Help sponsor Dad&#39;s Night at this year&#39;s 1p36 Deletion Support &amp; Awareness Conference in honor of Shawn Daggett. Shawn truly cherished Dad&#39;s Night each time our family was able to attend. This gathering gives fathers a chance to connect with others who understand the unique challenges and joys of raising a child with 1p36 deletion syndrome. We would like to honor his memory -as the devoted and loving father to Kate that he was- by sponsoring this event in his name.&nbsp;With our love and gratitude,Kate &amp; Carrie

Hello <span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip" fr-original-style="" style="color: rgb(42, 42, 196); overflow-wrap: anywhere; user-select: none; background-color: rgb(248, 248, 255); border: 1px solid rgb(191, 191, 255); border-radius: 4px; margin: 0px; padding: 1px 8px; font-size: 11px; display: inline-block; box-sizing: inherit;">First name, Thank you so much for helping sponsor the Dad&#39;s event at the 1p36 Deletion Support &amp; Awareness conference this summer. Kate &amp; I are grateful to all of you, our friends and family, for your support.

Help sponsor Dad's Night at this year's 1p36 Deletion Support &amp; Awareness Conference in honor of Shawn Daggett. Shawn truly cherished Dad's Night each time our family was able to attend. This gathering gives fathers a chance to connect with others who understand the unique challenges and joys of raising a child with 1p36 deletion syndrome. We would like to honor his memory -as the devoted and loving father to Kate that he was- by sponsoring this event in his name. With our love and gratitude,Kate &amp; Carrie

Help sponsor Dad's Night at the 1p36 DSA Conference in honor of Shawn Daggett

IsFundraiserFormEditDisabled

IsPaymentByPadAllowed

1p36 Deletion Support & Awareness

### Context Profile for 1p36 Deletion Support & Awareness

1. **Organization Mission & Cause**:
   - **Mission**: The 1p36 Deletion Support & Awareness organization aims to provide support and raise awareness for families affected by 1p36 deletion syndrome, a genetic condition that results in various developmental and health challenges. The organization focuses on connecting families, funding research, and providing resources to improve the quality of life for those impacted by the syndrome.
   - **Cause**: The organization emphasizes the importance of community support, education, and research funding to better understand and manage the challenges associated with 1p36 deletion syndrome.

2. **Type of Activities**:
   - **Events**: The organization hosts events such as the "1p36 DSA Virtual Fun Run & Roll," which encourages participation through running, walking, or rolling to raise funds and awareness.
   - **Fundraising Campaigns**: Campaigns like "Team Alice!" focus on personal stories to engage donors and raise funds for research and family support.
   - **Community Programs**: They provide scholarships for families to attend conferences where they can learn from professionals and connect with other families facing similar challenges.

3. **Tone of Voice**:
   - The tone is **friendly**, **inspiring**, and **supportive**. The language used is approachable and warm, aiming to create a sense of community and encouragement among families and supporters. Phrases like "Thank you so much for considering donating" and "Alice is so awesome!" reflect a positive and uplifting communication style.

4. **Emoji Usage**:
   - The organization uses emojis sparingly but effectively in their communications, such as in the subject line of email campaigns (e.g., "You're Invited: 1p36 DSA Virtual Fun Run & Roll 🏃‍♀️🦽"). This adds a friendly and engaging element to their messaging, making it more relatable and visually appealing.

5. **Key Facts**:
   - **Founding Info**: Specific founding details are not provided on the website, but the organization appears to be community-driven and focused on family support.
   - **Scale**: The organization has a total of 37 forms and has conducted 49 email campaigns, indicating an active engagement with their community.
   - **Impact Metrics**: While specific metrics are not detailed, the organization emphasizes the importance of funding research and supporting families, suggesting a focus on measurable outcomes related to community support and awareness.
   - **Volunteer Info**: The website does not explicitly mention volunteer opportunities, but the community-driven nature of their events implies a reliance on volunteers for support.

6. **Writing Guidelines**:
   - **Style**: Use a conversational and friendly tone that reflects warmth and community spirit. Avoid overly formal language; instead, opt for approachable phrases.
   - **Structure**: Keep sentences clear and concise. Use bullet points for lists (as seen in the campaign descriptions) to enhance readability.
   - **Engagement**: Incorporate personal stories and testimonials to create emotional connections. Use inclusive language that invites participation and support.
   - **Call to Action**: Clearly articulate calls to action, such as "donate," "join us," or "learn more," to encourage engagement and support.

This context profile provides a comprehensive overview of the 1p36 Deletion Support & Awareness organization, allowing AI assistants to generate personalized and effective content that aligns with their mission and values.

1p36 Deletion Support & Awareness

Help sponsor Dad's Night at the 1p36 DSA Conference in honor of Shawn Daggett

Choose an amount:

$

You'll receive a tax receipt for making a donation.