Canadian PKU and Allied Disorders (CanPKU+)

### Context Profile for Canadian PKU and Allied Disorders (CanPKU+)

#### 1. Organization Mission & Cause
**Mission:** CanPKU+ is dedicated to improving the lives of individuals affected by Phenylketonuria (PKU) and allied disorders. Their mission emphasizes advocacy, education, and support for patients and families, aiming to raise awareness and promote research for better treatment options.

**Cause:** The organization focuses on rare metabolic disorders, particularly PKU and Homocystinuria (HCU), which require lifelong management and can significantly impact quality of life. They aim to empower patients through resources, community support, and funding research initiatives.

#### 2. Type of Activities
- **Events:** CanPKU+ organizes events like the "Race for Research," which raises funds specifically for HCU research.
- **Fundraising Campaigns:** They conduct various campaigns to support research and provide resources for families affected by these disorders.
- **Community Programs:** The organization offers educational resources, connects families with healthcare professionals, and provides a platform for sharing experiences and support.

#### 3. Tone of Voice
The tone of voice on the CanPKU+ website is:
- **Friendly and Supportive:** The language is warm and welcoming, aiming to create a sense of community among individuals affected by PKU and allied disorders.
- **Informative and Professional:** While maintaining a friendly tone, the content is also factual and educational, providing essential information about the disorders and available resources.
- **Inspiring:** The messaging often encourages hope and resilience, motivating families and individuals to engage with the community and support research efforts.

#### 4. Emoji Usage
The website does not prominently feature emojis in its communications. However, in the recent email campaign, the tone remains professional and straightforward without the use of emojis, indicating a preference for a more formal communication style in official correspondence.

#### 5. Key Facts
- **Founding Info:** The specific founding year is not detailed on the website, but CanPKU+ has been active in advocating for individuals with PKU and allied disorders for several years.
- **Scale:** The organization has engaged in 15 total forms and 9 email campaigns, indicating an active approach to community engagement and fundraising.
- **Impact Metrics:** While specific metrics are not provided, the organization highlights its commitment to research funding and community support, suggesting a focus on measurable outcomes in improving patient care.
- **Volunteer Info:** The website mentions opportunities for volunteers, encouraging community involvement in various capacities to support the organization’s mission.

#### 6. Writing Guidelines
- **Style:** Use a friendly yet professional tone that is informative and supportive. Aim to inspire hope and community engagement.
- **Content Structure:** Organize information clearly, using headings and bullet points for easy readability. Include personal stories or testimonials where appropriate to enhance relatability.
- **Call to Action:** Encourage readers to participate in events, donate, or share their experiences, making it clear how they can contribute to the cause.
- **Language:** Avoid overly technical jargon; instead, use accessible language that resonates with families and individuals affected by PKU and allied disorders.

This context profile provides a comprehensive understanding of CanPKU+ that will assist in generating tailored and effective content for their audience.

This rate is per person and applies to anyone who has past their 2nd birthday.

This ticket also includes a provided table to set up an exhibitor space.  Please provide your own table cloths.

Registration desk opens at Thursday for the full event.

All activities Thursday to Sunday and an invitation to purchase an additional ticket to attend the Gala Dinner on Friday.
Meals included: 
Thursday 1 Snack and Mix and Mingle
Friday Breakfast, Lunch and 2 snacks.
Saturday Breakfast, Lunch, Dinner and 2 snacks.
Sunday Breakfast and Snack

Childcare provided for those under 12 years old on Saturday and Sunday (If family will be joining)

Option to add a Gala dinner on Friday at an additional cost.

Early Bird - Not for Profit with Booth

This rate is per person and applies to anyone who has past their 2nd birthday. This ticket is for additional family members that will attend with a not for profit attenee but will only be attending the family portion.

All activities Saturday to Sunday and an invitation to purchase an additional ticket to attend the Gala Dinner on Friday.
Meals included: 
Saturday Breakfast, Lunch, Dinner and 2 snacks.
Sunday Breakfast and Snack

Option to add a Gala dinner on Friday at an additional cost.

Childcare provided for those under 12 years old on Saturday and Sunday

Early Bird - NFP- Family (Add on option)

Not for Profit - with Booth

This rate is per person and applies to anyone who has past their 2nd birthday. This ticket is for additional family members that will attend with a not for profit attendee but will only be attending the family portion.

All activities Saturday to Sunday and an invitation to purchase an additional ticket to attend the Gala Dinner on Friday.
Meals included: 
Saturday Breakfast, Lunch, Dinner and 2 snacks.
Sunday Breakfast and Snack

Option to add a Gala dinner on Friday at an additional cost.

Childcare provided for those under 12 years old on Saturday and Sunday

NFP - Family Conference (Add on option)

This ticket is for those who will be two or less on Aug 22nd, 2025 to attend the Building Bridges Conference.

This will allow participation from Saturday to Sunday.
In also offers the ability to purchase an add on Gala ticket for Friday night.

Proof of Date of Birth will be needed upon checkin to obtain this rate.

Infant - Toddler Ticket (Add on option)

We do not allow for payment by cheque. You may make payments by etransfer by emailing payments@Canpku.org. Please enter your email and confirmation number in the comments box so we may pair your payment to your tickets. Tickets are confirmed when we have matched payment to ticket order.

Hi <span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip" fr-original-style style="background-color:rgb(248, 248, 255);border:1px solid rgb(191, 191, 255);border-radius:4px;color:rgb(42, 42, 196);padding:1px 8px;font-size:11px;display:inline-block;margin:0px;overflow-wrap:anywhere;user-select:none;box-sizing:inherit">First name , Thank you for registering for our event and supporting our cause.  If you would like to contribute further, contact us to become a volunteer, or talk to your friends about our cause! Tanya Chute Nagyinfo@canpku.org

<p style="box-sizing:border-box;margin:0px 0px 1rem;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;line-height:1.5;max-width:100%">The Building Bridges conference kicks off on Thursday August 21st, first welcoming the medical community. This day is dedicated to helping clinicians, researchers, and industry professionals connect, share insights, and bridge critical information to clinics. Thursday will host an evening Mix and Mingle with a cash bar available. Thursday will host an evening Mix and Mingle with a cash bar available. <p style="box-sizing:border-box;margin:0px 0px 1rem;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;line-height:1.5;max-width:100%">Sessions will continue on Friday, August 22nd. In the evening we invite all attendees to an optional Gala Dinner (available as an additional ticket). This special evening brings together both sides of the conference, fostering networking and deeper connections as we begin bridging the medical and community-focused sessions. If you would like to attend, please be sure to purchase this additional ticket.<p style="box-sizing:border-box;margin:0px 0px 1rem;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;line-height:1.5;max-width:100%">The full conference experience continues on Saturday, welcoming both community members and scientific attendees. The day will feature group lectures, breakout sessions, and interactive opportunities with researchers, clinicians, industry partners*, not for profits and fellow attendees. With a diverse range of topics covered, there will be something for everyone—whether you’re seeking education, engagement, or fun. The evening wraps up with our much-anticipated pool take-over event, ensuring a mix of learning and entertainment!<p style="box-sizing:border-box;margin:0px 0px 1rem;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;line-height:1.5;max-width:100%">Sunday will offer additional educational sessions and breakout discussions, concluding at midday as we say our goodbyes and begin looking forward to next year’s event.<p style="box-sizing:border-box;margin:0px 0px 1rem;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;line-height:1.5;max-width:100%">To support families, onsite childcare will be available for children 12 and under, along with dedicated teen programming.<p style="box-sizing:border-box;margin:0px 0px 1rem;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;line-height:1.5;max-width:100%">This ticket category is for members of a not for profit that alines with our mission. You are invited to join us for both the scientific and family components of the conference. As we are celebrating all families, your family is also welcome to join. If they are old enough to participate in the full conference, the same ticket as our not for profit would be purchased. There is no child minding at the scientific portion of the event. If they will join only for the family portion, a reduced ticket is also available via this ticket option.<p style="box-sizing:border-box;margin:0px 0px 1rem;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;line-height:1.5;max-width:100%">If you have already been approved to have an exhibit booth - this is the ticket for you! It will include admission for one person. If you require more tickets - it will be more affordable to purchase them separately under the "Not for Profit" option that does not contain a booth. <p style="box-sizing:border-box;margin:0px 0px 1rem;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;line-height:1.5;max-width:100%">Note: Those who are also members of the Amino Allies community - can purchase the Family ticket if they are only attending that portion of the event.<p style="box-sizing:border-box;margin:0px 0px 1rem;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;line-height:1.5;max-width:100%">Each ticket is per person and required for everyone.<p style="box-sizing:border-box;margin:0px 0px 1rem;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;line-height:1;max-width:100%">* As permitted in Canadian Law<p style="box-sizing:border-box;margin:0px 0px 1rem;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;line-height:1;max-width:100%">** Based on available funding<p style="box-sizing:border-box;margin:0px 0px 1rem;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:normal;text-decoration-thickness:initial;text-decoration-style:initial;line-height:1;max-width:100%">*** Based on availability of space

Canadian PKU and Allied Disorders (CanPKU+)

Building Bridges - Not for Profit WITH BOOTH - Full 2 part Conference

8360 Blackfoot Trl SE

Add a donation for Canadian PKU and Allied Disorders (CanPKU+)

Not for Profit - with Booth

$500

NFP - Family Conference (Add on option)

$350

Infant - Toddler Ticket (Add on option)

$20