SCID Foundation

### SCID Foundation Context Profile

1. **Organization Mission & Cause**:
   - The SCID Foundation is dedicated to supporting families affected by Severe Combined Immunodeficiency (SCID), a rare genetic disorder that severely impairs the immune system. Their mission focuses on raising awareness, providing educational resources, advocating for patients and families, and offering ongoing support throughout treatment and beyond. The foundation aims to ensure that no family faces the challenges of SCID alone.

2. **Type of Activities**:
   - The SCID Foundation engages in various activities, including:
     - **Awareness Campaigns**: Initiatives to educate the public and healthcare professionals about SCID.
     - **Educational Resources**: Providing information and support materials for families and caregivers.
     - **Advocacy**: Working to influence policies and practices that affect SCID patients.
     - **Community Support Programs**: Offering emotional and logistical support to families navigating the complexities of SCID treatment.
     - **Fundraising Campaigns**: Regular campaigns to raise funds for their initiatives, including the recent campaign titled "Don't let SCID families face this disease alone."

3. **Tone of Voice**:
   - The tone of the SCID Foundation is **friendly, supportive, and compassionate**. The language used is accessible and empathetic, aiming to connect with families facing the challenges of SCID. The foundation emphasizes community and support, creating a sense of urgency and importance around their mission without being overly formal.

4. **Emoji Usage**:
   - The SCID Foundation does not prominently use emojis in their communications. The tone remains professional and serious, reflecting the sensitivity of the subject matter. Any informal elements are minimal and focused on warmth rather than playful or casual expressions.

5. **Key Facts**:
   - **Founding Information**: The SCID Foundation is a 501(c)(3) nonprofit organization, which indicates it was established to serve a charitable purpose.
   - **Impact Metrics**: While specific impact metrics are not detailed on the website, the foundation emphasizes its role in supporting families and raising awareness about SCID.
   - **Volunteer Information**: The website does not explicitly mention volunteer opportunities, but the foundation likely welcomes community involvement given its mission.

6. **Writing Guidelines**:
   - **Style**: Use clear, concise language that is easy to understand. Avoid jargon unless it is explained.
   - **Empathy**: Write with compassion, acknowledging the emotional challenges faced by families affected by SCID.
   - **Call to Action**: Encourage donations and support with a sense of urgency, highlighting the direct impact of contributions on families.
   - **Personalization**: Use personalized greetings and acknowledgments in communications, as seen in the thank-you email template.
   - **Structure**: Organize content with clear headings and bullet points where appropriate to enhance readability.

This context profile serves as a guide for creating tailored content that aligns with the SCID Foundation's mission, tone, and communication style.

General admission

virtual event

Hi <span data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip" fr-original-style style="background-color:rgb(248, 248, 255);border:1px solid rgb(191, 191, 255);border-radius:4px;color:rgb(42, 42, 196);padding:1px 8px;font-size:11px;display:inline-block;margin:0px;overflow-wrap:anywhere;user-select:none;box-sizing:inherit">First name , Thank you for registering for our event and supporting our cause. Your registration greatly helps our mission. 🚀 If you would like to contribute further, contact us to become a volunteer, or talk to your friends about our cause! Barb Ballardbarb.ballard@scidfoundation.org

virtual event

SCID Foundation

2024 test connect event

General admission

Free