add a donation for OPWSA and FPWR Canada