Families for Friedreich’s Ataxia

### Context Profile for Families for Friedreich’s Ataxia

1. **Organization Mission & Cause:**
   Families for Friedreich’s Ataxia (FFA) is dedicated to supporting individuals and families affected by Friedreich’s Ataxia (FA), a rare genetic disorder that affects the nervous system and the heart. Their mission is to raise awareness, fund research for treatments and a cure, and provide resources and support to those impacted by FA. They aim to create a community that fosters hope and connection among families facing the challenges of this condition.

2. **Type of Activities:**
   - **Fundraising Campaigns:** FFA organizes various fundraising events, including silent auctions (e.g., "Scramble FORE FA") where proceeds directly benefit their mission.
   - **Community Programs:** They provide resources and support for families affected by FA, including educational materials and networking opportunities.
   - **Awareness Campaigns:** FFA engages in activities to raise awareness about Friedreich’s Ataxia, including social media outreach and community events.

3. **Tone of Voice:**
   The tone of voice used by FFA is **friendly, supportive, and inspiring**. Their communications often express gratitude and encourage community involvement. The language is accessible and warm, aiming to foster a sense of belonging and hope among supporters and families affected by FA.

4. **Emoji Usage:**
   FFA uses emojis sparingly but effectively in their communications. For example, they use a 📣 emoji in their silent auction announcement to grab attention and convey excitement. The use of emojis appears to be occasional and purposeful, enhancing the friendly tone without overwhelming the message.

5. **Key Facts:**
   - **Founding Info:** Specific founding information is not detailed on the website, but the organization has been established to address the needs of families affected by FA.
   - **Scale:** The organization has engaged in multiple fundraising campaigns and community events, indicating an active involvement in outreach and support.
   - **Impact Metrics:** While specific metrics are not provided, the organization emphasizes the importance of community support and fundraising efforts to drive research and provide resources.
   - **Volunteer Info:** The website encourages community involvement and may provide opportunities for volunteers, although specific details are not highlighted.

6. **Writing Guidelines:**
   - **Use a Friendly and Supportive Tone:** Communications should reflect warmth and encouragement, making readers feel part of a community.
   - **Incorporate Gratitude:** Regularly express thanks to supporters and participants in events.
   - **Be Clear and Accessible:** Use straightforward language that is easy to understand, avoiding jargon.
   - **Engage with Calls to Action:** Encourage participation in events and fundraising efforts with clear and motivating calls to action.
   - **Occasional Emoji Use:** Use emojis to enhance messages, particularly in event announcements, but maintain professionalism in more formal communications.

This context profile provides a comprehensive overview of Families for Friedreich’s Ataxia, enabling AI assistants to craft tailored and effective content that aligns with the organization’s mission, tone, and activities.

LXCL:Includes green / cart fees, lunch, 3 drink tickets and gift bag.

Individual Player

LXCL:Includes green/cart fees, lunch, 3 drink tickets per person and gift bags for four players.

Four Player Team

LXCL:4 Four Player Teams (as above). Title Sponsor Banner at Clubhouse.Special mention at lunch Company tent cards on lunch tables Special mention at start of play. Sponsor signs on specialty holes.Social Media and website recognition.

Title Sponsor - Only One Available

LXCL:1 Four Player Team (as above). Logo or name on all carts. Social Media and website recognition. Logo or name on clubhouse banner.

Cart Sponsor - Only Two Available

LXCL:1 Four Player Team (as above). Logo or name on 1 Hole Sponsor Sign. Logo or name on clubhouse banner. Logo or name on sign at putting green. Social Media and website recognition.

Eagle Sponsor

LXCL:1 Four Player Team (as above) Logo or name on 1 Hole Sponsor sign. Social Media and website recognition. 4 Bottle Bonanza Tickets

Birdie Sponsor

LXCL:Logo or name on 1 Hole Sponsor Sign. 1 Four Player Team (as above): green / cart fees, lunch, 3 drink tickets per person and gift bags for four players.

Team Sponsor

LXCL:Logo or name on Hole Sponsor Sign.

Hole Sponsor

Join us in an exciting golf scramble as we seek to raise awareness and funds for families and individuals living with Friedreich&#39;s Ataxia. Friedreich&#39;s Ataxia is a rare, inherited, progressive neurogenetic condition that affects the nervous system and heart. Learn more about FA and our story <a fr-original-style="box-sizing: inherit; text-decoration-color: initial; user-select: auto; font-family: Roboto; font-size: 14px; font-style: normal; font-variant-ligatures: normal; font-variant-caps: normal; font-weight: 400; letter-spacing: 0.25px; orphans: 2; text-align: left; text-indent: 0px; text-transform: none; widows: 2; word-spacing: 0px; -webkit-text-stroke-width: 0px; white-space: normal; background-color: rgb(255, 255, 255);" href="http://www.familiesforfa.com/" id="isPasted" rel="noopener noreferrer" style="box-sizing: inherit; text-decoration-color: initial; user-select: auto; font-family: Roboto; font-size: 14px; font-style: normal; font-variant-ligatures: normal; font-variant-caps: normal; font-weight: 400; letter-spacing: 0.25px; orphans: 2; text-align: left; text-indent: 0px; text-transform: none; widows: 2; word-spacing: 0px; -webkit-text-stroke-width: 0px; white-space: normal; background-color: rgb(255, 255, 255);" target="_blank">here</a>. Registration: 7:30-8:25 AM &nbsp;Group Photo: 8: 25AM&nbsp;Shotgun Start: 8:30 AM &nbsp; &nbsp;&nbsp; Registration fee includes: green/ cart fees for 18-holes, catered lunch, gift bag, 3 drink tickets&nbsp; If you have any questions, please contact the Families for FA Foundation at 260-615-5231. Please consider a sponsorship to make a lasting impact for those in need.&nbsp;

&nbsp;<span contenteditable="false" data-custom-variable="{{date-variable-13cf008c-dc9c-4f13-abff-c7295baa219f}}" fr-original-class="fr-deletable styled-tag-chip" fr-original-style="" style="background-color: rgb(248, 248, 255); border: 1px solid rgb(191, 191, 255); border-radius: 4px; color: rgb(42, 42, 196); padding: 1px 8px; font-size: 11px; display: inline-block; margin: 0px; overflow-wrap: anywhere; user-select: none; box-sizing: inherit;">Date&nbsp;Hi <span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip" fr-original-style="" style="background-color: rgb(248, 248, 255); border: 1px solid rgb(191, 191, 255); border-radius: 4px; color: rgb(42, 42, 196); padding: 1px 8px; font-size: 11px; display: inline-block; margin: 0px; overflow-wrap: anywhere; user-select: none; box-sizing: inherit;">First name, Thank you for registering for our golf scramble!&nbsp; Date: 6/26/2026Check In: 7:30AMShotgun start: 8:30AMGolf Course: Colonial Oaks Golf Club Please visit us at our<a fr-original-style="" href="http://www.familiesforfa.com" rel="noopener noreferrer" style="text-decoration-color: initial; user-select: auto; box-sizing: inherit;" target="_blank">&nbsp;website</a> for additional information about our golf outing or to learn more about Friedreich&#39;s Ataxia and our story. For any questions or concerns please contact us at <a fr-original-style="" href="mailto:familiesforfa@gmail.com" style="text-decoration-color: initial; user-select: auto; box-sizing: inherit;">familiesforfa@gmail.com</a> We are so excited for another fun year and are so glad you are joining us. Be sure to share this event with family and friends so no one misses out.&nbsp; For all sponsors, please send logo and/or name information for sponsor signs and banners to <a fr-original-style="" href="mailto:familiesforfa@gmail.com" rel="noopener noreferrer noopener noreferrer" style="text-decoration-color: initial; user-select: auto; box-sizing: inherit;" target="_blank">familiesforfa@gmail.com</a> by June 1, 2026. Thank you! Sincerely,&nbsp;All of us at Families for FA&nbsp;

Join us in an exciting golf scramble as we seek to raise awareness and funds for families and individuals living with Friedreich's Ataxia. Friedreich's Ataxia is a rare, inherited, progressive neurogenetic condition that affects the nervous system and heart. Learn more about FA and our story <a href="http://www.familiesforfa.com/" target="_blank">here</a>. Registration: 7:30-8:25 AM  Group Photo: 8: 25AM Shotgun Start: 8:30 AM      Registration fee includes: green/ cart fees for 18-holes, catered lunch, gift bag, 3 drink tickets  If you have any questions, please contact the Families for FA Foundation at 260-615-5231. Please consider a sponsorship to make a lasting impact for those in need.

Families for Friedreich’s Ataxia

2026 Scramble Fore FA

8218 Huguenard Rd

Individual Player

$125

Four Player Team

$500

Title Sponsor - Only One Available

$10,000

Cart Sponsor - Only Two Available

$2,500

Eagle Sponsor

$1,500

Birdie Sponsor

$1,000

Team Sponsor

$700

Hole Sponsor

$250

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