Our mission is to raise funds for childhood brain cancer research, with a focus on Diffuse Intrinsic Pontine Glioma (DIPG), and to support children in their fight against the disease. Your donation helps fund our foundation's programs, which include: 1. Hope from Hailey, which raises funds to support DIPG research. We work with other foundations as members of the DIPG/DMG Research Funding Alliance to provide direct funding for DIPG research grants. We have established a partnership with St. Jude Children's Research Hospital and have created the Hailey Acevedo DIPG Research Fund. We also contribute to the National DIPG/DMG Brain Tumor Board, which offers free advice to referring physicians and patient families from a panel of DIPG experts on the best treatment paths forward at crucial points in a child's journey (e.g., at diagnosis, following radiation, first progression). 2. Hugs from Hailey, which seeks to brighten the days of children diagnosed with cancer. We send personalized care packages to children battling DIPG to encourage them to keep fighting. We also send treats and toys to clinics to let these little warriors know how special they are. As funding allows, we provide adaptive equipment (e.g., specialized utensils, walkers, arm weights, etc.) and supplies for children fighting DIPG/DMG who are facing new challenges in their daily lives due to disease progression. 3. Hops from Hailey, <span fr-original-style="font-size: 14px; font-family: Helvetica; color: rgb(34, 34, 34); background-color: rgb(255, 255, 255); font-weight: 400; font-style: normal; font-variant: normal; text-decoration: none; vertical-align: baseline; white-space: pre-wrap;" style="font-size:14px;font-family:Helvetica;color:rgb(34, 34, 34);background-color:rgb(255, 255, 255);font-weight:400;font-style:normal;font-variant:normal;text-decoration:none;vertical-align:baseline;white-space:pre-wrap;box-sizing:inherit">which offers gas gift cards to families of children diagnosed with DIPG/DMG. The program is designed to assist families whose children are enrolled in clinical trials or compassionate use drug therapy programs at hospitals that are located at least 75 miles away from their homes. This program is intended to help offset the cost of medically necessary travel, thereby reducing the financial burden on patient families and increasing access to care.

Hello <span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip " fr-original-style="background-color:rgb(248, 248, 255);border:1px solid rgb(191, 191, 255);border-radius:4px;color:rgb(42, 42, 196);display:inline-block;margin:0px;padding:1px 8px;font-size:11px;line-height:16px;overflow-wrap:anywhere;-webkit-user-select:none;box-sizing:inherit;" style="background-color:rgb(248, 248, 255);border:1px solid rgb(191, 191, 255);border-radius:4px;color:rgb(42, 42, 196);display:inline-block;margin:0px;padding:1px 8px;font-size:11px;line-height:16px;overflow-wrap:anywhere;-webkit-user-select:none;box-sizing:inherit">First name <span contenteditable="false" data-custom-variable="{{lastname}}" fr-original-class="fr-deletable styled-tag-chip " fr-original-style="background-color:rgb(248, 248, 255);border:1px solid rgb(191, 191, 255);border-radius:4px;color:rgb(42, 42, 196);display:inline-block;margin:0px;padding:1px 8px;font-size:11px;line-height:16px;overflow-wrap:anywhere;-webkit-user-select:none;box-sizing:inherit;" style="background-color:rgb(248, 248, 255);border:1px solid rgb(191, 191, 255);border-radius:4px;color:rgb(42, 42, 196);display:inline-block;margin:0px;padding:1px 8px;font-size:11px;line-height:16px;overflow-wrap:anywhere;-webkit-user-select:none;box-sizing:inherit">Last name, Thank you for your donation to benefit Princess Hailey's Hope Foundation. Your donation supports our mission to raise funds for childhood brain cancer research, with an emphasis on Diffuse Intrinsic Pontine Glioma (DIPG), and to support children who are currently battling this disease. We are only able to fund hope for a cure through research, support for travel to clinical trials, and hugs for children fighting DIPG because of your support. We hope you'll continue to power up against DIPG with us. If you would like to contribute further, contact us to become a volunteer, or talk to your friends about our cause! Delia Acevedo,President, Princess Hailey's Hope Foundationand always Hailey's mom princesshaileyshope@gmail.com EIN: 92-0449829Address: 17 Cypress Grove Ln SW                 Huntsville, AL 35824

Thank you for fundraising with us this year again! Here is more information.

Our mission is to raise funds for childhood brain cancer research, with a focus on Diffuse Intrinsic Pontine Glioma (DIPG), and to support children in their fight against the disease. Your donation helps fund our foundation's programs, which include: 1. Hope from Hailey, which raises funds to support DIPG research. We work with other foundations as members of the DIPG/DMG Research Funding Alliance to provide direct funding for DIPG research grants. We have established a partnership with St. Jude Children's Research Hospital and have created the Hailey Acevedo DIPG Research Fund. We also contribute to the National DIPG/DMG Brain Tumor Board, which offers free advice to referring physicians and patient families from a panel of DIPG experts on the best treatment paths forward at crucial points in a child's journey (e.g., at diagnosis, following radiation, first progression). 2. Hugs from Hailey, which seeks to brighten the days of children diagnosed with cancer. We send personalized care packages to children battling DIPG to encourage them to keep fighting. We also send treats and toys to clinics to let these little warriors know how special they are. As funding allows, we provide adaptive equipment (e.g., specialized utensils, walkers, arm weights, etc.) and supplies for children fighting DIPG/DMG who are facing new challenges in their daily lives due to disease progression. 3. Hops from Hailey, which offers gas gift cards to families of children diagnosed with DIPG/DMG. The program is designed to assist families whose children are enrolled in clinical trials or compassionate use drug therapy programs at hospitals that are located at least 75 miles away from their homes. This program is intended to help offset the cost of medically necessary travel, thereby reducing the financial burden on patient families and increasing access to care.

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Princess Hailey's Hope Foundation

### Context Profile for Princess Hailey's Hope Foundation

1. **Organization Mission & Cause**:
   - **Mission**: Princess Hailey's Hope Foundation is dedicated to funding research for Diffuse Intrinsic Pontine Glioma (DIPG), a rare and aggressive form of brain cancer that primarily affects children. The foundation aims to provide hope and support for families affected by this devastating disease.
   - **Cause**: The organization emphasizes the urgent need for research funding to find effective treatments and ultimately a cure for DIPG, which has a poor prognosis and limited treatment options.

2. **Type of Activities**:
   - **Fundraising Campaigns**: The foundation organizes various fundraising campaigns, such as the "Donuts for DIPG Research" in partnership with Krispy Kreme, where proceeds are directed towards DIPG research.
   - **Community Programs**: They engage the community through events like the "Boo! Brain Cancer Challenge," which encourages participation and donations to raise awareness and funds for brain cancer research.
   - **Awareness Initiatives**: The foundation also focuses on raising awareness about DIPG and its impact on children and families.

3. **Tone of Voice**:
   - The tone of the website and communications is **friendly**, **inspiring**, and **urgent**. The language is accessible and warm, aiming to connect emotionally with supporters and families affected by DIPG. Phrases like "Thank you from the bottom of our hearts" reflect a heartfelt appreciation for support.

4. **Emoji Usage**:
   - The organization uses emojis sparingly but effectively in their email campaigns. For example, the recent email campaign included a pumpkin emoji 🎃 to create a festive and engaging tone for the "Boo! Brain Cancer Challenge." This suggests they are open to using emojis to enhance emotional connection and engagement.

5. **Key Facts**:
   - **Founding Info**: Specific founding details are not provided on the website, but the foundation is named after a child named Hailey who battled DIPG, indicating a personal and heartfelt origin.
   - **Scale**: The foundation has conducted 17 email campaigns and has multiple fundraising forms, indicating an active engagement with their community.
   - **Impact Metrics**: While specific metrics are not detailed, the foundation states that 50% of proceeds from campaigns like the Krispy Kreme fundraiser will directly fund DIPG research through their "Hope from Hailey" program.
   - **Volunteer Info**: The website encourages community involvement, suggesting opportunities for volunteering and participation in events, although specific details are not outlined.

6. **Writing Guidelines**:
   - **Style**: Use a warm and friendly tone that conveys urgency and hope. Aim for clarity and emotional resonance in messaging.
   - **Structure**: Keep communications concise but informative. Use bullet points or short paragraphs for readability, especially in fundraising appeals.
   - **Engagement**: Incorporate calls to action that invite readers to participate, donate, or share their stories. Use personal anecdotes or testimonials where possible to enhance connection.
   - **Visual Elements**: Consider using emojis in a limited capacity to add warmth and engagement, particularly in email communications.

This context profile provides a comprehensive overview of Princess Hailey's Hope Foundation, guiding AI assistants to create tailored and impactful content that aligns with the organization's mission and values.

I would like for my donation to go towards the Hailey Acevedo DIPG Research Fund at St. Jude Children's Research Hospital.

Princess Hailey's Hope Foundation

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