Mail donations to:

HCU Network America,
Attention: Danae' Bartke, ED
15 South Mallory Avenue
Batavia, Illinois 60510

<p style="font-size:16px;font-style:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;text-indent:0px;text-transform:none;white-space:normal;word-spacing:0px;-webkit-text-stroke-width:0px;text-decoration:none;box-sizing:border-box;margin:0px;caret-color:rgb(74, 74, 74);color:rgb(74, 74, 74);font-family:Nunito;text-align:left;-webkit-tap-highlight-color:rgba(0, 0, 0, 0);-webkit-text-size-adjust:100%;line-height:1.5">HCU Network America and HCU Network Australia announced their first joint Research Grant for Classical HCU in 2018. HCU Network America was able to fund its first Isolated Cobalamin research grant in 2024. The grants were made possible by people within both communities who contributed directly or raised funds on behalf of the organizations.<p style="font-size:16px;font-style:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;text-indent:0px;text-transform:none;white-space:normal;word-spacing:0px;-webkit-text-stroke-width:0px;text-decoration:none;box-sizing:border-box;margin:0px;caret-color:rgb(74, 74, 74);color:rgb(74, 74, 74);font-family:Nunito;text-align:left;-webkit-tap-highlight-color:rgba(0, 0, 0, 0);-webkit-text-size-adjust:100%;line-height:1.5"> <p style="font-size:16px;font-style:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;text-indent:0px;text-transform:none;white-space:normal;word-spacing:0px;-webkit-text-stroke-width:0px;text-decoration:none;box-sizing:border-box;margin:0px;caret-color:rgb(74, 74, 74);color:rgb(74, 74, 74);font-family:Nunito;text-align:left;-webkit-tap-highlight-color:rgba(0, 0, 0, 0);-webkit-text-size-adjust:100%;line-height:1.5">The HCU Networks extend a warm thanks to our Scientific Advisory Board for generously giving their time and expertise to review the Research Grant Applications. A special thanks is also extended to the independent reviewers of these Applications for their valuable insight and expertise in the evaluation of the Grant Applications.<p style="font-size:16px;font-style:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;text-indent:0px;text-transform:none;white-space:normal;word-spacing:0px;-webkit-text-stroke-width:0px;text-decoration:none;box-sizing:border-box;margin:0px;caret-color:rgb(74, 74, 74);color:rgb(74, 74, 74);font-family:Nunito;text-align:left;-webkit-tap-highlight-color:rgba(0, 0, 0, 0);-webkit-text-size-adjust:100%;line-height:1.5"> <p style="font-size:16px;font-style:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;text-indent:0px;text-transform:none;white-space:normal;word-spacing:0px;-webkit-text-stroke-width:0px;text-decoration:none;box-sizing:border-box;margin:0px;caret-color:rgb(74, 74, 74);color:rgb(74, 74, 74);font-family:Nunito;text-align:left;-webkit-tap-highlight-color:rgba(0, 0, 0, 0);-webkit-text-size-adjust:100%;line-height:1.5">The HCU Networks plan to continue this Grant Program by issuing calls for Expressions of Interest periodically.<p style="font-size:16px;font-style:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;text-indent:0px;text-transform:none;white-space:normal;word-spacing:0px;-webkit-text-stroke-width:0px;text-decoration:none;box-sizing:border-box;margin:0px;caret-color:rgb(74, 74, 74);color:rgb(74, 74, 74);font-family:Nunito;text-align:left;-webkit-tap-highlight-color:rgba(0, 0, 0, 0);-webkit-text-size-adjust:100%;line-height:1.5">To learn more about the research we have funded, please click <a href="https://hcunetworkamerica.org/our-projects/" style="box-sizing:border-box;--tw-border-spacing-x:0;--tw-border-spacing-y:0;--tw-translate-x:0;--tw-translate-y:0;--tw-rotate:0;--tw-skew-x:0;--tw-skew-y:0;--tw-scale-x:1;--tw-scale-y:1;--tw-pan-x: ;--tw-pan-y: ;--tw-pinch-zoom: ;--tw-scroll-snap-strictness:proximity;--tw-gradient-from-position: ;--tw-gradient-via-position: ;--tw-gradient-to-position: ;--tw-ordinal: ;--tw-slashed-zero: ;--tw-numeric-figure: ;--tw-numeric-spacing: ;--tw-numeric-fraction: ;--tw-ring-inset: ;--tw-ring-offset-width:0px;--tw-ring-offset-color:#fff;--tw-ring-color:rgb(9 131 145 / 0.5);--tw-ring-offset-shadow:0 0 #0000;--tw-ring-shadow:0 0 #0000;--tw-shadow:0 0 #0000;--tw-shadow-colored:0 0 #0000;--tw-blur: ;--tw-brightness: ;--tw-contrast: ;--tw-grayscale: ;--tw-hue-rotate: ;--tw-invert: ;--tw-saturate: ;--tw-sepia: ;--tw-drop-shadow: ;--tw-backdrop-blur: ;--tw-backdrop-brightness: ;--tw-backdrop-contrast: ;--tw-backdrop-grayscale: ;--tw-backdrop-hue-rotate: ;--tw-backdrop-invert: ;--tw-backdrop-opacity: ;--tw-backdrop-saturate: ;--tw-backdrop-sepia: ;--tw-contain-size: ;--tw-contain-layout: ;--tw-contain-paint: ;--tw-contain-style: ;color:rgb(0, 123, 255);text-decoration:underline;background-color:transparent;cursor:pointer;text-decoration-color:initial;-webkit-user-select:auto">here</a>.

Hello <span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip" fr-original-style style="background-color:rgb(248, 248, 255);border:1px solid rgb(191, 191, 255);border-radius:4px;color:rgb(42, 42, 196);padding:1px 8px;font-size:11px;display:inline-block;margin:0px;overflow-wrap:anywhere;-webkit-touch-callout:none;-webkit-user-select:none;box-sizing:inherit">First name, Thank you from the bottom of our hearts for supporting our cause. This donation greatly helps our mission. If you would like to contribute further to our cause, contact us to become a volunteer, or spread the word about our mission! Danae Bartke Info@hcunetworkamerica.org

Hello First name,
 
 Thank you from the bottom of our hearts for registering to fundraise for our cause. Your efforts will make a significant impact, and we are excited to have you as part of our fundraising team. 👏
 
 💡 Here are some tips for sharing your campaign:
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 <li>Personalize Your Story: Share why this cause is important to you. Personal stories resonate more with potential donors.</li>
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 Grace Talbert mthfr@hcunetworkamerica.org

<p style="font-style:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;text-indent:0px;text-transform:none;white-space:normal;word-spacing:0px;-webkit-text-stroke-width:0px;text-decoration:none;box-sizing:border-box;margin:0px;text-align:left;-webkit-text-size-adjust:100%;line-height:1.5;max-width:100%">HCU Network America and HCU Network Australia announced their first joint Research Grant for Classical HCU in 2018. HCU Network America was able to fund its first Isolated Cobalamin research grant in 2024. The grants were made possible by people within both communities who contributed directly or raised funds on behalf of the organizations.<p style="font-style:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;text-indent:0px;text-transform:none;white-space:normal;word-spacing:0px;-webkit-text-stroke-width:0px;text-decoration:none;box-sizing:border-box;margin:0px;text-align:left;-webkit-text-size-adjust:100%;line-height:1.5;max-width:100%"> <p style="font-style:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;text-indent:0px;text-transform:none;white-space:normal;word-spacing:0px;-webkit-text-stroke-width:0px;text-decoration:none;box-sizing:border-box;margin:0px;text-align:left;-webkit-text-size-adjust:100%;line-height:1.5;max-width:100%">The HCU Networks extend a warm thanks to our Scientific Advisory Board for generously giving their time and expertise to review the Research Grant Applications. A special thanks is also extended to the independent reviewers of these Applications for their valuable insight and expertise in the evaluation of the Grant Applications.<p style="font-style:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;text-indent:0px;text-transform:none;white-space:normal;word-spacing:0px;-webkit-text-stroke-width:0px;text-decoration:none;box-sizing:border-box;margin:0px;text-align:left;-webkit-text-size-adjust:100%;line-height:1.5;max-width:100%"> <p style="font-style:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;text-indent:0px;text-transform:none;white-space:normal;word-spacing:0px;-webkit-text-stroke-width:0px;text-decoration:none;box-sizing:border-box;margin:0px;text-align:left;-webkit-text-size-adjust:100%;line-height:1.5;max-width:100%">The HCU Networks plan to continue this Grant Program by issuing calls for Expressions of Interest periodically.<p style="font-style:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;text-indent:0px;text-transform:none;white-space:normal;word-spacing:0px;-webkit-text-stroke-width:0px;text-decoration:none;box-sizing:border-box;margin:0px;text-align:left;-webkit-text-size-adjust:100%;line-height:1.5;max-width:100%">To learn more about the research we have funded, please click <a href="https://hcunetworkamerica.org/our-projects/">here</a>.

Isolated Cobalamin Disorders Research Fund

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HCU Network America

### Context Profile for HCU Network America

1. **Organization Mission & Cause**:
   - **Mission**: HCU Network America is dedicated to supporting individuals and families affected by Hyperornithinemia, Hyperammonemia, and Homocitrullinuria (HCU), a rare genetic disorder. Their mission is to improve the lives of those impacted by HCU through education, advocacy, and community support.
   - **Cause**: The organization aims to raise awareness about HCU, facilitate research, and provide resources for patients and families to navigate the challenges associated with the disorder.

2. **Type of Activities**:
   - **Conferences**: They organize patient-expert conferences, such as the upcoming "2026 HCU Network America's Family Conference," which brings together patients, families, medical professionals, and researchers to share knowledge and experiences.
   - **Educational Resources**: The organization provides various educational materials and resources to help families understand HCU and manage its implications.
   - **Advocacy**: HCU Network America engages in advocacy efforts to promote research and policy changes that benefit the HCU community.

3. **Tone of Voice**:
   - The tone of the website is **friendly**, **supportive**, and **informative**. It aims to create a welcoming environment for families and individuals affected by HCU, using language that is empathetic and encouraging. The content is accessible, avoiding overly technical jargon while still providing necessary information.

4. **Emoji Usage**:
   - The website does not prominently feature emojis in its communications. The tone remains professional and supportive without the use of emojis, focusing instead on clear and direct language.

5. **Key Facts**:
   - **Founding Info**: Specific founding details were not explicitly mentioned on the website.
   - **Scale**: The organization appears to be focused on a niche community, specifically those affected by HCU, with a total of 13 forms indicating active engagement in various initiatives.
   - **Impact Metrics**: While specific metrics were not detailed, the organization emphasizes community support and educational outreach as key components of their impact.
   - **Volunteer Info**: Information on volunteering was not explicitly provided, but there may be opportunities for community involvement through events and advocacy efforts.

6. **Writing Guidelines**:
   - **Style**: Use a friendly and supportive tone, ensuring that language is accessible to individuals who may not have a medical background.
   - **Structure**: Content should be clear and organized, with headings and bullet points to enhance readability.
   - **Focus**: Emphasize community, support, and education in all communications, reflecting the organization's mission to empower families affected by HCU.
   - **Call to Action**: Encourage engagement through participation in events, sharing of resources, and advocacy efforts.

This context profile provides a comprehensive overview of HCU Network America, enabling AI assistants to generate tailored and effective content that aligns with the organization's mission and values.

HCU Network America

Isolated Cobalamin Disorders Research Fund

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