<div fr-original-style="box-sizing: border-box; color: rgb(51, 51, 51); font-family: open-sans, Arial, sans-serif; font-size: 16px; font-style: normal; font-variant-ligatures: normal; font-variant-caps: normal; font-weight: 400; letter-spacing: normal; orphans: 2; text-align: start; text-indent: 0px; text-transform: none; widows: 2; word-spacing: 0px; -webkit-text-stroke-width: 0px; white-space: normal; background-color: rgb(255, 255, 255); text-decoration-thickness: initial; text-decoration-style: initial; text-decoration-color: initial;" id="isPasted" style="box-sizing: border-box; color: rgb(51, 51, 51); font-family: open-sans, Arial, sans-serif; font-size: 16px; font-style: normal; font-variant-ligatures: normal; font-variant-caps: normal; font-weight: 400; letter-spacing: normal; orphans: 2; text-align: start; text-indent: 0px; text-transform: none; widows: 2; word-spacing: 0px; -webkit-text-stroke-width: 0px; white-space: normal; background-color: rgb(255, 255, 255); text-decoration-thickness: initial; text-decoration-style: initial; text-decoration-color: initial; line-height: 1.5;">Rosenau Family Research Foundation is on a mission to KureKrabbe 2030! With the help of donors like you, we are implementing a more targeted approach to our research funding, focusing on gene therapeutics (???) to accelerate the already fantastic work being done by researchers across the country to find a cure for Krabbe disease.&nbsp;How you can help power our mission:<ol fr-original-style="" style="box-sizing: inherit;"><li fr-original-style="" style="box-sizing: inherit;">Donate: Every dollar counts. Contribute now to help us reach our goal.</li><li fr-original-style="" style="box-sizing: inherit;">Share: Share our campaign with your friends, family, and on social media. Your advocacy can amplify our impact.</li></ol>Thank you! About Rosenau Family Research Foundation Rosenau Family Research Foundation (RFRF), a 501(c)(3), private family foundation, was established in 2008 by Paul and the late Susan Rosenau after winning the Powerball on May 4, 2008. That momentous day coincided with the 5th anniversary of their granddaughter, Makayla Lynn Pike, who lost her battle with a rare-genetic disease named Krabbe disease. Makayla was just two years old. After Makayla&rsquo;s diagnosis, they learned that another genetic disease, Cystic Fibrosis, also runs in the family. This is why RFRF includes both in its mission.During the news conference announcing the Rosenaus as the winners of the largest Powerball in Minnesota history, the couple talked about the loss of their grandchild to Krabbe disease. That same day, Krabbe disease was the most searched topic on Google. They realized they had an opportunity to have an impact and make some sense out of their granddaughter&rsquo;s early death by shining a light on this nearly invisible disease by infusing funding into research for finding therapies and treatments so no other family had to go through what they did. The founding name, The Legacy of Angels Foundation (TLOAF), now Rosenau Family Research Foundation (RFRF), was chosen because at that time, Krabbe disease was a certain death sentence, taking precious little angels from their parents at such a young age. Fast forward to 2025, seventeen years later, and there is a growing community of support around families and the physicians serving them. Krabbe disease can be detected through newborn screening, which is essential for treatment and several therapies in clinical trials. Therefore, children diagnosed with the disease are living longer at higher rates. Learn more at <a fr-original-style="" href="http://rosenaufoundation.org" rel="noopener noreferrer" style="text-decoration-color: initial; user-select: auto; box-sizing: inherit;" target="_blank">rosenaufoundation.org</a>.</div>

Hello <span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip" fr-original-style="" style="background-color: rgb(248, 248, 255); border: 1px solid rgb(191, 191, 255); border-radius: 4px; color: rgb(42, 42, 196); padding: 1px 8px; font-size: 11px; display: inline-block; margin: 0px; overflow-wrap: anywhere; user-select: none; box-sizing: inherit;">First name, Thank you from the bottom of our hearts for supporting our cause. This donation greatly helps our mission. If you would like to contribute further to our cause, contact us to become a volunteer, or spread the word about our mission! Renea Muellerleileinfo@rosenaufoundation.org

<div>Rosenau Family Research Foundation is on a mission to KureKrabbe 2030! With the help of donors like you, we are implementing a more targeted approach to our research funding, focusing on gene therapeutics (???) to accelerate the already fantastic work being done by researchers across the country to find a cure for Krabbe disease. How you can help power our mission:<ol><li>Donate: Every dollar counts. Contribute now to help us reach our goal.</li><li>Share: Share our campaign with your friends, family, and on social media. Your advocacy can amplify our impact.</li></ol>Thank you! About Rosenau Family Research Foundation Rosenau Family Research Foundation (RFRF), a 501(c)(3), private family foundation, was established in 2008 by Paul and the late Susan Rosenau after winning the Powerball on May 4, 2008. That momentous day coincided with the 5th anniversary of their granddaughter, Makayla Lynn Pike, who lost her battle with a rare-genetic disease named Krabbe disease. Makayla was just two years old. After Makayla’s diagnosis, they learned that another genetic disease, Cystic Fibrosis, also runs in the family. This is why RFRF includes both in its mission.During the news conference announcing the Rosenaus as the winners of the largest Powerball in Minnesota history, the couple talked about the loss of their grandchild to Krabbe disease. That same day, Krabbe disease was the most searched topic on Google. They realized they had an opportunity to have an impact and make some sense out of their granddaughter’s early death by shining a light on this nearly invisible disease by infusing funding into research for finding therapies and treatments so no other family had to go through what they did. The founding name, The Legacy of Angels Foundation (TLOAF), now Rosenau Family Research Foundation (RFRF), was chosen because at that time, Krabbe disease was a certain death sentence, taking precious little angels from their parents at such a young age. Fast forward to 2025, seventeen years later, and there is a growing community of support around families and the physicians serving them. Krabbe disease can be detected through newborn screening, which is essential for treatment and several therapies in clinical trials. Therefore, children diagnosed with the disease are living longer at higher rates. Learn more at <a href="http://rosenaufoundation.org" target="_blank">rosenaufoundation.org</a>.</div>

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Rosenau Family Research Foundation

### Context Profile for Rosenau Family Research Foundation

1. **Organization Mission & Cause**:
   - The Rosenau Family Research Foundation is dedicated to advancing research in the fields of medicine and healthcare. Their mission focuses on funding innovative research projects that aim to improve patient outcomes and contribute to the overall betterment of health practices. The foundation emphasizes a commitment to supporting researchers and institutions that align with their vision of transformative healthcare solutions.

2. **Type of Activities**:
   - The foundation engages in various activities, primarily centered around funding research initiatives. This includes:
     - Grant programs for researchers and institutions.
     - Collaborative projects with healthcare professionals and academic institutions.
     - Potentially hosting educational events or workshops to disseminate research findings (though specific events are not detailed on the website).

3. **Tone of Voice**:
   - The tone of the website is professional yet approachable. It conveys a sense of urgency regarding the need for medical research funding while remaining optimistic about the potential for positive change in healthcare. The language is clear and direct, aimed at engaging both potential donors and researchers.

4. **Emoji Usage**:
   - The website does not utilize emojis in its content. This aligns with the professional tone of the organization, focusing on clear communication without the informal touch that emojis might bring.

5. **Key Facts**:
   - **Founding Info**: The exact founding date is not specified on the website, indicating that it is a new organization.
   - **Scale**: As a new foundation, it currently has limited content and activities, with only one form available for engagement.
   - **Impact Metrics**: No specific impact metrics are provided yet, as the foundation is in its early stages.
   - **Volunteer Info**: There is no information on volunteer opportunities available on the website.

6. **Writing Guidelines**:
   - Content should maintain a professional and optimistic tone, focusing on the importance of medical research and its impact on healthcare.
   - Use clear and concise language to communicate the foundation's goals and initiatives.
   - Avoid informal elements such as emojis or overly casual language to maintain credibility and professionalism.
   - Highlight the urgency and importance of funding research, while also celebrating successes and potential advancements in healthcare.

### Summary
The Rosenau Family Research Foundation is a newly established nonprofit focused on funding medical research to improve healthcare outcomes. Their professional tone and clear communication style reflect their commitment to serious and impactful work in the medical field. As they grow, it will be important to develop metrics and community engagement strategies to enhance their visibility and impact.

Rosenau Family Research Foundation

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