A man and a boy run towards a finish line banner in the background, with event details for "Run for Rare" on the left.

Checks can be made payable to:
Chopra-Amiel-Gordon Syndrome (CAGS) Foundation, Inc.
Mail to:
1742 S Woodland Blvd #409
DeLand, FL 32720

On Saturday, September 19, CAGS Foundation Co-Founder Mike Wells will run 26.2 miles at the Air Force Marathon in Dayton, Ohio to raise awareness and funding for the CAGS Foundation. Chopra-Amiel-Gordon Syndrome, also known as CAGS, is an ultra-rare genetic condition caused by changes in the ANKRD17 gene. Because CAGS is so rare, families often face limited information, long diagnostic journeys, and the challenge of helping others understand the condition. The CAGS Foundation exists to change that. We are a small but mighty foundation working to raise awareness, build trusted resources, connect families, support research efforts, and bring more visibility to CAGS. Your donation helps fund the work behind the mission, including the foundation website, family resources, awareness campaigns, educational materials, research support, outreach, and essential operating costs that keep the foundation active and moving forward. For Mike, this marathon is more than a race. It is a way to honor the strength of CAGS families and represent what rare disease families do every day: keep going, one step at a time. Whether you give $26.20 in honor of the marathon, $13.10 for a half-marathon of hope, or any amount that feels meaningful, every gift helps. U.S. 501(c)(3) nonprofit organization | EIN: <a fr-original-style="text-align: left;" id="isPasted" style="text-align: left; text-decoration-color: currentcolor; user-select: auto; box-sizing: inherit;" target="_blank">33-2923434</a> All donations are&nbsp;tax-deductible as allowed by law. Donations are accepted in compliance with state charitable solicitation laws; where registration is pending, gifts are considered unsolicited.&nbsp;

Hello <span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip" fr-original-style="" style="color: rgb(42, 42, 196); overflow-wrap: anywhere; user-select: none; background-color: rgb(248, 248, 255); border: 1px solid rgb(191, 191, 255); border-radius: 4px; margin: 0px; padding: 1px 8px; font-size: 11px; display: inline-block; box-sizing: inherit;">First name, Your support means so much to our family and to the CAGS Foundation. Thank you for supporting Run for Rare at the Air Force Marathon. Your gift helps fund the work that keeps our mission moving forward - raising awareness, maintaining trusted family resources, supporting outreach, strengthening research connections, and helping more people understand Chopra-Amiel-Gordon Syndrome (CAGS). As Mike takes on 26.2 miles, he will carry the encouragement of everyone who believes in this mission. Every donation is a reminder that rare families are not walking this road alone. We are truly grateful for your kindness, generosity, and belief in this work. If you would like to continue supporting CAGS, we would be grateful if you shared this campaign, helped spread awareness, or connected others to our mission. With gratitude, Mike Wells &amp; Jennifer Wells Chopra-Amiel-Gordon Syndrome (CAGS) Foundation, Inc. <a fr-original-style="" rel="noopener" style="text-decoration-color: currentcolor; user-select: auto; box-sizing: inherit;" target="_blank">info@curecags.org</a>

On Saturday, September 19, CAGS Foundation Co-Founder Mike Wells will run 26.2 miles at the Air Force Marathon in Dayton, Ohio to raise awareness and funding for the CAGS Foundation. Chopra-Amiel-Gordon Syndrome, also known as CAGS, is an ultra-rare genetic condition caused by changes in the ANKRD17 gene. Because CAGS is so rare, families often face limited information, long diagnostic journeys, and the challenge of helping others understand the condition. The CAGS Foundation exists to change that. We are a small but mighty foundation working to raise awareness, build trusted resources, connect families, support research efforts, and bring more visibility to CAGS. Your donation helps fund the work behind the mission, including the foundation website, family resources, awareness campaigns, educational materials, research support, outreach, and essential operating costs that keep the foundation active and moving forward. For Mike, this marathon is more than a race. It is a way to honor the strength of CAGS families and represent what rare disease families do every day: keep going, one step at a time. Whether you give $26.20 in honor of the marathon, $13.10 for a half-marathon of hope, or any amount that feels meaningful, every gift helps. U.S. 501(c)(3) nonprofit organization | EIN: <a target="_blank">33-2923434</a> All donations are tax-deductible as allowed by law. Donations are accepted in compliance with state charitable solicitation laws; where registration is pending, gifts are considered unsolicited.

Run for Rare: Going the Distance for CAGS

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Chopra-Amiel-Gordon Syndrome (CAGS) Foundation

**Chopra-Amiel-Gordon Syndrome (CAGS) Foundation Context Profile**

1. **Organization Mission & Cause:**
   - The Chopra-Amiel-Gordon Syndrome (CAGS) Foundation is dedicated to finding treatments and a cure for CAGS, a rare genetic disorder. Their mission extends to fostering a global community for those affected by CAGS, providing support and resources, and raising awareness about the condition.

2. **Type of Activities:**
   - **Research Funding:** The foundation prioritizes funding research initiatives aimed at understanding and curing CAGS.
   - **Community Building:** They focus on creating a supportive global network for individuals and families affected by CAGS.
   - **Awareness Campaigns:** The foundation actively works to increase awareness about CAGS through various campaigns and informational resources.
   - **Fundraising Campaigns:** They organize donation drives and other fundraising activities to support their mission.

3. **Tone of Voice:**
   - The tone of the CAGS Foundation is professional yet compassionate. The language used is formal, reflecting the seriousness of their mission, but it also conveys a sense of hope and community support. The website emphasizes clarity and factual information, suitable for both potential donors and those seeking information about the syndrome.

4. **Emoji Usage:**
   - The foundation does not prominently use emojis in their communications. Their focus is on maintaining a professional and formal tone, which aligns with their mission and target audience.

5. **Key Facts:**
   - **Founding Information:** The CAGS Foundation is a 501(c)(3) charitable nonprofit organization.
   - **Scale and Impact:** The foundation operates on a global scale, aiming to connect and support individuals worldwide affected by CAGS.
   - **Volunteer Information:** While specific volunteer details are not highlighted, the foundation likely relies on a network of supporters and advocates to further their cause.
   - **Tax Information:** Donations are tax-deductible in the U.S., and the foundation complies with state charitable solicitation laws.

6. **Writing Guidelines:**
   - **Clarity and Precision:** Use clear and precise language to convey information about CAGS and the foundation’s activities.
   - **Formal and Professional:** Maintain a formal tone that reflects the foundation's dedication to serious scientific and community work.
   - **Compassionate and Supportive:** While formal, the language should also be supportive, acknowledging the challenges faced by those affected by CAGS.
   - **Informative:** Provide detailed and factual content that educates the audience about CAGS and the foundation’s efforts.
   - **Call to Action:** Encourage donations and participation in a straightforward manner, emphasizing the impact of contributions on research and community support.

This context profile will help AI assistants generate content that aligns with the CAGS Foundation's mission, tone, and communication style, ensuring that all messaging is consistent and effective in supporting their cause.

Chopra-Amiel-Gordon Syndrome (CAGS) Foundation

Run for Rare: Going the Distance for CAGS

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