OPWSA and FPWR Canada

**Context Profile for OPWSA and FPWR Canada**

1. **Organization Mission & Cause:**
   - **Mission:** OPWSA (Ontario Prader-Willi Syndrome Association) and FPWR Canada (Foundation for Prader-Willi Research Canada) are dedicated to eliminating the challenges of Prader-Willi Syndrome (PWS) through research, advocacy, and support. Their mission focuses on improving the lives of individuals with PWS and their families by advancing research and providing resources and support.
   - **Cause:** Prader-Willi Syndrome is a complex genetic disorder affecting multiple systems in the body. The organization aims to fund research to understand and treat PWS, raise awareness, and offer support to affected families.

2. **Type of Activities:**
   - **Research Funding:** The organization prioritizes funding scientific research aimed at understanding and finding treatments for PWS.
   - **Advocacy:** They engage in advocacy efforts to increase awareness and influence policy related to PWS.
   - **Support Programs:** OPWSA and FPWR Canada provide resources and support networks for families and individuals affected by PWS.
   - **Events:** They organize events to raise awareness and funds, such as walks, runs, and community gatherings.

3. **Tone of Voice:**
   - The tone is **professional** and **supportive**, with an emphasis on **inspiration** and **hope**. The language is clear and informative, aiming to educate and engage both the scientific community and the general public.
   - The website content reflects a balance between technical information for researchers and accessible language for families and supporters.

4. **Emoji Usage:**
   - The organization does not prominently use emojis in their website content. Their communication style is more formal and focused on delivering clear and concise information.

5. **Key Facts:**
   - **Founding Info:** OPWSA and FPWR Canada are relatively new organizations, focusing on the niche cause of Prader-Willi Syndrome.
   - **Scale and Impact:** While specific impact metrics are not detailed, the organization is actively involved in funding research projects and supporting families across Canada.
   - **Volunteer Info:** The website encourages community involvement, suggesting opportunities for volunteering and participating in events.

6. **Writing Guidelines:**
   - **Clarity and Precision:** Use clear and precise language to convey complex scientific information in an accessible manner.
   - **Supportive and Hopeful:** Maintain a tone that is supportive and hopeful, reflecting the organization's commitment to making a positive impact.
   - **Professionalism:** Ensure content is professional, reflecting the seriousness of the cause and the organization's dedication to research and advocacy.
   - **Engagement:** Encourage community engagement through calls to action for donations, event participation, and advocacy efforts.

This context profile should guide AI assistants in creating content that aligns with the organization's mission, tone, and communication style, ensuring that all generated content is relevant and supportive of their goals.

Early Bird Professional Providers Day Admission

LXCL:$40 off when four members of the same organization attend the Professional Providers Day together.

TEAM PROMO - Discount for 4

OPWSA and FPWR Canada are partnering to host the 2026 PWS Professional Providers Day on Friday, September 18, 2026 at The Kingbridge Centre in King City. Following the success of last year&rsquo;s event, the team from Latham Centers will return to build on the learning and conversations that began at our inaugural Professional Providers Day, while also welcoming those joining us for the first time. Together, participants will explore meaningful ways to support individuals with PWS, their families, and communities through thoughtful discussion and practical insight. The day will include opportunities to work through real-world behavioural scenarios, share experiences with peers, and develop actionable strategies. Professional providers will also gain practical approaches for strengthening collaboration with parents and caregivers. Additional presentations will feature Lynn Garrick (Medical/Research Coordinator, PWSA | USA), who will speak about health considerations and aging, and Kim Tula (Senior Family Support Counselor and Trainer, PWSA | USA), who will present on best practices for nutrition and exercise. Join us for a day dedicated to collaboration, learning, and shared inspiration as we continue building a stronger community of professionals supporting individuals with PWS. Please note that our Friends and Fun Club will only be running on Saturday, September 19th. The Professional Providers Day is for agency staff, educators, and other professionals that support individuals with PWS. If you are a parent, please register for our <a fr-original-style="" href="https://www.zeffy.com/en-CA/ticketing/2026-pws-national-family-conference" rel="noopener noreferrer" style="text-decoration-color: initial; user-select: auto; box-sizing: inherit;" target="_blank">Family Conference</a>. DATES AND TIMES:Friday, September 18, 2026 - 9:00am-5:00pmFriday, September 18, 2026 - Meet and Greet - 7:00pm-9:00pm LOCATIONS:PWS National Professional Providers DayThe Kingbridge Centre - 12750 Jane Street, King City, ONParking is free at The Kingbridge Centre. Optional Friday Evening Meet and Greet (Location TBD) ACCOMMODATIONS:The Kingbridge Centre - 12750 Jane Street, King City, ONOvernight rooms are available at the Kingbridge Centre and include breakfast for a cost of $300 +HST per night based on single occupancy, or $347 +HST per night based on double occupancy. If you are interested in staying overnight at Kingbridge Centre, we have a block of rooms available until August 19th. To book a room, contact the Kingbridge Centre Reservations Team at 905-833-3086 and let them know that you are attending the PWS Conference. Please note that you will be responsible for abiding by their cancellation policy and paying for cancellation fees incurred. Other Hotel Options:There are other hotels about 15-20 minutes away near Vaughan Mills, and also around Hwy 400 and Hwy 7 if you are looking for more cost effective options. REGISTRATION FEES:Professional Providers Day AdmissionEarly Bird Price* - $220 per person (Save $40 when you buy 4 - $840 for four attendees from the same organization)Regular Price - $260 per person*Early Bird Pricing Available until June 30, 2026. IMPORTANT NOTE!&nbsp;Just a quick heads up&mdash;since this is our first time using Zeffy as our conference registration platform, we wanted to flag something you&rsquo;ll see at checkout. We&rsquo;ve chosen to use Zeffy because it allows us to accept payments without platform fees, which helps ensure that more of your money goes directly toward supporting the event, OPWSA, and FPWR Canada. Zeffy adds a suggested contribution to support their platform, which appears as an extra donation by default. If you&rsquo;d prefer not to include this, you can simply select &quot;Other&quot; from the dropdown menu, and adjust the amount to $0 (or any amount you choose) before completing your payment. It&rsquo;s completely optional&mdash;we just didn&rsquo;t want it to catch anyone off guard.&nbsp; FEEDBACK FROM 2025 PROFESSIONAL PROVIDERS DAY:&quot;I gained so much knowledge from the conference. Eg. behaviour, nutrition, learned from other providers experience.&quot; &quot;I believe this conference would benefit my team and would love to have them attend one. Found resources and excited to move forward with them.&quot; &quot;Very relevant topics and great opportunity to network with other service providers.&quot; &quot;All topics were beneficial and I don&#39;t feel needs to be changed. I enjoyed the networking and the reassurance that I was not the only person dealing with certain situations and was able to hear how others were dealing with the situations.&quot; VOLUNTEERS:We are looking for volunteers for our Friends and Fun Club taking place on Saturday, September 19th! If you know of someone over the age of 15 that would be interested in supporting individuals with PWS and their siblings, please complete the volunteer registration by completing the <a fr-original-style="" href="https://forms.gle/q94WaYpYxxpwhJPT7" rel="noopener noreferrer" style="text-decoration-color: initial; user-select: auto; box-sizing: inherit;" target="_blank">Volunteer Registration Form</a>.

Thank you for registering for the 2026 PWS National Professional Providers Day taking place on Friday, September 18th at The Kingbridge Centre in King City! More details about the conference will be sent closer to the event date.

OPWSA and FPWR Canada are partnering to host the 2026 PWS Professional Providers Day on Friday, September 18, 2026 at The Kingbridge Centre in King City. Following the success of last year’s event, the team from Latham Centers will return to build on the learning and conversations that began at our inaugural Professional Providers Day, while also welcoming those joining us for the first time. Together, participants will explore meaningful ways to support individuals with PWS, their families, and communities through thoughtful discussion and practical insight. The day will include opportunities to work through real-world behavioural scenarios, share experiences with peers, and develop actionable strategies. Professional providers will also gain practical approaches for strengthening collaboration with parents and caregivers. Additional presentations will feature Lynn Garrick (Medical/Research Coordinator, PWSA | USA), who will speak about health considerations and aging, and Kim Tula (Senior Family Support Counselor and Trainer, PWSA | USA), who will present on best practices for nutrition and exercise. Join us for a day dedicated to collaboration, learning, and shared inspiration as we continue building a stronger community of professionals supporting individuals with PWS. Please note that our Friends and Fun Club will only be running on Saturday, September 19th. The Professional Providers Day is for agency staff, educators, and other professionals that support individuals with PWS. If you are a parent, please register for our <a href="https://www.zeffy.com/en-CA/ticketing/2026-pws-national-family-conference" target="_blank">Family Conference</a>. DATES AND TIMES:Friday, September 18, 2026 - 9:00am-5:00pmFriday, September 18, 2026 - Meet and Greet - 7:00pm-9:00pm LOCATIONS:PWS National Professional Providers DayThe Kingbridge Centre - 12750 Jane Street, King City, ONParking is free at The Kingbridge Centre. Optional Friday Evening Meet and Greet (Location TBD) ACCOMMODATIONS:The Kingbridge Centre - 12750 Jane Street, King City, ONOvernight rooms are available at the Kingbridge Centre and include breakfast for a cost of $300 +HST per night based on single occupancy, or $347 +HST per night based on double occupancy. If you are interested in staying overnight at Kingbridge Centre, we have a block of rooms available until August 19th. To book a room, contact the Kingbridge Centre Reservations Team at 905-833-3086 and let them know that you are attending the PWS Conference. Please note that you will be responsible for abiding by their cancellation policy and paying for cancellation fees incurred. Other Hotel Options:There are other hotels about 15-20 minutes away near Vaughan Mills, and also around Hwy 400 and Hwy 7 if you are looking for more cost effective options. REGISTRATION FEES:Professional Providers Day AdmissionEarly Bird Price* - $220 per person (Save $40 when you buy 4 - $840 for four attendees from the same organization)Regular Price - $260 per person*Early Bird Pricing Available until June 30, 2026. IMPORTANT NOTE! Just a quick heads up—since this is our first time using Zeffy as our conference registration platform, we wanted to flag something you’ll see at checkout. We’ve chosen to use Zeffy because it allows us to accept payments without platform fees, which helps ensure that more of your money goes directly toward supporting the event, OPWSA, and FPWR Canada. Zeffy adds a suggested contribution to support their platform, which appears as an extra donation by default. If you’d prefer not to include this, you can simply select "Other" from the dropdown menu, and adjust the amount to $0 (or any amount you choose) before completing your payment. It’s completely optional—we just didn’t want it to catch anyone off guard.  FEEDBACK FROM 2025 PROFESSIONAL PROVIDERS DAY:"I gained so much knowledge from the conference. Eg. behaviour, nutrition, learned from other providers experience." "I believe this conference would benefit my team and would love to have them attend one. Found resources and excited to move forward with them." "Very relevant topics and great opportunity to network with other service providers." "All topics were beneficial and I don't feel needs to be changed. I enjoyed the networking and the reassurance that I was not the only person dealing with certain situations and was able to hear how others were dealing with the situations." VOLUNTEERS:We are looking for volunteers for our Friends and Fun Club taking place on Saturday, September 19th! If you know of someone over the age of 15 that would be interested in supporting individuals with PWS and their siblings, please complete the volunteer registration by completing the <a href="https://forms.gle/q94WaYpYxxpwhJPT7" target="_blank">Volunteer Registration Form</a>.

OPWSA and FPWR Canada

2026 PWS National Professional Providers Day

12750 Jane St

Early Bird Professional Providers Day Admission

$220

TEAM PROMO - Discount for 4

$210

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