FamilieSCN2A Foundation

### Context Profile for FamilieSCN2A Foundation

1. **Organization Mission & Cause**:
   - **Mission**: The FamilieSCN2A Foundation is dedicated to accelerating research, building community, and advocating for those affected by SCN2A-related disorders. Their vision is to create a world with effective treatments and cures for all SCN2A-related disorders.
   - **Cause**: SCN2A-related disorders are rare and devastating conditions that impact not just the patients but their entire families. The foundation aims to improve the quality of life for these families through research, support, and advocacy.

2. **Type of Activities**:
   - **Events**: The foundation hosts various events, including the annual SCN2A Warrior Challenge, a virtual race where participants can run, walk, roll, or stroll to raise funds and awareness.
   - **Fundraising Campaigns**: They conduct campaigns to raise funds for research and support services. For example, the SCN2A Warrior Challenge raised over $44,000 last year.
   - **Community Programs**: They connect families affected by SCN2A disorders, providing educational and emotional support.

3. **Tone of Voice**:
   - The tone is **friendly**, **inspiring**, and **supportive**. The language used on the website and in communications is accessible and encourages community involvement. Phrases like "join us," "let's make a difference," and "every bit counts" convey a sense of urgency and hope.

4. **Emoji Usage**:
   - The website and email communications do not prominently feature emojis. The tone remains professional and heartfelt without relying on emojis for expression.

5. **Key Facts**:
   - **Founding Info**: The foundation is a registered 501(c)(3) organization.
   - **Scale**: They have a total of 376 forms and have conducted 10 email campaigns.
   - **Impact Metrics**: The SCN2A Warrior Challenge raised over $44,000 last year, demonstrating their fundraising effectiveness.
   - **Volunteer Info**: While specific volunteer information is not detailed, the foundation emphasizes community involvement and family engagement.

6. **Writing Guidelines**:
   - **Style**: Use a conversational and inclusive tone. Address the audience directly (e.g., "Join us," "You can help").
   - **Content Structure**: Use headings and bullet points for clarity. Highlight key information and calls to action.
   - **Emotional Appeal**: Incorporate stories or testimonials that reflect the impact of SCN2A disorders on families. Emphasize the urgency of the cause and the importance of community support.
   - **Call to Action**: Always include a clear call to action, whether it's participating in an event, making a donation, or spreading awareness.

This context profile serves as a comprehensive guide for creating personalized and effective content for the FamilieSCN2A Foundation, ensuring alignment with their mission, tone, and community engagement strategies.

Join the Warrior Challenge

<h2>Description</h2><div style="box-sizing:inherit;color:rgb(85, 85, 85);margin-bottom:25px !important;width:100%"><div style="box-sizing:inherit"><p style="box-sizing:inherit;font-size:1.1rem;padding:0px;margin:0px 0px 10px;line-height:1.6rem;color:rgb(85, 85, 85)">Join us (virtually) the weekend of October 21-22 for the 4th Annual SCN2A Warrior Challenge, where you can run, walk, roll or stroll to support the FamilieSCN2A Foundation! This is a virtual race, so you can design the course however you want to challenge yourself: is it 100 meters, a mile, a 5K; are you looking for a good reason to take on a 10K or something longer? Whatever the distance and location, you’ll run, walk, roll in a wheelchair or push a stroller to complete the SCN2A Warrior Challenge for a great cause.  </p><h2>Joining the Challenge is just $10!</h2><h3>How to take part:</h3><ul><li style="box-sizing:inherit">Create or join a TEAM that represents your SCN2A Warrior or reason for participating!</li><li style="box-sizing:inherit">Spread the word: let friends and family know and ask them to take part</li><li style="box-sizing:inherit">Consider making a <strong style="box-sizing:inherit;font-weight:bold"><a href="https://runsignup.com/Race/Donate/MA/AnyCityAnyState/SCN2AWarriorRunWalkRollStroll" target="_blank">donation</a>.</strong></li><li style="box-sizing:inherit">Pick a day (ideally October 21 or 22, or earlier if neither date works for you) you’d like to complete your challenge</li><li style="box-sizing:inherit">Order your SCN2A Warrior gear at <a href="https://shop.scn2a.org/collections/scn2a-virtual-run" target="_blank">https://shop.scn2a.org/collections/scn2a-virtual-run</a></li><li style="box-sizing:inherit">Get moving and have fun!</li><li style="box-sizing:inherit">Take photos and flood social media with posts using #Run4SCN2A and #CureSCN2A.</li></ul><h3>How to help:</h3><p style="box-sizing:inherit;font-size:1.1rem;padding:0px;margin:0px 0px 10px;line-height:1.6rem;color:rgb(85, 85, 85)">Last year, this event raised over $44,000 for the Foundation!  That would not have been possible without all of the generous donations we received.  Please consider <strong style="box-sizing:inherit;font-weight:bold"><a href="https://runsignup.com/Race/Donate/MA/AnyCityAnyState/SCN2AWarriorRunWalkRollStroll" target="_blank">donating</a></strong> to FamilieSCN2A Foundation in addition to your registration for the event — and if you’re unable to take part in the SCN2A Warrior Challenge you can still help us through a donation.  </p><h4><strong style="box-sizing:inherit;font-weight:bold">About FamilieSCN2A:</strong></h4><p style="box-sizing:inherit;font-size:1.1rem;padding:0px;margin:0px 0px 10px;line-height:1.6rem;color:rgb(85, 85, 85)">"Families" is part of our name for a reason. Rare and devastating, SCN2A-related disorders affect the entire family. Our team of leaders strive every day and in every way to improve the lives of not only the patients, but the entire family.</p><p style="box-sizing:inherit;font-size:1.1rem;padding:0px;margin:0px 0px 10px;line-height:1.6rem;color:rgb(85, 85, 85)">Our MISSION is to accelerate research, build community and advocate to improve the lives of those affected by SCN2A-related disorders around the world.</p><ul><li style="box-sizing:inherit">Our VISION is a world with effective treatments and cures for all SCN2A-related disorders.</li><li style="box-sizing:inherit">Our Values are URGENCY, INTEGRITY, COLLABORATION, and INCLUSION.</li><li style="box-sizing:inherit">We are a registered 501(c)(3) organization.</li></ul><p style="box-sizing:inherit;font-size:1.1rem;padding:0px;margin:0px 0px 10px;line-height:1.6rem;color:rgb(85, 85, 85)">Your generous donations will go directly toward research, and awareness, and provide educational and emotional support for patients and families by connecting them with other families affected by SCN2A. A cure for SCN2A is a reality. However, the cost of finding a cure is expensive. Your donation can help save those suffering from the effects of SCN2A. Every bit counts!</p><p style="box-sizing:inherit;font-size:1.1rem;padding:0px;margin:0px 0px 10px;line-height:1.6rem;color:rgb(85, 85, 85)">Learn more about how your donation can help a child suffering from SCN2A Disorder today!  <a href="https://www.scn2a.org/help.html" target="_blank">https://www.scn2a.org/help.html</a></p></div></div>

<p style="width:100%;margin-top:0px;margin-bottom:0px;box-sizing:inherit">Hello <span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip " style="background-color:rgb(248, 248, 255);border:1px solid rgb(191, 191, 255);border-radius:4px;color:rgb(42, 42, 196);display:inline-block;margin:0px;padding:1px 8px;font-size:11px;line-height:16px;overflow-wrap:anywhere;user-select:none;box-sizing:inherit">First name</span> <span contenteditable="false" data-custom-variable="{{lastname}}" fr-original-class="fr-deletable styled-tag-chip " style="background-color:rgb(248, 248, 255);border:1px solid rgb(191, 191, 255);border-radius:4px;color:rgb(42, 42, 196);display:inline-block;margin:0px;padding:1px 8px;font-size:11px;line-height:16px;overflow-wrap:anywhere;user-select:none;box-sizing:inherit">Last name</span>,</p><p> </p><p>On behalf of the FamilieSCN2A Foundation, I would like to thank you for your generous donation today. Your contribution makes it possible for us to fund research specifically for SCN2A-related disorders as well as provide support to families. Your gift means so much, not only to the FamilieSCN2A Foundation but to the patients and families affected.</p><p> </p><p>Here at the FamilieSCN2A Foundation, our vision is a world with effective treatments and cures for all SCN2A-related disorders. Our mission is to accelerate research, build community and advocate to improve the lives of those affected by SCN2A-related disorders around the world.</p><p> </p><p>The FamilieSCN2A Foundation is a 501(c)(3) nonprofit exempt organization as described in Section 501(c)(3) of the Internal Revenue Code and its EIN is 47-3169795. No goods or services of any value were or will be transferred to you in connection with this donation.</p><p> </p><p>Please keep this written acknowledgment of your donation for your tax records. The charitable deduction may be disallowed if you are unable to provide this acknowledgment to the Internal Revenue Service upon request.</p><p> </p><p>Thanks to your continued support, we can keep fighting for a cure for all those suffering from this rare and devastating disease. Your gift will have a lasting impact.</p><p> </p><p>With gratitude,</p><p> </p><p>Leah Myers</p><p>Founder & Executive Director</p><p>FamilieSCN2A Foundation</p>

<p style="font-weight:bold">Description</p><div><div><p style="box-sizing:inherit;padding:0px;margin:0px 0px 10px;line-height:1.6rem">Join us (virtually) the weekend of October 21-22 for the 4th Annual SCN2A Warrior Challenge, where you can run, walk, roll or stroll to support the FamilieSCN2A Foundation! This is a virtual race, so you can design the course however you want to challenge yourself: is it 100 meters, a mile, a 5K; are you looking for a good reason to take on a 10K or something longer? Whatever the distance and location, you’ll run, walk, roll in a wheelchair or push a stroller to complete the SCN2A Warrior Challenge for a great cause.  </p><p style="font-weight:bold">Joining the Challenge is just $10!</p><p style="font-weight:bold">How to take part:</p><ul><li>Create or join a TEAM that represents your SCN2A Warrior or reason for participating!</li><li>Spread the word: let friends and family know and ask them to take part</li><li>Consider making a <strong><a href="https://runsignup.com/Race/Donate/MA/AnyCityAnyState/SCN2AWarriorRunWalkRollStroll" target="_blank">donation</a>.</strong></li><li>Pick a day (ideally October 21 or 22, or earlier if neither date works for you) you’d like to complete your challenge</li><li>Order your SCN2A Warrior gear at <a href="https://shop.scn2a.org/collections/scn2a-virtual-run" target="_blank">https://shop.scn2a.org/collections/scn2a-virtual-run</a></li><li>Get moving and have fun!</li><li>Take photos and flood social media with posts using #Run4SCN2A and #CureSCN2A.</li></ul><p style="font-weight:bold">How to help:</p><p style="box-sizing:inherit;padding:0px;margin:0px 0px 10px;line-height:1.6rem">Last year, this event raised over $44,000 for the Foundation!  That would not have been possible without all of the generous donations we received.  Please consider <strong><a href="https://runsignup.com/Race/Donate/MA/AnyCityAnyState/SCN2AWarriorRunWalkRollStroll" target="_blank">donating</a></strong> to FamilieSCN2A Foundation in addition to your registration for the event — and if you’re unable to take part in the SCN2A Warrior Challenge you can still help us through a donation.  </p><p style="font-weight:bold"><strong>About FamilieSCN2A:</strong></p><p style="box-sizing:inherit;padding:0px;margin:0px 0px 10px;line-height:1.6rem">"Families" is part of our name for a reason. Rare and devastating, SCN2A-related disorders affect the entire family. Our team of leaders strive every day and in every way to improve the lives of not only the patients, but the entire family.</p><p style="box-sizing:inherit;padding:0px;margin:0px 0px 10px;line-height:1.6rem">Our MISSION is to accelerate research, build community and advocate to improve the lives of those affected by SCN2A-related disorders around the world.</p><ul><li>Our VISION is a world with effective treatments and cures for all SCN2A-related disorders.</li><li>Our Values are URGENCY, INTEGRITY, COLLABORATION, and INCLUSION.</li><li>We are a registered 501(c)(3) organization.</li></ul><p style="box-sizing:inherit;padding:0px;margin:0px 0px 10px;line-height:1.6rem">Your generous donations will go directly toward research, and awareness, and provide educational and emotional support for patients and families by connecting them with other families affected by SCN2A. A cure for SCN2A is a reality. However, the cost of finding a cure is expensive. Your donation can help save those suffering from the effects of SCN2A. Every bit counts!</p><p style="box-sizing:inherit;padding:0px;margin:0px 0px 10px;line-height:1.6rem">Learn more about how your donation can help a child suffering from SCN2A Disorder today!  <a href="https://www.scn2a.org/help.html" target="_blank">https://www.scn2a.org/help.html</a></p></div></div>

FamilieSCN2A Foundation

Warrior Challenge 2023

Join the Warrior Challenge

$10