HypoPARAthyroidism Association Inc

### Context Profile for HypoPARAthyroidism Association Inc

#### 1. Organization Mission & Cause
The HypoPARAthyroidism Association Inc is dedicated to improving the lives of individuals affected by hypoPARAthyroidism, a rare endocrine disorder characterized by insufficient parathyroid hormone (PTH) production. Their mission is to provide education, support, and advocacy for patients and families, fostering a community that empowers individuals to manage their condition effectively. The organization aims to raise awareness about hypoPARAthyroidism, promote research, and enhance treatment options.

#### 2. Type of Activities
- **Webinars**: Educational sessions like the recent webinar on "Managing HypoPARAthyroidism: Exploring PTH Replacement Therapy" provide valuable insights into treatment options and patient experiences.
- **Conferences**: They organize conferences that include presentations, discussions, and networking opportunities for patients, caregivers, and healthcare professionals.
- **Support Programs**: The association offers resources and support for individuals and families affected by hypoPARAthyroidism, including informational materials and community forums.
- **Advocacy Campaigns**: They engage in advocacy efforts to promote awareness and research funding for hypoPARAthyroidism.

#### 3. Tone of Voice
The tone of the organization's communications is **friendly, supportive, and informative**. They aim to create a welcoming environment for individuals affected by hypoPARAthyroidism, using clear and accessible language. The content is designed to be empathetic, encouraging, and empowering, reflecting their commitment to patient support and education.

#### 4. Emoji Usage
The website and email communications do not prominently feature emojis. The tone remains professional and straightforward, focusing on delivering clear information without the use of casual elements like emojis.

#### 5. Key Facts
- **Founding Information**: The specific founding date is not mentioned on the website, but the organization has established itself as a key resource for hypoPARAthyroidism since its inception.
- **Scale**: The organization has a total of 18 forms and has conducted 61 email campaigns, indicating an active engagement with their community.
- **Impact Metrics**: While specific metrics are not detailed, the organization emphasizes its role in raising awareness and providing support, which can be inferred as impactful for those affected by the condition.
- **Volunteer Information**: The website may contain sections on how individuals can get involved, but specific volunteer statistics or opportunities are not highlighted.

#### 6. Writing Guidelines
- **Clarity and Simplicity**: Use straightforward language that is easy to understand, avoiding medical jargon unless necessary.
- **Empathy and Support**: Write in a way that acknowledges the challenges faced by individuals with hypoPARAthyroidism, offering encouragement and hope.
- **Informative and Educational**: Content should focus on providing valuable information, resources, and actionable insights for patients and caregivers.
- **Professionalism**: Maintain a professional tone while being approachable, ensuring that the content reflects the seriousness of the health issues while remaining supportive.

This context profile serves as a foundation for generating personalized and relevant content for the HypoPARAthyroidism Association Inc, aligning with their mission and communication style.

Virtual - Early Bird

In Person - Early Bird

PLEASE DO NOT REGISTER FOR THIS TICKET TYPE UNLESS YOU ARE A SPONSOR OR SPEAKER. YOUR TICKET WILL BE CANCELED.

Sponsor or speaker

Virtual

In Person

The event will be hybrid November 2-3rd, 2024 9am-5pm both days The in-person portion will be at the Hyatt Place Hotel in Sterling, VAA link to watch the event virtually will be sent closer to the date of the eventDON"T forget to book your hotel room if you are attending in person.  Here is the link <a href="http://bit.ly/4bPXJQc" style="color:inherit;text-decoration:inherit;user-select:auto;box-sizing:inherit">http://bit.ly/4bPXJQc</a>

Hi <span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip " fr-original-style style="background-color:rgb(248, 248, 255);border:1px solid rgb(191, 191, 255);border-radius:4px;color:rgb(42, 42, 196);display:inline-block;margin:0px;padding:1px 8px;font-size:11px;line-height:16px;overflow-wrap:anywhere;user-select:none;box-sizing:inherit">First name , Thank you from the bottom of our hearts for registering for our event and supporting our cause. This registration greatly helps our mission. If you would like to contribute further, contact us to become a volunteer, or talk to your friends about our cause! Michele Rayesmrayes@hypopara.org

The event will be hybrid November 2-3rd, 2024 9am-5pm both days The in-person portion will be at the Hyatt Place Hotel in Sterling, VAA link to watch the event virtually will be sent closer to the date of the eventDON"T forget to book your hotel room if you are attending in person.  Here is the link <a href="http://bit.ly/4bPXJQc">http://bit.ly/4bPXJQc</a>

HypoPARAthyroidism Association Inc

Add a donation for HypoPARAthyroidism Association Inc

2024 International HypoPARAthyroidism Association Conference

45520 Dulles Plaza

Sponsor or speaker

Free

Virtual

$30

In Person

$60