Help us fight NF by flagging your friends for America's Birthday!!!With your donations our family will have some help with Hazyls incoming medical bills, as they are increasing everyday and with her not able to do daily life without one of us by her side I have been home with her. Our Fighter and our family thank for everything from little to small! She doesn't deserve to fight this ALONE!                                                          Hazyl struggles daily from severe migraines caused from NF (we are trialing new things with many doctors) she also has lesions found on her brain, multiple cafe-au-lait spots all over from small to big, she also has small growing Fibroma's on her body, which cause her pain also a long with her nerve pain! She is one of the strongest little girls we know, she fights against NF with her entire might and we couldn't be more proud, so please show her how proud you are of her! <div style="font-family:Roboto, Helvetica, Arial, sans-serif;color:rgb(228, 230, 235);font-size:15px;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:pre-wrap;background-color:rgb(36, 37, 38);text-decoration-thickness:initial;text-decoration-style:initial;text-decoration-color:initial;text-align:start;animation-name:none !important;transition-property:none !important;box-sizing:inherit">Hazyl update<span fr-original-style="font-weight: normal; display: inline-flex; margin: 0px 1px; vertical-align: middle; height: 16px; font-style: normal; width: 16px; font-family: inherit; animation-name: none !important; transition-property: none !important; color: rgb(97, 189, 109);" style="font-weight:normal;display:inline-flex;margin:0px 1px;vertical-align:middle;height:16px;font-style:normal;width:16px;font-family:inherit;color:rgb(97, 189, 109);animation-name:none !important;transition-property:none !important;box-sizing:inherit"><img height="16" width="16" alt="💚" style="border:0px;object-fit:fill;animation-name:none !important;transition-property:none !important;opacity:0.4;position:relative;max-width:100%;cursor:pointer;padding:0px 1px;user-select:none;box-sizing:inherit" /><img height="16" width="16" alt="💙" style="border:0px;object-fit:fill;animation-name:none !important;transition-property:none !important;opacity:0.4;position:relative;max-width:100%;cursor:pointer;padding:0px 1px;user-select:none;box-sizing:inherit" />:   her appointment 05/07/24 went okay! Her Nephrologist wants her off the migraine medication so he can get a clear reading of her a 24 urine analysis in a couple weeks and she will also be getting a tests done on her heart,kidneys and neck areas to see if there is fatty build up or anything happen, causing her blood pressure to fluctuate! </div><div style="font-family:Roboto, Helvetica, Arial, sans-serif;color:rgb(228, 230, 235);font-size:15px;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:pre-wrap;background-color:rgb(36, 37, 38);text-decoration-thickness:initial;text-decoration-style:initial;text-decoration-color:initial;text-align:start;animation-name:none !important;transition-property:none !important;box-sizing:inherit">He prescribed her a blood pressure medication to help with her episodes of headaches, eye dilation, tiredness, memory problems,ect. and he wants us monitoring <span fr-original-style="text-decoration: none; margin: 0px; text-align: inherit; overflow-wrap: break-word; padding: 0px; font-family: inherit; animation-name: none !important; transition-property: none !important; color: rgb(97, 189, 109);" style="text-decoration:none;margin:0px;text-align:inherit;overflow-wrap:break-word;padding:0px;font-family:inherit;color:rgb(97, 189, 109);animation-name:none !important;transition-property:none !important;box-sizing:inherit"><a style="color:rgb(56, 88, 152);cursor:pointer;text-decoration:none;font-family:inherit;animation-name:none !important;transition-property:none !important;user-select:auto;box-sizing:inherit"></a>her blood pressure for 2 hours every 15 min to make sure it doesn’t drop it to low. She hasn’t started that yet! He is going toward -Hormonal Hypertension but he said “We will rule it out if not and it will be a safari after that but we will get her feeling herself again”<span fr-original-style="font-weight: normal; display: inline-flex; margin: 0px 1px; vertical-align: middle; height: 16px; font-style: normal; width: 16px; font-family: inherit; animation-name: none !important; transition-property: none !important; color: rgb(97, 189, 109);" style="font-weight:normal;display:inline-flex;margin:0px 1px;vertical-align:middle;height:16px;font-style:normal;width:16px;font-family:inherit;color:rgb(97, 189, 109);animation-name:none !important;transition-property:none !important;box-sizing:inherit"><img height="16" width="16" alt="💚" style="border:0px;object-fit:fill;animation-name:none !important;transition-property:none !important;opacity:0.4;position:relative;max-width:100%;cursor:pointer;padding:0px 1px;user-select:none;box-sizing:inherit" /><img height="16" width="16" alt="💙" src="https://res.cloudinary.com/hxn9dbuhd/image/upload/v1715204943/irfmoodkaorxrmjyr67j.png" style="border:0px;object-fit:fill;animation-name:none !important;transition-property:none !important;position:relative;max-width:100%;cursor:pointer;padding:0px 1px;user-select:none;box-sizing:inherit" /></div><div style="font-family:Roboto, Helvetica, Arial, sans-serif;color:rgb(228, 230, 235);font-size:15px;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:pre-wrap;background-color:rgb(36, 37, 38);text-decoration-thickness:initial;text-decoration-style:initial;text-decoration-color:initial;text-align:start;animation-name:none !important;transition-property:none !important;box-sizing:inherit">We are beyond thankful for her team at <span fr-original-style="text-decoration: none; margin: 0px; text-align: inherit; overflow-wrap: break-word; padding: 0px; font-family: inherit; animation-name: none !important; transition-property: none !important; color: rgb(97, 189, 109);" style="text-decoration:none;margin:0px;text-align:inherit;overflow-wrap:break-word;padding:0px;font-family:inherit;color:rgb(97, 189, 109);animation-name:none !important;transition-property:none !important;box-sizing:inherit"><a href="https://www.facebook.com/Sandford-Childrens-Hospital-486110781434970/?__cft__[0]=AZV3QoK_71f9iZUR2FJZhSPNtFungQHvULdfM43mQEF6W47K6Jw8sBzCRMMJV99whHZwGyltG3XWVXqmcMZwZGB07MalKrgBstP5F60MnFFryINLGzVoWMxrq_VdYVDsEwtiuFHDv4ma30U7nPn-MW6sZbUs17H5ZyM0DdXAuqEd0m1FtML3_nDuUNnkGEJeen8&__tn__=kK-R" style="color:var(--blue-link);cursor:pointer;text-decoration:none;outline:none;list-style:none;margin:0px;text-align:inherit;border-style:none;padding:0px;border-width:0px;box-sizing:border-box;background-color:transparent;font-weight:400;display:inline;-webkit-tap-highlight-color:transparent;touch-action:manipulation;font-family:inherit;animation-name:none !important;transition-property:none !important;user-select:auto"><span fr-original-style="display: inline; animation-name: none !important; transition-property: none !important; font-family: inherit;" style="display:inline;font-family:inherit;animation-name:none !important;transition-property:none !important;box-sizing:inherit"><span fr-original-style="animation-name: none !important; transition-property: none !important; font-family: inherit;" style="font-family:inherit;animation-name:none !important;transition-property:none !important;box-sizing:inherit">Sandford Childrens Hospital</a> they go above and beyond for our fighter<span fr-original-style="font-weight: normal; display: inline-flex; margin: 0px 1px; vertical-align: middle; height: 16px; font-style: normal; width: 16px; font-family: inherit; animation-name: none !important; transition-property: none !important; color: rgb(97, 189, 109);" style="font-weight:normal;display:inline-flex;margin:0px 1px;vertical-align:middle;height:16px;font-style:normal;width:16px;font-family:inherit;color:rgb(97, 189, 109);animation-name:none !important;transition-property:none !important;box-sizing:inherit"><img height="16" width="16" alt="💚" style="border:0px;object-fit:fill;animation-name:none !important;transition-property:none !important;opacity:0.4;position:relative;max-width:100%;cursor:pointer;padding:0px 1px;user-select:none;box-sizing:inherit" /><img height="16" width="16" alt="💙" style="border:0px;object-fit:fill;animation-name:none !important;transition-property:none !important;opacity:0.4;position:relative;max-width:100%;cursor:pointer;padding:0px 1px;user-select:none;box-sizing:inherit" /></div><div style="font-family:Roboto, Helvetica, Arial, sans-serif;color:rgb(228, 230, 235);font-size:15px;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:pre-wrap;background-color:rgb(36, 37, 38);text-decoration-thickness:initial;text-decoration-style:initial;text-decoration-color:initial;text-align:start;animation-name:none !important;transition-property:none !important;box-sizing:inherit">We are also so beyond thankful for everyone in our lives that care for her just as much as we do!! Hazyl has made it only 8 full days of school since the beginning of the year. This is very hard on her and we are trying to do everything we can to get her better!!!</div> <img src="https://res.cloudinary.com/hxn9dbuhd/image/upload/v1715022940/db5wdcxikuxmgiftsbag.png" style="width:414px;display:block;vertical-align:top;margin:5px auto;text-align:center;position:relative;max-width:100%;cursor:pointer;padding:0px 1px;user-select:none;box-sizing:inherit" />Hazyl and our family thank you for anything from thoughts to donations, we appreciate it more than words can describe!

Hello <span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip " fr-original-style style="background-color:rgb(248, 248, 255);border:1px solid rgb(191, 191, 255);border-radius:4px;color:rgb(42, 42, 196);display:inline-block;margin:0px;padding:1px 8px;font-size:11px;line-height:16px;overflow-wrap:anywhere;user-select:none;box-sizing:inherit">First name <span contenteditable="false" data-custom-variable="{{lastname}}" fr-original-class="fr-deletable styled-tag-chip " fr-original-style style="background-color:rgb(248, 248, 255);border:1px solid rgb(191, 191, 255);border-radius:4px;color:rgb(42, 42, 196);display:inline-block;margin:0px;padding:1px 8px;font-size:11px;line-height:16px;overflow-wrap:anywhere;user-select:none;box-sizing:inherit">Last name, We thank you from the bottom of our heart. This donation greatly helps our mission to fight NF. We will now be able to:  - Support ... families - Power medical research by donating 100% of our proceeeds - Change the world - Help find a cure If you would like to contribute further, contact us to become a volunteer, or talk to your friends about our cause! Hazyl Heenan & Family brandy.heenan@gmail.com 16057601736

Thank you for fundraising with us this year again! Here is more information.

Help us fight NF by flagging your friends for America's Birthday!!!With your donations our family will have some help with Hazyls incoming medical bills, as they are increasing everyday and with her not able to do daily life without one of us by her side I have been home with her. Our Fighter and our family thank for everything from little to small! She doesn't deserve to fight this ALONE!                                                          Hazyl struggles daily from severe migraines caused from NF (we are trialing new things with many doctors) she also has lesions found on her brain, multiple cafe-au-lait spots all over from small to big, she also has small growing Fibroma's on her body, which cause her pain also a long with her nerve pain! She is one of the strongest little girls we know, she fights against NF with her entire might and we couldn't be more proud, so please show her how proud you are of her! <div>Hazyl update<img alt="💚" style="border:0px;object-fit:fill;animation-name:none !important;transition-property:none !important;opacity:0.4;position:relative;cursor:pointer;padding:0px 1px;user-select:none;box-sizing:inherit;max-width:100%" /><img alt="💙" style="border:0px;object-fit:fill;animation-name:none !important;transition-property:none !important;opacity:0.4;position:relative;cursor:pointer;padding:0px 1px;user-select:none;box-sizing:inherit;max-width:100%" />:   her appointment 05/07/24 went okay! Her Nephrologist wants her off the migraine medication so he can get a clear reading of her a 24 urine analysis in a couple weeks and she will also be getting a tests done on her heart,kidneys and neck areas to see if there is fatty build up or anything happen, causing her blood pressure to fluctuate! </div><div>He prescribed her a blood pressure medication to help with her episodes of headaches, eye dilation, tiredness, memory problems,ect. and he wants us monitoring <a></a>her blood pressure for 2 hours every 15 min to make sure it doesn’t drop it to low. She hasn’t started that yet! He is going toward -Hormonal Hypertension but he said “We will rule it out if not and it will be a safari after that but we will get her feeling herself again”<img alt="💚" style="border:0px;object-fit:fill;animation-name:none !important;transition-property:none !important;opacity:0.4;position:relative;cursor:pointer;padding:0px 1px;user-select:none;box-sizing:inherit;max-width:100%" /><img alt="💙" src="https://res.cloudinary.com/hxn9dbuhd/image/upload/v1715204943/irfmoodkaorxrmjyr67j.png" style="border:0px;object-fit:fill;animation-name:none !important;transition-property:none !important;position:relative;cursor:pointer;padding:0px 1px;user-select:none;box-sizing:inherit;max-width:100%" /></div><div>We are beyond thankful for her team at <a href="https://www.facebook.com/Sandford-Childrens-Hospital-486110781434970/?__cft__[0]=AZV3QoK_71f9iZUR2FJZhSPNtFungQHvULdfM43mQEF6W47K6Jw8sBzCRMMJV99whHZwGyltG3XWVXqmcMZwZGB07MalKrgBstP5F60MnFFryINLGzVoWMxrq_VdYVDsEwtiuFHDv4ma30U7nPn-MW6sZbUs17H5ZyM0DdXAuqEd0m1FtML3_nDuUNnkGEJeen8&amp;__tn__=kK-R">Sandford Childrens Hospital</a> they go above and beyond for our fighter<img alt="💚" style="border:0px;object-fit:fill;animation-name:none !important;transition-property:none !important;opacity:0.4;position:relative;cursor:pointer;padding:0px 1px;user-select:none;box-sizing:inherit;max-width:100%" /><img alt="💙" style="border:0px;object-fit:fill;animation-name:none !important;transition-property:none !important;opacity:0.4;position:relative;cursor:pointer;padding:0px 1px;user-select:none;box-sizing:inherit;max-width:100%" /></div><div>We are also so beyond thankful for everyone in our lives that care for her just as much as we do!! Hazyl has made it only 8 full days of school since the beginning of the year. This is very hard on her and we are trying to do everything we can to get her better!!!</div> <img src="https://res.cloudinary.com/hxn9dbuhd/image/upload/v1715022940/db5wdcxikuxmgiftsbag.png" style="width:414px;display:block;vertical-align:top;margin:5px auto;text-align:center;position:relative;cursor:pointer;padding:0px 1px;user-select:none;box-sizing:inherit;max-width:100%" />Hazyl and our family thank you for anything from thoughts to donations, we appreciate it more than words can describe!

Flag's For Fibroma's

Flag's For Fibroma's

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