Vein of Galen Malformation Support Network

### Context Profile for Vein of Galen Malformation Support Network

#### 1. Organization Mission & Cause
The Vein of Galen Malformation Support Network (VOGM) is dedicated to supporting families affected by Vein of Galen Malformation (VOGM), a rare brain condition that impacts children. Their mission is to raise awareness about VOGM, provide resources and support to affected families, and facilitate access to vital medical care. The organization aims to make this rare condition feel less isolating by fostering a community of support and advocacy.

#### 2. Type of Activities
- **Fundraising Campaigns:** VOGM organizes annual events such as the "Walkathon" to raise funds for medical assistance and awareness. The most recent campaign, "People for Theo," aims to raise $35,000 to help children access crucial brain surgeries.
- **Community Programs:** They provide a supportive network for families, offering resources and guidance as they navigate the complexities of VOGM.
- **Awareness Initiatives:** The organization actively promotes awareness during AVM Awareness Month in October, encouraging community participation in events that highlight the challenges faced by families dealing with VOGM.

#### 3. Tone of Voice
The tone of voice used by VOGM is **friendly, supportive, and inspiring**. The language is accessible and empathetic, aiming to connect with families and supporters on a personal level. The organization communicates urgency regarding the need for awareness and funding while maintaining a hopeful outlook for the future of affected children.

#### 4. Emoji Usage
The organization does not prominently use emojis in their communications, focusing instead on clear and heartfelt language to convey their messages. This approach aligns with their serious mission while still being approachable.

#### 5. Key Facts
- **Founding Information:** Specific founding details were not found on the website, but the organization has established itself as a key resource for families affected by VOGM.
- **Scale:** The organization has a total of 95 forms and has conducted 16 email campaigns, indicating an active engagement with their community.
- **Impact Metrics:** The current goal for their fundraising campaign is $35,000, which will directly support children needing medical assistance.
- **Volunteer Information:** While specific volunteer details were not highlighted, the organization encourages community involvement through events like the Walkathon.

#### 6. Writing Guidelines
- **Style:** Use a conversational and supportive tone, focusing on empathy and community. 
- **Content Structure:** Begin with a clear statement of purpose, followed by details about events or initiatives, and conclude with a call to action that encourages participation or support.
- **Emphasis on Community:** Highlight the importance of community support and shared experiences among families affected by VOGM.
- **Use of Visuals:** Incorporate images that resonate emotionally with the audience, as seen in their email campaigns and event promotions.

This context profile provides a comprehensive understanding of the Vein of Galen Malformation Support Network, enabling AI assistants to create tailored and impactful content that aligns with the organization's mission and values.

5K Run Registration Ticket

Are you ready to lace up your running shoes and make a meaningful difference for warriors young and old? Join us for our Infants and Infantry 5k, a collaborative effort between Maine Veterans Program and the VOGM Support Network! Maine Veterans Project aims to provide community and support to end veterans’ suicide, and the VOGM Support Network supports families whose child is diagnosed with VOGM, a rare life threatening brain AVM. They provide emotional, logistical, and financial support to get VOGM children to a specialist for life saving treatment! With your help we can save lives! A big thank you to Triumph Professional Cleaning Service for putting this together and hosting our event!   Date & Time: Saturday Nov 18th, 2023Location: Washington Street Park in Brewer Why Run With Us?Every step you take in this 5k run will make a meaningful impact. The VOGM Support Network, in partnership with dedicated Maine Veterans Project, empowers veterans who have valiantly served our country while extending its mission globally to help families get their VOGM (Vein of Galen Malformation) baby to life saving treatment. By participating in this 5k run, you're supporting Maine Veterans and contributing to the noble cause of aiding families and individuals facing the challenges of VOGM. Your involvement will help us continue to provide essential assistance and raise vital awareness about this condition, making a profound impact on countless lives. Join us in making a difference for veterans and VOGM-affected families alike. How Can You Contribute? 1. Register: Sign up for the run and show your support for our Veterans and VOGM warriors.2. Fundraise: Create a personal fundraising page and share it with your friends, family, and colleagues. Every donation, no matter the size, makes a difference.3. Spread the Word: Help us reach more people by sharing this event on social media, using the hashtag #Infants&Infantry5k. Encourage others to join or donate. What to Expect: - Inspiring Atmosphere: Be part of a community coming together to honor our veterans and show gratitude for their service.- Commemorative Gear: Participants will receive a commemorative wrist band to remember this special event.- Awards & Prizes: Top fundraisers and fastest runners will be recognized with trophies, celebrating their dedication and support. Let's Run for a Cause: Register Now and Let Your Steps Make a Change! For any inquiries or additional information, please contact us at <a href="mailto:info@vogm.org">info@vogm.org</a> (mailto:<a href="mailto:info@vogm.org">info@vogm.org</a>) or call 706-338-1387. Thank you for your support, and we look forward to seeing you at the starting line!

Dear <span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip " style="background-color:rgb(248, 248, 255);border:1px solid rgb(191, 191, 255);border-radius:4px;color:rgb(42, 42, 196);display:inline-block;margin:0px;padding:1px 8px;font-size:11px;line-height:16px;overflow-wrap:anywhere;-webkit-user-select:none;box-sizing:inherit">First name ,Thank you for registering for our 5k run on November 19th, 2023. The race starts promptly at 9 a.m. Your registration means the world to us and will make a significant impact in our community. RememberDate: November 19th, 2023Location: Washington Street Park in Brewer We can't wait to see you at the event! Marlene Brochuinfo@vogm.org706-338-1387

Are you ready to lace up your running shoes and make a meaningful difference for warriors young and old? Join us for our Infants and Infantry 5k, a collaborative effort between Maine Veterans Program and the VOGM Support Network! Maine Veterans Project aims to provide community and support to end veterans’ suicide, and the VOGM Support Network supports families whose child is diagnosed with VOGM, a rare life threatening brain AVM. They provide emotional, logistical, and financial support to get VOGM children to a specialist for life saving treatment! With your help we can save lives! A big thank you to Triumph Professional Cleaning Service for putting this together and hosting our event!   Date &amp; Time: Saturday Nov 18th, 2023Location: Washington Street Park in Brewer Why Run With Us?Every step you take in this 5k run will make a meaningful impact. The VOGM Support Network, in partnership with dedicated Maine Veterans Project, empowers veterans who have valiantly served our country while extending its mission globally to help families get their VOGM (Vein of Galen Malformation) baby to life saving treatment. By participating in this 5k run, you're supporting Maine Veterans and contributing to the noble cause of aiding families and individuals facing the challenges of VOGM. Your involvement will help us continue to provide essential assistance and raise vital awareness about this condition, making a profound impact on countless lives. Join us in making a difference for veterans and VOGM-affected families alike. How Can You Contribute? 1. Register: Sign up for the run and show your support for our Veterans and VOGM warriors.2. Fundraise: Create a personal fundraising page and share it with your friends, family, and colleagues. Every donation, no matter the size, makes a difference.3. Spread the Word: Help us reach more people by sharing this event on social media, using the hashtag #Infants&amp;Infantry5k. Encourage others to join or donate. What to Expect: - Inspiring Atmosphere: Be part of a community coming together to honor our veterans and show gratitude for their service.- Commemorative Gear: Participants will receive a commemorative wrist band to remember this special event.- Awards &amp; Prizes: Top fundraisers and fastest runners will be recognized with trophies, celebrating their dedication and support. Let's Run for a Cause: Register Now and Let Your Steps Make a Change! For any inquiries or additional information, please contact us at <a href="mailto:info@vogm.org">info@vogm.org</a> (mailto:<a href="mailto:info@vogm.org">info@vogm.org</a>) or call 706-338-1387. Thank you for your support, and we look forward to seeing you at the starting line!

Vein of Galen Malformation Support Network

INFANTS AND INFANTRY 5K

Washington Street Park

5K Run Registration Ticket

$30