Check made out to HNRNP Family Foundation 
Address to send check: 1570 W Armory Way
Unit 194
Seattle, WA  98119

🌟 Join us in Creating Change! 🌟At The HNRNP Family Foundation, we know that change starts with people like you. &nbsp;<span fr-original-style="caret-color: rgb(0, 0, 0); color: rgb(0, 0, 0); font-family: Arial, sans-serif; font-size: 16px; font-style: normal; font-variant-caps: normal; font-weight: 400; letter-spacing: normal; orphans: auto; text-align: start; text-indent: 0px; text-transform: none; white-space: pre-wrap; widows: auto; word-spacing: 0px; -webkit-text-stroke-width: 0px; background-color: rgb(255, 255, 255); text-decoration: none; display: inline !important; float: none;" id="isPasted" style="caret-color: rgb(0, 0, 0); color: rgb(0, 0, 0); font-family: Arial, sans-serif; font-size: 16px; font-style: normal; font-variant-caps: normal; font-weight: 400; letter-spacing: normal; text-align: start; text-indent: 0px; text-transform: none; white-space: pre-wrap; word-spacing: 0px; -webkit-text-stroke-width: 0px; background-color: rgb(255, 255, 255); text-decoration: none; float: none; display: inline !important; box-sizing: inherit;">In partnership with <span fr-original-style="font-size: 12pt; font-style: normal; font-variant-caps: normal; font-weight: 400; letter-spacing: normal; orphans: auto; text-align: start; text-indent: 0px; text-transform: none; white-space: pre-wrap; widows: auto; word-spacing: 0px; -webkit-text-stroke-width: 0px; text-decoration: none; font-family: Arial, sans-serif; color: rgb(0, 0, 0); background-color: transparent; font-variant-ligatures: normal; font-variant-alternates: normal; font-variant-numeric: normal; font-variant-east-asian: normal; font-variant-position: normal; font-variant-emoji: normal; vertical-align: baseline;" id="isPasted" style="font-size: 12pt; font-style: normal; font-variant-caps: normal; font-weight: 400; letter-spacing: normal; text-align: start; text-indent: 0px; text-transform: none; white-space: pre-wrap; word-spacing: 0px; -webkit-text-stroke-width: 0px; text-decoration: none; font-family: Arial, sans-serif; color: rgb(0, 0, 0); background-color: transparent; font-variant-ligatures: normal; font-variant-alternates: normal; font-variant-numeric: normal; font-variant-east-asian: normal; font-variant-position: normal; vertical-align: baseline; box-sizing: inherit;">Dr. Chaolin Zhuang&rsquo;s lab work beginning on Antisense Oligonucleotide (ASO) research for SYNCRIP (HNRNPQ). This type of therapy focuses on correcting how genes are read inside cells and represents an exciting step toward more targeted treatment possibilities. How you can help power our mission:<ol fr-original-style="" style="width: 100%; box-sizing: inherit;"><li fr-original-style="" style="box-sizing: inherit;">Donate: Every dollar counts. Contribute now to help us reach our goal.</li><li fr-original-style="" style="box-sizing: inherit;">Share: Share our campaign with your friends, family, and on social media. Your advocacy can amplify our impact.</li><li fr-original-style="" style="box-sizing: inherit;">Volunteer: Your time and skills can make an impact too.</li></ol>Thank you for supporting our mission, your support is invaluable.

Dear&nbsp;<span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip" fr-original-style="" style="background-color: rgb(248, 248, 255); border: 1px solid rgb(191, 191, 255); border-radius: 4px; color: rgb(42, 42, 196); padding: 1px 8px; font-size: 11px; display: inline-block; margin: 0px; overflow-wrap: anywhere; -webkit-user-select: none; box-sizing: inherit;">First name, We hope this message finds you well. At The HNRNP Family Foundation, we are constantly inspired by the dedication and generosity of supporters like you. Your unwavering support has enabled us to search for an ASO therapy for SYNCRIP-NDD. &nbsp;This initiative aims to fund &nbsp;Dr. Chaolin Zhuang&rsquo;s lab work on Antisense Oligonucleotide (ASO) research for SYNCRIP (HNRNPQ). This type of therapy focuses on correcting how genes are read inside cells and represents an exciting step toward more targeted treatment possibilities.. <h3 fr-original-style="" style="width: 100%; box-sizing: inherit;">Other ways You Can Help 🤝</h3><ol fr-original-style="" style="width: 100%; box-sizing: inherit;"><li fr-original-style="box-sizing:inherit;color:rgb(0, 0, 0);" style="box-sizing:inherit;color:rgb(0, 0, 0);">Donate: Every dollar counts and brings us closer to our goal. You can make your donation online. Or ask your employer if they match donations</li><li fr-original-style="box-sizing:inherit;color:rgb(0, 0, 0);" style="box-sizing:inherit;color:rgb(0, 0, 0);">Spread the Word: Share our campaign with your friends, family, and social networks. Together, we can amplify our impact.</li></ol><h3 fr-original-style="" style="width: 100%; box-sizing: inherit;">Join Us in Making a Difference ❤️</h3>At The HNRNP Family Foundation, we believe in the power of community and collective action. With your support, we can find treatments for children struggling with SYNCRIP disorders Thank you for being a vital part of our mission. Together, we can achieve great things. Thank you for your continued support. Sincerely, Leila MargolisPresident&nbsp;The HNRNP Family Foundation

🌟 Join us in Creating Change! 🌟At The HNRNP Family Foundation, we know that change starts with people like you.  In partnership with Dr. Chaolin Zhuang’s lab work beginning on Antisense Oligonucleotide (ASO) research for SYNCRIP (HNRNPQ). This type of therapy focuses on correcting how genes are read inside cells and represents an exciting step toward more targeted treatment possibilities. How you can help power our mission:<ol><li>Donate: Every dollar counts. Contribute now to help us reach our goal.</li><li>Share: Share our campaign with your friends, family, and on social media. Your advocacy can amplify our impact.</li><li>Volunteer: Your time and skills can make an impact too.</li></ol>Thank you for supporting our mission, your support is invaluable.

ASO Screen for SYNCRIP Disorder

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The HNRNP Family Foundation

### Context Profile for The HNRNP Family Foundation

1. **Organization Mission & Cause**:
   - The HNRNP Family Foundation is dedicated to advancing research and awareness for HNRNP-RNDD (Heterogeneous Nuclear Ribonucleoprotein R and Related Neurodegenerative Diseases). Their mission is to support families affected by these conditions through funding research initiatives, providing educational resources, and fostering community engagement. The foundation aims to improve the quality of life for individuals and families impacted by these neurodegenerative diseases.

2. **Type of Activities**:
   - The foundation engages in various activities, including:
     - **Fundraising Campaigns**: The recent campaign titled "The HNRNP Family Foundation's shop" promotes merchandise sales (e.g., shirts) to support research funding.
     - **Community Programs**: They likely host events and initiatives aimed at raising awareness and providing support to affected families, although specific events were not detailed on the website.
     - **Research Funding**: Direct financial support for research projects related to HNRNP-RNDD.

3. **Tone of Voice**:
   - The tone of the HNRNP Family Foundation is **friendly**, **supportive**, and **informative**. The language used is accessible and aims to foster a sense of community among families affected by HNRNP-RNDD. The use of straightforward language conveys urgency and importance regarding their mission while remaining approachable.

4. **Emoji Usage**:
   - The website does not prominently feature emojis in its content. The communication style is more formal and straightforward, focusing on clarity and professionalism rather than casual or playful elements.

5. **Key Facts**:
   - **Founding Info**: The specific founding date is not mentioned on the website, but the foundation appears to be relatively new and focused on a niche area of research.
   - **Scale**: Currently, there are 5 total forms available on the website for donations and merchandise purchases.
   - **Impact Metrics**: Specific metrics regarding the impact of their research funding or community programs were not detailed on the website.
   - **Volunteer Info**: There is no explicit mention of volunteer opportunities on the website, indicating that the foundation may currently focus on fundraising and research rather than volunteer-driven initiatives.

6. **Writing Guidelines**:
   - **Style**: Use clear, concise language that is easy to understand. Avoid jargon unless it is clearly defined.
   - **Tone**: Maintain a friendly and supportive tone that encourages community involvement and emphasizes the importance of the foundation's mission.
   - **Call to Action**: Include strong calls to action that invite engagement, whether through donations, merchandise purchases, or participation in events.
   - **Personalization**: Use personalized greetings in communications, as seen in the thank-you email template, to enhance the connection with supporters.

This context profile serves as a foundational guide for creating tailored content that aligns with the HNRNP Family Foundation's mission, values, and communication style.

The HNRNP Family Foundation

ASO Screen for SYNCRIP Disorder

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