16p Genetic Syndrome Foundation

### Context Profile for 16p Genetic Syndrome Foundation

1. **Organization Mission & Cause**:
   - The 16p Genetic Syndrome Foundation is dedicated to supporting individuals affected by the 16p deletion syndrome, a rare genetic disorder. Their mission focuses on raising awareness, providing resources, and fostering community among families and individuals impacted by this condition. The foundation aims to enhance the quality of life for those affected by promoting research, education, and advocacy.

2. **Type of Activities**:
   - The foundation engages in various activities, including:
     - **Awareness Campaigns**: Initiatives to educate the public and medical professionals about 16p deletion syndrome.
     - **Community Support Programs**: Creating a network for families and individuals to share experiences and resources.
     - **Research Funding**: Supporting scientific research aimed at understanding the syndrome and improving treatment options.

3. **Tone of Voice**:
   - The tone of the website is **friendly**, **supportive**, and **informative**. It conveys a sense of community and compassion, aiming to connect with families and individuals affected by the syndrome. The language is accessible, avoiding overly technical jargon to ensure clarity for a broad audience.

4. **Emoji Usage**:
   - The website does not prominently feature emojis in its content. The communication style remains straightforward and professional, focusing on clarity and support rather than casual or playful elements.

5. **Key Facts**:
   - **Founding Info**: The foundation is a newly established organization, reflecting a growing recognition of the need for support in the 16p deletion syndrome community.
   - **Scale**: Currently, the organization has limited outreach, with only three forms available for engagement.
   - **Impact Metrics**: As a new organization, specific impact metrics are not yet available, but the foundation aims to track progress as it develops its programs and initiatives.
   - **Volunteer Info**: There is no specific volunteer information provided on the website, indicating that the organization may still be in the early stages of building its volunteer base.

6. **Writing Guidelines**:
   - Content should maintain a **supportive and informative tone**, focusing on clarity and accessibility.
   - Avoid technical jargon unless necessary, and provide explanations when complex terms are used.
   - Emphasize community, support, and the personal experiences of those affected by the syndrome.
   - Use clear headings and bullet points to enhance readability and engagement.
   - Incorporate personal stories or testimonials when available to foster connection and empathy.

This context profile serves as a foundational guide for generating personalized and relevant content for the 16p Genetic Syndrome Foundation, aligning with their mission and communication style.

2025 Conference Entire Video Suite

<p fr-original-style="margin: 0.0px 0.0px 12.0px 0.0px; font: 19.0px 'Times New Roman'; -webkit-text-stroke: #000000;" id="isPasted" style='margin: 0px 0px 12px; font: 19px "Times New Roman"; -webkit-text-stroke: rgb(0, 0, 0); width: 100%; box-sizing: inherit; color: rgb(0, 0, 0);'><span fr-original-style="font-family: 'Times New Roman'; font-weight: normal; font-style: normal; font-size: 19.00px; font-kerning: none;" style='font-family: "Times New Roman"; font-weight: normal; font-style: normal; font-size: 19px; font-kerning: none; box-sizing: inherit;'>🎥 Couldn&rsquo;t make it to the 16p11.2 Deletion Conference 2025 in Anaheim, California or didn&rsquo;t buy the video access?<p fr-original-style="margin: 0.0px 0.0px 12.0px 0.0px; font: 19.0px 'Times New Roman'; -webkit-text-stroke: #000000;" style='margin: 0px 0px 12px; font: 19px "Times New Roman"; -webkit-text-stroke: rgb(0, 0, 0); width: 100%; box-sizing: inherit; color: rgb(0, 0, 0);'><span fr-original-style="font-family: 'Times New Roman'; font-weight: normal; font-style: normal; font-size: 19.00px; font-kerning: none;" style='font-family: "Times New Roman"; font-weight: normal; font-style: normal; font-size: 19px; font-kerning: none; box-sizing: inherit;'>Now&rsquo;s your second chance!&nbsp;<p fr-original-style="margin: 0.0px 0.0px 12.0px 0.0px; font: 19.0px 'Times New Roman'; -webkit-text-stroke: #000000;" style='margin: 0px 0px 12px; font: 19px "Times New Roman"; -webkit-text-stroke: rgb(0, 0, 0); width: 100%; box-sizing: inherit; color: rgb(0, 0, 0);'><span fr-original-style="color: rgba(0,0,0,var(--O42jJQ,1)); caret-color: rgb(0, 0, 0); --Ys-XuQ: none; font-weight: 400; font-style: normal; font-kerning: normal;" id="isPasted" style="color: rgba(0,0,0,var(--O42jJQ,1)); caret-color: rgb(0, 0, 0); --Ys-XuQ: none; font-weight: 400; font-style: normal; font-kerning: normal; box-sizing: inherit;">When you make a tax-deductible gift of $200:<p fr-original-style="margin: 0.0px 0.0px 12.0px 0.0px; font: 12.0px 'Times New Roman'; -webkit-text-stroke: #000000; min-height: 13.8px;" style='margin: 0px 0px 12px; font: 12px "Times New Roman"; -webkit-text-stroke: rgb(0, 0, 0); min-height: 13.8px; width: 100%; box-sizing: inherit; color: rgb(0, 0, 0);'> <p fr-original-style="margin: 0.0px 0.0px 12.0px 0.0px; font: 19.0px 'Times New Roman'; -webkit-text-stroke: #000000;" style='margin: 0px 0px 12px; font: 19px "Times New Roman"; -webkit-text-stroke: rgb(0, 0, 0); width: 100%; box-sizing: inherit; color: rgb(0, 0, 0);'><span fr-original-style="font-family: 'Times New Roman'; font-weight: normal; font-style: normal; font-size: 19.00px; font-kerning: none;" style='font-family: "Times New Roman"; font-weight: normal; font-style: normal; font-size: 19px; font-kerning: none; box-sizing: inherit;'>🧠&nbsp;Your Video Access Includes:<ul fr-original-style="list-style-type: disc;" style="list-style-type: disc; box-sizing: inherit;"><li fr-original-style="margin: 0.0px 0.0px 12.0px 0.0px; font: 19.0px 'Times New Roman'; -webkit-text-stroke: #000000;" style='margin: 0px 0px 12px; font: 19px "Times New Roman"; -webkit-text-stroke: rgb(0, 0, 0); box-sizing: inherit;'><span fr-original-style="font-family: 'Times New Roman'; font-weight: normal; font-style: normal; font-size: 19.00px; font-kerning: none;" style='font-family: "Times New Roman"; font-weight: normal; font-style: normal; font-size: 19px; font-kerning: none; box-sizing: inherit;'>Full recordings of keynote and panel presentations</li><li fr-original-style="margin: 0.0px 0.0px 12.0px 0.0px; font: 19.0px 'Times New Roman'; -webkit-text-stroke: #000000;" style='margin: 0px 0px 12px; font: 19px "Times New Roman"; -webkit-text-stroke: rgb(0, 0, 0); box-sizing: inherit;'><span fr-original-style="font-family: 'Times New Roman'; font-weight: normal; font-style: normal; font-size: 19.00px; font-kerning: none;" style='font-family: "Times New Roman"; font-weight: normal; font-style: normal; font-size: 19px; font-kerning: none; box-sizing: inherit;'>In-depth discussions on current research, diagnostics, and therapeutic strategies</li></ul><span fr-original-style="font-family: 'Times New Roman'; font-weight: normal; font-style: normal; font-size: 19.00px; font-kerning: none;" style='font-family: "Times New Roman"; font-weight: normal; font-style: normal; font-size: 19px; font-kerning: none; box-sizing: inherit;'> <p fr-original-style="margin: 0.0px 0.0px 12.0px 0.0px; font: 19.0px 'Times New Roman'; -webkit-text-stroke: #000000;" style='margin: 0px 0px 12px; font: 19px "Times New Roman"; -webkit-text-stroke: rgb(0, 0, 0); width: 100%; box-sizing: inherit; color: rgb(0, 0, 0);'><span fr-original-style="font-family: 'Times New Roman'; font-weight: normal; font-style: normal; font-size: 19.00px; font-kerning: none;" style='font-family: "Times New Roman"; font-weight: normal; font-style: normal; font-size: 19px; font-kerning: none; box-sizing: inherit;'>💡&nbsp;Ideal for:<ul fr-original-style="list-style-type: disc;" style="list-style-type: disc; box-sizing: inherit;"><li fr-original-style="margin: 0.0px 0.0px 12.0px 0.0px; font: 19.0px 'Times New Roman'; -webkit-text-stroke: #000000;" style='margin: 0px 0px 12px; font: 19px "Times New Roman"; -webkit-text-stroke: rgb(0, 0, 0); box-sizing: inherit;'><span fr-original-style="font-family: 'Times New Roman'; font-weight: normal; font-style: normal; font-size: 19.00px; font-kerning: none;" style='font-family: "Times New Roman"; font-weight: normal; font-style: normal; font-size: 19px; font-kerning: none; box-sizing: inherit;'>Clinicians, genetic counselors, and researchers</li><li fr-original-style="margin: 0.0px 0.0px 12.0px 0.0px; font: 19.0px 'Times New Roman'; -webkit-text-stroke: #000000;" style='margin: 0px 0px 12px; font: 19px "Times New Roman"; -webkit-text-stroke: rgb(0, 0, 0); box-sizing: inherit;'><span fr-original-style="font-family: 'Times New Roman'; font-weight: normal; font-style: normal; font-size: 19.00px; font-kerning: none;" style='font-family: "Times New Roman"; font-weight: normal; font-style: normal; font-size: 19px; font-kerning: none; box-sizing: inherit;'>Families and advocates seeking to deepen their understanding</li><li fr-original-style="margin: 0.0px 0.0px 12.0px 0.0px; font: 19.0px 'Times New Roman'; -webkit-text-stroke: #000000;" style='margin: 0px 0px 12px; font: 19px "Times New Roman"; -webkit-text-stroke: rgb(0, 0, 0); box-sizing: inherit;'><span fr-original-style="font-family: 'Times New Roman'; font-weight: normal; font-style: normal; font-size: 19.00px; font-kerning: none;" style='font-family: "Times New Roman"; font-weight: normal; font-style: normal; font-size: 19px; font-kerning: none; box-sizing: inherit;'>Anyone committed to improving outcomes for individuals with 16p11.2 deletion</li></ul><p fr-original-style="margin: 0.0px 0.0px 12.0px 0.0px; font: 19.0px 'Times New Roman'; -webkit-text-stroke: #000000;" style='margin: 0px 0px 12px; font: 19px "Times New Roman"; -webkit-text-stroke: rgb(0, 0, 0); width: 100%; box-sizing: inherit; color: rgb(0, 0, 0);'> <p fr-original-style="margin: 0.0px 0.0px 12.0px 0.0px; font: 19.0px 'Times New Roman'; -webkit-text-stroke: #000000;" style='margin: 0px 0px 12px; font: 19px "Times New Roman"; -webkit-text-stroke: rgb(0, 0, 0); width: 100%; box-sizing: inherit; color: rgb(0, 0, 0);'><span fr-original-style="font-family: 'Times New Roman'; font-weight: normal; font-style: normal; font-size: 19.00px; font-kerning: none;" style='font-family: "Times New Roman"; font-weight: normal; font-style: normal; font-size: 19px; font-kerning: none; box-sizing: inherit;'>Purchase Access Today!<p fr-original-style="margin: 0.0px 0.0px 12.0px 0.0px; font: 19.0px 'Times New Roman'; -webkit-text-stroke: #000000;" style='margin: 0px 0px 12px; font: 19px "Times New Roman"; -webkit-text-stroke: rgb(0, 0, 0); width: 100%; box-sizing: inherit; color: rgb(0, 0, 0);'> <p fr-original-style="margin: 0.0px 0.0px 12.0px 0.0px; font: 19.0px 'Times New Roman'; -webkit-text-stroke: #000000;" style='margin: 0px 0px 12px; font: 19px "Times New Roman"; -webkit-text-stroke: rgb(0, 0, 0); width: 100%; box-sizing: inherit; color: rgb(0, 0, 0);'>✅Instant Email with instructions will be provided after tax-deductible gift.&nbsp;<p fr-original-style="margin: 0.0px 0.0px 12.0px 0.0px; font: 19.0px 'Times New Roman'; -webkit-text-stroke: #000000;" style='margin: 0px 0px 12px; font: 19px "Times New Roman"; -webkit-text-stroke: rgb(0, 0, 0); width: 100%; box-sizing: inherit; color: rgb(0, 0, 0);'>(Check your spam folder)

Hi <span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip" fr-original-style="" style="background-color: rgb(248, 248, 255); border: 1px solid rgb(191, 191, 255); border-radius: 4px; color: rgb(42, 42, 196); padding: 1px 8px; font-size: 11px; display: inline-block; margin: 0px; overflow-wrap: anywhere; user-select: none; box-sizing: inherit;">First name , Thank you for purchasing the 16p11.2 Deletion Conference 2025 presentation videos. Please use the link below to access the videos: <a fr-original-style="" href="https://16pdel.org/16p11-2-deletion-conference-2025/" rel="noopener noreferrer" style="text-decoration-color: initial; user-select: auto; box-sizing: inherit;" target="_blank">https://16pdel.org/16p11-2-deletion-conference-2025/</a> Password:strenth1nhope Thank You,16p11.2 Genetic Foundation

🎥 Couldn’t make it to the 16p11.2 Deletion Conference 2025 in Anaheim, California or didn’t buy the video access?Now’s your second chance! When you make a tax-deductible gift of $200: 🧠 Your Video Access Includes:<ul><li>Full recordings of keynote and panel presentations</li><li>In-depth discussions on current research, diagnostics, and therapeutic strategies</li></ul> 💡 Ideal for:<ul><li>Clinicians, genetic counselors, and researchers</li><li>Families and advocates seeking to deepen their understanding</li><li>Anyone committed to improving outcomes for individuals with 16p11.2 deletion</li></ul> Purchase Access Today! ✅Instant Email with instructions will be provided after tax-deductible gift. (Check your spam folder)

16p Genetic Syndrome Foundation

16p11.2 Deletion Conference 2025 Entire Video Suite Anaheim, California

2025 Conference Entire Video Suite

$200

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