Check made out to order PXE International 
Address to send check: 
PXE International 
26400 Woodfield Road #189
Damascus MD 20872-7509  
Telephone: 202.362.9599
sharon@pxe.org

The Time Is Now: Join Us in Taming PXE!For 30 years, PXE International has been relentless in its mission. Today, we stand on the brink of a monumental breakthrough&mdash;a treatment for pseudoxanthoma elasticum (PXE). What does this mean?It means hope. It means the possibility of slowing down or even stopping this debilitating disease in its tracks. It means a future with less pain, fewer limitations, and more life for thousands of people living with PXE. But here&rsquo;s the reality: this groundbreaking work comes at a cost. The scientists we collaborate with, the large-scale clinical trials we fund, and the pharmaceutical partnerships we forge&mdash;all require significant resources. I&rsquo;ve dedicated 29 years of my life to volunteering for PXE International. My salary? You don&rsquo;t need to worry about that because I have never taken a salary from PXE International. But to keep our young, wicked-smart staff and brilliant scientists moving forward, we need your support now more than ever. <a fr-original-style="color:green;text-decoration:inherit;user-select:auto;box-sizing:inherit;" href="https://jessicaharper.com/career-credits/" rel="noopener noreferrer" style="color: green; text-decoration: inherit; user-select: auto; box-sizing: inherit;" target="_blank">Jessica Harper</a>, beloved actor and dedicated Board Member of PXE International, has an urgent message and a special offer for you. <a fr-original-style="color:green;text-decoration:inherit;user-select:auto;box-sizing:inherit;" href="https://youtu.be/Y6OOcgKZKvw" rel="noopener noreferrer" style="color: green; text-decoration: inherit; user-select: auto; box-sizing: inherit;" target="_blank">You can listen to her tell you about it</a> - or, just read this: SHE WILL MATCH YOUR DONATION!! If you would like to send a check, please send it to:PXE International26400 Woodfield Road #189Damascus MD 20872-7509 &nbsp;Telephone: 202.362.9599sterry@pxe.org&nbsp; Thank &nbsp;you so much,Sharon Sharon Terry, CEO

Hello <span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip " fr-original-style style="background-color:rgb(248, 248, 255);border:1px solid rgb(191, 191, 255);border-radius:4px;color:rgb(42, 42, 196);display:inline-block;margin:0px;padding:1px 8px;font-size:11px;line-height:16px;overflow-wrap:anywhere;user-select:none;box-sizing:inherit">First name, I am so delighted to receive your donation just now!! Thank you from the bottom of our hearts for supporting our cause. Jessica Harper will match your donation. This donation, together with others, will keep us racing toward the treatments! Deep gratitude! Sharon Terry sterry@pxe.org

Hello First name,
 
 Thank you from the bottom of our hearts for registering to fundraise for our cause. Your efforts will make a significant impact, and we are excited to have you as part of our fundraising team. 👏
 
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 <li>Email Your Network: Send a personal email to friends, family, and colleagues explaining why you are fundraising and how they can help.</li>
 <li>Regular Updates: Keep your supporters informed with updates on your progress and any milestones you reach. This keeps them engaged and more likely to share your campaign.</li>
 </ol>
 Sharon Terry sterry@pxe.org

The Time Is Now: Join Us in Taming PXE!For 30 years, PXE International has been relentless in its mission. Today, we stand on the brink of a monumental breakthrough—a treatment for pseudoxanthoma elasticum (PXE). What does this mean?It means hope. It means the possibility of slowing down or even stopping this debilitating disease in its tracks. It means a future with less pain, fewer limitations, and more life for thousands of people living with PXE. But here’s the reality: this groundbreaking work comes at a cost. The scientists we collaborate with, the large-scale clinical trials we fund, and the pharmaceutical partnerships we forge—all require significant resources. I’ve dedicated 29 years of my life to volunteering for PXE International. My salary? You don’t need to worry about that because I have never taken a salary from PXE International. But to keep our young, wicked-smart staff and brilliant scientists moving forward, we need your support now more than ever. <a href="https://jessicaharper.com/career-credits/" target="_blank">Jessica Harper</a>, beloved actor and dedicated Board Member of PXE International, has an urgent message and a special offer for you. <a href="https://youtu.be/Y6OOcgKZKvw" target="_blank">You can listen to her tell you about it</a> - or, just read this: SHE WILL MATCH YOUR DONATION!! If you would like to send a check, please send it to:PXE International26400 Woodfield Road #189Damascus MD 20872-7509  Telephone: 202.362.9599sterry@pxe.org  Thank  you so much,Sharon Sharon Terry, CEO

Matching Campaign

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PXE International Inc

### Context Profile for PXE International Inc

1. **Organization Mission & Cause**:
   - **Mission**: PXE International is dedicated to improving the lives of individuals affected by pseudoxanthoma elasticum (PXE), a rare genetic disorder that affects connective tissues. Their mission focuses on advancing research, providing support, and raising awareness about PXE to foster hope for effective treatments.
   - **Cause**: The organization emphasizes the urgency of finding treatments for PXE, highlighting the debilitating nature of the disease and the need for significant resources to fund research and clinical trials.

2. **Type of Activities**:
   - **Events**: PXE International organizes various events aimed at raising awareness and funds for research. Specific events are not detailed on the website, but they likely include community outreach and educational seminars.
   - **Fundraising Campaigns**: The "Matching Campaign" is a recent initiative encouraging donations by offering to match contributions, thereby doubling the impact of each donation.
   - **Community Programs**: They provide resources and support for individuals and families affected by PXE, including educational materials and networking opportunities.

3. **Tone of Voice**:
   - The tone of the website and communications is **inspiring** and **urgent**, with a strong call to action. The language is accessible and empathetic, aiming to connect with individuals affected by PXE and their families. It balances professionalism with a personal touch, often using first-person narratives to convey passion and commitment.

4. **Emoji Usage**:
   - The website and communications do not appear to use emojis. The tone remains formal and serious, reflecting the gravity of the health issues they address.

5. **Key Facts**:
   - **Founding Info**: PXE International has been operational for over 30 years, focusing on PXE since its inception.
   - **Scale**: The organization has a small, dedicated team and relies heavily on volunteers and donations to fund its initiatives.
   - **Impact Metrics**: While specific metrics are not detailed, the organization emphasizes the potential impact of their work on thousands of individuals living with PXE.
   - **Volunteer Info**: The founder, Sharon Terry, has dedicated nearly three decades to the organization without drawing a salary, indicating a strong commitment to the cause.

6. **Writing Guidelines**:
   - **Style**: Use clear, direct language that conveys urgency and hope. Personal stories and testimonials can enhance engagement.
   - **Structure**: Organize content with headings and bullet points for easy readability. Use strong calls to action to encourage donations and participation.
   - **Emphasis**: Highlight the impact of contributions and the importance of community support. Use emotional appeals to connect with the audience's sense of empathy and urgency.

This context profile provides a comprehensive overview of PXE International Inc, enabling AI assistants to generate tailored and effective content that resonates with the organization's mission and audience.

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