Check made out to: Vein of Galen Malformation Support Network
Address to send check: 
VOGM Support Network
20 Bellevue Avenue
Bangor, Maine 04401

<p style="margin:0px;font-style:normal;font-variant-caps:normal;font-weight:400;font-stretch:normal;font-size:19px;line-height:normal;font-size-adjust:none;font-kerning:auto;font-variant-alternates:normal;font-variant-ligatures:normal;font-variant-numeric:normal;font-variant-east-asian:normal;font-variant-position:normal;font-feature-settings:normal;font-optical-sizing:auto;font-variation-settings:normal;caret-color:rgb(0, 0, 0);color:rgb(0, 0, 0);letter-spacing:normal;text-align:start;text-indent:0px;text-transform:none;white-space:normal;word-spacing:0px;-webkit-tap-highlight-color:rgba(26, 26, 26, 0.3);-webkit-text-size-adjust:auto;-webkit-text-stroke-width:0px;text-decoration:none;box-sizing:inherit"><span fr-original-style="font-family:UICTFontTextStyleBody;font-weight:normal;font-style:normal;font-size:19px;box-sizing:inherit;" style="font-family:UICTFontTextStyleBody;font-weight:normal;font-style:normal;font-size:19px;box-sizing:inherit">VOGM is a 501c3 nonprofit organization dedicated to supporting families facing a VOGM diagnosis. As parents who have experienced the emotional toll firsthand, we provide vital resources, emotional guidance, and financial assistance to travel for life-saving treatment. Our mission extends beyond direct support—we aim to raise awareness among medical providers and the community. With your donation, we can make a lasting impact, connecting families with specialists worldwide and offering hope in the face of adversity. Together, we can transform pain into hope and help families navigate their VOGM journey with strength. Join us in creating a brighter future for VOGM families.<p style="margin:0px;font-style:normal;font-variant-caps:normal;font-weight:400;font-stretch:normal;font-size:19px;line-height:normal;font-size-adjust:none;font-kerning:auto;font-variant-alternates:normal;font-variant-ligatures:normal;font-variant-numeric:normal;font-variant-east-asian:normal;font-variant-position:normal;font-feature-settings:normal;font-optical-sizing:auto;font-variation-settings:normal;caret-color:rgb(0, 0, 0);color:rgb(0, 0, 0);letter-spacing:normal;text-align:start;text-indent:0px;text-transform:none;white-space:normal;word-spacing:0px;-webkit-tap-highlight-color:rgba(26, 26, 26, 0.3);-webkit-text-size-adjust:auto;-webkit-text-stroke-width:0px;text-decoration:none;box-sizing:inherit"> <p style="margin:0px;font-style:normal;font-variant-caps:normal;font-weight:400;font-stretch:normal;font-size:19px;line-height:normal;font-size-adjust:none;font-kerning:auto;font-variant-alternates:normal;font-variant-ligatures:normal;font-variant-numeric:normal;font-variant-east-asian:normal;font-variant-position:normal;font-feature-settings:normal;font-optical-sizing:auto;font-variation-settings:normal;caret-color:rgb(0, 0, 0);color:rgb(0, 0, 0);letter-spacing:normal;text-align:start;text-indent:0px;text-transform:none;white-space:normal;word-spacing:0px;-webkit-tap-highlight-color:rgba(26, 26, 26, 0.3);-webkit-text-size-adjust:auto;-webkit-text-stroke-width:0px;text-decoration:none;box-sizing:inherit"><span fr-original-style="font-family:UICTFontTextStyleBody;font-weight:normal;font-style:normal;font-size:19px;box-sizing:inherit;" style="font-family:UICTFontTextStyleBody;font-weight:normal;font-style:normal;font-size:19px;box-sizing:inherit">NOTE: For credit card payments made through Zeffy an OPTIONAL contribution to cover platform costs will appear with a default of 9-16%. Click the drop down menu to adjust the desired contribution to any amount from $0+. <p style="margin:0px;font-style:normal;font-variant-caps:normal;font-weight:400;font-stretch:normal;font-size:19px;line-height:normal;font-size-adjust:none;font-kerning:auto;font-variant-alternates:normal;font-variant-ligatures:normal;font-variant-numeric:normal;font-variant-east-asian:normal;font-variant-position:normal;font-feature-settings:normal;font-optical-sizing:auto;font-variation-settings:normal;caret-color:rgb(0, 0, 0);color:rgb(0, 0, 0);letter-spacing:normal;text-align:start;text-indent:0px;text-transform:none;white-space:normal;word-spacing:0px;-webkit-tap-highlight-color:rgba(26, 26, 26, 0.3);-webkit-text-size-adjust:auto;-webkit-text-stroke-width:0px;text-decoration:none;box-sizing:inherit"> <p style="margin:0px;font-style:normal;font-variant-caps:normal;font-weight:400;font-stretch:normal;font-size:19px;line-height:normal;font-size-adjust:none;font-kerning:auto;font-variant-alternates:normal;font-variant-ligatures:normal;font-variant-numeric:normal;font-variant-east-asian:normal;font-variant-position:normal;font-feature-settings:normal;font-optical-sizing:auto;font-variation-settings:normal;caret-color:rgb(0, 0, 0);color:rgb(0, 0, 0);letter-spacing:normal;text-align:start;text-indent:0px;text-transform:none;white-space:normal;word-spacing:0px;-webkit-tap-highlight-color:rgba(26, 26, 26, 0.3);-webkit-text-size-adjust:auto;-webkit-text-stroke-width:0px;text-decoration:none;box-sizing:inherit">

Hello <span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip " fr-original-style="background-color:rgb(248, 248, 255);border:1px solid rgb(191, 191, 255);border-radius:4px;color:rgb(42, 42, 196);display:inline-block;margin:0px;padding:1px 8px;font-size:11px;line-height:16px;overflow-wrap:anywhere;-webkit-touch-callout:none;-webkit-user-select:none;box-sizing:inherit;" style="background-color:rgb(248, 248, 255);border:1px solid rgb(191, 191, 255);border-radius:4px;color:rgb(42, 42, 196);display:inline-block;margin:0px;padding:1px 8px;font-size:11px;line-height:16px;overflow-wrap:anywhere;-webkit-touch-callout:none;-webkit-user-select:none;box-sizing:inherit">First name <span contenteditable="false" data-custom-variable="{{lastname}}" fr-original-class="fr-deletable styled-tag-chip " fr-original-style="background-color:rgb(248, 248, 255);border:1px solid rgb(191, 191, 255);border-radius:4px;color:rgb(42, 42, 196);display:inline-block;margin:0px;padding:1px 8px;font-size:11px;line-height:16px;overflow-wrap:anywhere;-webkit-touch-callout:none;-webkit-user-select:none;box-sizing:inherit;" style="background-color:rgb(248, 248, 255);border:1px solid rgb(191, 191, 255);border-radius:4px;color:rgb(42, 42, 196);display:inline-block;margin:0px;padding:1px 8px;font-size:11px;line-height:16px;overflow-wrap:anywhere;-webkit-touch-callout:none;-webkit-user-select:none;box-sizing:inherit">Last name, We thank you from the bottom of our heart. This donation greatly helps our mission. We will now be able to: - Support ... families - Power medical research - Save lives! If you would like to contribute further, contact us to become a volunteer, or talk to your friends about our cause! Marlene BrochuLena Spisak  info@vogm.org 706-338-1387

Hello First name,
 
 Thank you from the bottom of our hearts for registering to fundraise for our cause. Your efforts will make a significant impact, and we are excited to have you as part of our fundraising team. 👏
 
 💡 Here are some tips for sharing your campaign:
 <ol>
 <li>Personalize Your Story: Share why this cause is important to you. Personal stories resonate more with potential donors.</li>
 <li>Use Social Media: Post about your campaign on Facebook, Instagram, X, and LinkedIn. Include the campaign link and a compelling image or video.</li>
 <li>Email Your Network: Send a personal email to friends, family, and colleagues explaining why you are fundraising and how they can help.</li>
 <li>Regular Updates: Keep your supporters informed with updates on your progress and any milestones you reach. This keeps them engaged and more likely to share your campaign.</li>
 </ol>
 Marlene Brochu info@vogm.org 706-338-1387

<p style="margin:0px;font-style:normal;font-variant-caps:normal;font-weight:400;font-stretch:normal;line-height:normal;font-kerning:auto;font-variant-alternates:normal;font-variant-ligatures:normal;font-variant-numeric:normal;font-variant-east-asian:normal;font-variant-position:normal;font-feature-settings:normal;font-optical-sizing:auto;font-variation-settings:normal;letter-spacing:normal;text-align:start;text-indent:0px;text-transform:none;white-space:normal;word-spacing:0px;-webkit-text-size-adjust:auto;-webkit-text-stroke-width:0px;text-decoration:none;box-sizing:inherit;max-width:100%">VOGM is a 501c3 nonprofit organization dedicated to supporting families facing a VOGM diagnosis. As parents who have experienced the emotional toll firsthand, we provide vital resources, emotional guidance, and financial assistance to travel for life-saving treatment. Our mission extends beyond direct support—we aim to raise awareness among medical providers and the community. With your donation, we can make a lasting impact, connecting families with specialists worldwide and offering hope in the face of adversity. Together, we can transform pain into hope and help families navigate their VOGM journey with strength. Join us in creating a brighter future for VOGM families.<p style="margin:0px;font-style:normal;font-variant-caps:normal;font-weight:400;font-stretch:normal;line-height:normal;font-kerning:auto;font-variant-alternates:normal;font-variant-ligatures:normal;font-variant-numeric:normal;font-variant-east-asian:normal;font-variant-position:normal;font-feature-settings:normal;font-optical-sizing:auto;font-variation-settings:normal;letter-spacing:normal;text-align:start;text-indent:0px;text-transform:none;white-space:normal;word-spacing:0px;-webkit-text-size-adjust:auto;-webkit-text-stroke-width:0px;text-decoration:none;box-sizing:inherit;max-width:100%"> <p style="margin:0px;font-style:normal;font-variant-caps:normal;font-weight:400;font-stretch:normal;line-height:normal;font-kerning:auto;font-variant-alternates:normal;font-variant-ligatures:normal;font-variant-numeric:normal;font-variant-east-asian:normal;font-variant-position:normal;font-feature-settings:normal;font-optical-sizing:auto;font-variation-settings:normal;letter-spacing:normal;text-align:start;text-indent:0px;text-transform:none;white-space:normal;word-spacing:0px;-webkit-text-size-adjust:auto;-webkit-text-stroke-width:0px;text-decoration:none;box-sizing:inherit;max-width:100%">NOTE: For credit card payments made through Zeffy an OPTIONAL contribution to cover platform costs will appear with a default of 9-16%. Click the drop down menu to adjust the desired contribution to any amount from $0+. <p style="margin:0px;font-style:normal;font-variant-caps:normal;font-weight:400;font-stretch:normal;line-height:normal;font-kerning:auto;font-variant-alternates:normal;font-variant-ligatures:normal;font-variant-numeric:normal;font-variant-east-asian:normal;font-variant-position:normal;font-feature-settings:normal;font-optical-sizing:auto;font-variation-settings:normal;letter-spacing:normal;text-align:start;text-indent:0px;text-transform:none;white-space:normal;word-spacing:0px;-webkit-text-size-adjust:auto;-webkit-text-stroke-width:0px;text-decoration:none;box-sizing:inherit;max-width:100%"> <p style="margin:0px;font-style:normal;font-variant-caps:normal;font-weight:400;font-stretch:normal;line-height:normal;font-kerning:auto;font-variant-alternates:normal;font-variant-ligatures:normal;font-variant-numeric:normal;font-variant-east-asian:normal;font-variant-position:normal;font-feature-settings:normal;font-optical-sizing:auto;font-variation-settings:normal;letter-spacing:normal;text-align:start;text-indent:0px;text-transform:none;white-space:normal;word-spacing:0px;-webkit-text-size-adjust:auto;-webkit-text-stroke-width:0px;text-decoration:none;box-sizing:inherit;max-width:100%">

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Vein of Galen Malformation Support Network

### Context Profile for Vein of Galen Malformation Support Network

#### 1. Organization Mission & Cause
The Vein of Galen Malformation Support Network (VOGM) is dedicated to supporting families affected by Vein of Galen Malformation (VOGM), a rare brain condition that impacts children. Their mission is to raise awareness about VOGM, provide resources and support to affected families, and facilitate access to vital medical care. The organization aims to make this rare condition feel less isolating by fostering a community of support and advocacy.

#### 2. Type of Activities
- **Fundraising Campaigns:** VOGM organizes annual events such as the "Walkathon" to raise funds for medical assistance and awareness. The most recent campaign, "People for Theo," aims to raise $35,000 to help children access crucial brain surgeries.
- **Community Programs:** They provide a supportive network for families, offering resources and guidance as they navigate the complexities of VOGM.
- **Awareness Initiatives:** The organization actively promotes awareness during AVM Awareness Month in October, encouraging community participation in events that highlight the challenges faced by families dealing with VOGM.

#### 3. Tone of Voice
The tone of voice used by VOGM is **friendly, supportive, and inspiring**. The language is accessible and empathetic, aiming to connect with families and supporters on a personal level. The organization communicates urgency regarding the need for awareness and funding while maintaining a hopeful outlook for the future of affected children.

#### 4. Emoji Usage
The organization does not prominently use emojis in their communications, focusing instead on clear and heartfelt language to convey their messages. This approach aligns with their serious mission while still being approachable.

#### 5. Key Facts
- **Founding Information:** Specific founding details were not found on the website, but the organization has established itself as a key resource for families affected by VOGM.
- **Scale:** The organization has a total of 95 forms and has conducted 16 email campaigns, indicating an active engagement with their community.
- **Impact Metrics:** The current goal for their fundraising campaign is $35,000, which will directly support children needing medical assistance.
- **Volunteer Information:** While specific volunteer details were not highlighted, the organization encourages community involvement through events like the Walkathon.

#### 6. Writing Guidelines
- **Style:** Use a conversational and supportive tone, focusing on empathy and community. 
- **Content Structure:** Begin with a clear statement of purpose, followed by details about events or initiatives, and conclude with a call to action that encourages participation or support.
- **Emphasis on Community:** Highlight the importance of community support and shared experiences among families affected by VOGM.
- **Use of Visuals:** Incorporate images that resonate emotionally with the audience, as seen in their email campaigns and event promotions.

This context profile provides a comprehensive understanding of the Vein of Galen Malformation Support Network, enabling AI assistants to create tailored and impactful content that aligns with the organization's mission and values.

Vein of Galen Malformation Support Network

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