A white central card featuring the FSHD UK logo and "SOUFFLÉ therapeutics" sponsorship text is set against a dark blue background with a red accent.

FSHD UK Charity

LXCL:This ticket is ONLY available for FSHD patients and 1 guest. If you are not a FSHD patient then please select the day delegate option. If you are an FSHD patient you may invite more than one guest chargeable at the day delegate rate per person. Space is limited and this rate is only available until our Early Registration tickets reach our allocation. You must be 18 years or over to attend owing to our Insurance restrictions for the event.

Early Registration Rate

LXCL:Remember that space is limited and these tickets will only be available until our room capacity has been reached. You must be 18 years or over to attend owing to our Insurance restrictions for the event.

Day Delegate Rate DDR

FSHD UK Patient Engagement Day 2027 Sponsored by Souffle Therapeutics Join us for a special day bringing together people affected by FSHD, their families and supporters to share experiences, exchange information and hear about developments in research and treatment. You must be 18 years or over to attend owing to our Insurance restrictions for the event. Venue: Leonardo Royal Hotel London St Paul&#39;sWe are delighted to be holding this event at the spectacular Leonardo Royal Hotel, right next to the iconic St Paul&#39;s Cathedral in central London.<a fr-original-style="" href="https://tours.headbox.com/tour/leonardo-hotels/fshd-uk-charity-conference-13-03-27-leonardo-royal-st-paul-s/036903ad-d517-4405-9c27-fdb4ee07eb9a" style="text-decoration-color: currentcolor; user-select: auto; box-sizing: inherit;" target="_blank">Take a virtual tour of the hotel</a> If you would like to book hotel accommodation, your email confirmation will give you a promotional discount code available to use for 12th/13th March. This event is sponsored by &nbsp;Souffle Therapeutics. &nbsp;<a fr-original-style="" href="https://www.souffletx.com/" style="text-decoration-color: currentcolor; user-select: auto; box-sizing: inherit;" target="_blank">https://www.souffletx.com/</a> whose representatives will talk about ongoing FSHD research and be available to answer questions from attendees. Refreshments and lunch includedRegistration includes morning and afternoon refreshments and a two-course lunch served in the hotel dining area. Early Registration tickets &ndash; just &pound;12.50!Places are limited as this is a catered event, so advance booking is essential.Once early registration places are booked, any remaining places will only be available at the full delegate rate of &pound;69.Book early to secure your place and take advantage of this special offer!

FSHD UK Patient Engagement Day 2027 Sponsored by Souffle Therapeutics Join us for a special day bringing together people affected by FSHD, their families and supporters to share experiences, exchange information and hear about developments in research and treatment. You must be 18 years or over to attend owing to our Insurance restrictions for the event. Venue: Leonardo Royal Hotel London St Paul'sWe are delighted to be holding this event at the spectacular Leonardo Royal Hotel, right next to the iconic St Paul's Cathedral in central London.<a href="https://tours.headbox.com/tour/leonardo-hotels/fshd-uk-charity-conference-13-03-27-leonardo-royal-st-paul-s/036903ad-d517-4405-9c27-fdb4ee07eb9a" target="_blank">Take a virtual tour of the hotel</a> If you would like to book hotel accommodation, your email confirmation will give you a promotional discount code available to use for 12th/13th March. This event is sponsored by  Souffle Therapeutics.  <a href="https://www.souffletx.com/" target="_blank">https://www.souffletx.com/</a> whose representatives will talk about ongoing FSHD research and be available to answer questions from attendees. Refreshments and lunch includedRegistration includes morning and afternoon refreshments and a two-course lunch served in the hotel dining area. Early Registration tickets – just £12.50!Places are limited as this is a catered event, so advance booking is essential.Once early registration places are booked, any remaining places will only be available at the full delegate rate of £69.Book early to secure your place and take advantage of this special offer!

FSHD UK Charity

FSHD UK Patient Engagement Day

10 Godliman Street

Early Registration Rate

£12.50

Day Delegate Rate DDR

£69