Rare Disease Day

Advanced registration is required.  In lieu of an entrance fee, a suggested $30.00 donation is requested to help support event costs and benefit the National Organization for Rare Disorders, Inc. (NORD). 

Space is limited so register today!  Please RSVP by Friday, February 17, 2023.

For questions or additional donations, please reach out to: 
Juliane Nelson at jdenelson@gmail.com
Mahasweta Girgenrath at swetag821@gmail.com

Donation

We enthusiastically invite you to join us for a "Rare Tasting" event to celebrate Rare Disease Day at the Thayer House in Medway, MA on the evening of Saturday, February 25th from 7:00 PM - 10:00 PM.  Our hope is to raise awareness of just how common rare disease really is - 1 in 17 people worldwide!  You or someone you know is likely affected by a rare disease so this event allows us a wonderful chance to continue building this already robust community right here in Medway. All residents are welcomed to this fun-filled evening with lots of networking opportunities and eclectic recipes by Aliquots Catering.  We look forward to connecting with Medway families, friends, and the local scientific rare disease community! Advanced registration is required.  In lieu of an entrance fee, a donation is requested to benefit the National Organization for Rare Disorders, Inc. (NORD).  Space is limited so register today!  Please RSVP by Friday, February 17, 2023. For questions, please reach out to: Juliane Nelson at <a href="mailto:jdenelson@gmail.com">jdenelson@gmail.com</a>Mahasweta Girgenrath at <a href="mailto:swetag821@gmail.com">swetag821@gmail.com</a>  Rare Disease Day® is an international patient-driven awareness event held annually on the last day of February to raise awareness about the impact of rare diseases on patients’ lives and to emphasize the need for research.

Hello <span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip " style="background-color:rgb(248, 248, 255);border:1px solid rgb(191, 191, 255);border-radius:4px;color:rgb(42, 42, 196);display:inline-block;margin:0px;padding:1px 8px;font-size:11px;line-height:16px;overflow-wrap:anywhere;user-select:none;box-sizing:inherit">First name, Thank you for supporting our 2023 Rare Disease Day event:  📭   at Thayer Homestead, 2B Oak St, Medway, MA 02053, USA ⌚️   On Saturday, February 25, 2023 At 07:00 p.m. For questions or cancellations, please reach out to: Juliane Nelson at jdenelson@gmail.comMahasweta Girgenrath at swetag821@gmail.com  We look forward to connecting with you soon!

We enthusiastically invite you to join us for a "Rare Tasting" event to celebrate Rare Disease Day at the Thayer House in Medway, MA on the evening of Saturday, February 25th from 7:00 PM - 10:00 PM.  Our hope is to raise awareness of just how common rare disease really is - 1 in 17 people worldwide!  You or someone you know is likely affected by a rare disease so this event allows us a wonderful chance to continue building this already robust community right here in Medway. All residents are welcomed to this fun-filled evening with lots of networking opportunities and eclectic recipes by Aliquots Catering.  We look forward to connecting with Medway families, friends, and the local scientific rare disease community! Advanced registration is required.  In lieu of an entrance fee, a donation is requested to benefit the National Organization for Rare Disorders, Inc. (NORD).  Space is limited so register today!  Please RSVP by Friday, February 17, 2023. For questions, please reach out to: Juliane Nelson at <a href="mailto:jdenelson@gmail.com">jdenelson@gmail.com</a>Mahasweta Girgenrath at <a href="mailto:swetag821@gmail.com">swetag821@gmail.com</a>  Rare Disease Day® is an international patient-driven awareness event held annually on the last day of February to raise awareness about the impact of rare diseases on patients’ lives and to emphasize the need for research.

Rare Disease Day

Virtual gala

2B Oak St

Donation

$30

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