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<p style="margin:0px;font-style:normal;font-variant-caps:normal;font-weight:normal;font-stretch:normal;font-size:14px;line-height:normal;font-family:&quot;Helvetica Neue&quot;;font-size-adjust:none;font-kerning:auto;font-variant-alternates:normal;font-variant-ligatures:normal;font-variant-numeric:normal;font-variant-east-asian:normal;font-variant-position:normal;font-feature-settings:normal;font-optical-sizing:auto;font-variation-settings:normal;color:rgb(0, 0, 0);width:100%;box-sizing:inherit">When we talk about ALSP, we mention numbers & percentages, symptoms & scientific terms. But ALSP isn’t just facts and statistics on a page. ALSP is a life altering diagnosis.  Your donations will be used to support patients and care partners, increase access to genetic testing and provide educational material to physicians and medical professionals to raise awareness and increase correct diagnosis rates.  Every dollar you donate brings us one step closer to a world without ALSP.

Hello <span data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip" fr-original-style style="background-color:rgb(248, 248, 255);border:1px solid rgb(191, 191, 255);border-radius:4px;color:rgb(42, 42, 196);padding:1px 8px;font-size:11px;display:inline-block;margin:0px;overflow-wrap:anywhere;-webkit-user-select:none;box-sizing:inherit">First name, Thank you from the bottom of our hearts for supporting our cause. Your generosity means the world to us! Heidi, Erin & JamieSisters' Hope Foundation marketing@sistershopefoundation.org

Hello First name,
 
 Thank you from the bottom of our hearts for registering to fundraise for our cause. Your efforts will make a significant impact, and we are excited to have you as part of our fundraising team. 👏
 
 💡 Here are some tips for sharing your campaign:
 <ol>
 <li>Personalize Your Story: Share why this cause is important to you. Personal stories resonate more with potential donors.</li>
 <li>Use Social Media: Post about your campaign on Facebook, Instagram, X, and LinkedIn. Include the campaign link and a compelling image or video.</li>
 <li>Email Your Network: Send a personal email to friends, family, and colleagues explaining why you are fundraising and how they can help.</li>
 <li>Regular Updates: Keep your supporters informed with updates on your progress and any milestones you reach. This keeps them engaged and more likely to share your campaign.</li>
 </ol>
 Jamie LaFleur marketing@sistershopefoundation.org

<p style="margin:0px;font-style:normal;font-variant-caps:normal;font-weight:normal;font-stretch:normal;line-height:normal;font-kerning:auto;font-variant-alternates:normal;font-variant-ligatures:normal;font-variant-numeric:normal;font-variant-east-asian:normal;font-variant-position:normal;font-feature-settings:normal;font-optical-sizing:auto;font-variation-settings:normal;width:100%;box-sizing:inherit;max-width:100%">When we talk about ALSP, we mention numbers &amp; percentages, symptoms &amp; scientific terms. But ALSP isn’t just facts and statistics on a page. ALSP is a life altering diagnosis.  Your donations will be used to support patients and care partners, increase access to genetic testing and provide educational material to physicians and medical professionals to raise awareness and increase correct diagnosis rates.  Every dollar you donate brings us one step closer to a world without ALSP.

Sisters' Hope Foundation Donations

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Sisters Hope Foundation For Hereditary Diffuse Leukoencephalop

### Context Profile for Sisters Hope Foundation

1. **Organization Mission & Cause**:
   - The Sisters Hope Foundation is dedicated to supporting and empowering families affected by Hereditary Diffuse Leukoencephalopathy with Brain Stem Involvement (ALSP) and CSF1R-related diseases. Their mission focuses on:
     - Educating the public to raise awareness about these rare diseases.
     - Advocating for increased research and funding to enhance treatment options.
     - Connecting patients and families to foster community and support.
     - Providing financial assistance and resources to those in need.

2. **Type of Activities**:
   - The foundation engages in various activities including:
     - **Educational Campaigns**: Raising awareness about ALSP and CSF1R-related diseases.
     - **Advocacy**: Promoting research and funding initiatives.
     - **Community Building**: Connecting families and patients for mutual support.
     - **Fundraising Events**: Such as donation matching campaigns and other fundraising drives.

3. **Tone of Voice**:
   - The tone of the website and communications is **friendly, supportive, and encouraging**. The language is accessible and aims to inspire action, emphasizing community and collective effort. The use of direct calls to action (e.g., "Donate," "Share," "Volunteer") conveys urgency and importance.

4. **Emoji Usage**:
   - The website and communications do not prominently feature emojis. The tone remains professional and earnest, focusing on clarity and the gravity of the cause rather than casual or playful elements.

5. **Key Facts**:
   - **Founding Information**: Specific founding details were not available on the website.
   - **Scale**: The foundation has conducted 14 forms and 11 email campaigns, indicating a structured approach to outreach and engagement.
   - **Impact Metrics**: While specific metrics were not detailed, the foundation emphasizes community impact through education, advocacy, and support.
   - **Volunteer Information**: The foundation encourages volunteering as a means to contribute, although specific volunteer opportunities are not detailed on the website.

6. **Writing Guidelines**:
   - **Style**: Content should be clear, concise, and supportive. Use direct calls to action to encourage engagement.
   - **Language**: Maintain a friendly and encouraging tone, avoiding overly technical jargon unless necessary for clarity.
   - **Structure**: Use bullet points and lists for clarity, especially when outlining ways to help or the foundation's mission.
   - **Engagement**: Encourage sharing and community involvement, fostering a sense of belonging and urgency.

This context profile serves as a foundational guide for creating personalized and effective content for the Sisters Hope Foundation, ensuring alignment with their mission, tone, and audience engagement strategies.

Sisters Hope Foundation For Hereditary Diffuse Leukoencephalop

Sisters' Hope Foundation Donations

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