Revolution Fitness LLC is proud to announce the First Annual CDG Charity Golf Tournament, dedicated to raising awareness and funds for PMM2-CDG, a rare and challenging genetic disorder. This event, hosted by Revolution Fitness and in partnership with CDG CARE, is not just a golf tournament; it's a symbol of hope and support for families affected by PMM2-CDG, including our very own CEO, Jay Hebert, whose son Christian battles this condition every day.
The tournament will take place on May 16th, a date of particular significance as it coincides with World CDG Awareness Day. On this day, people around the globe join forces to raise awareness for Congenital Disorders of Glycosylation (CDG), making it the perfect occasion for this charitable event. In solidarity with the cause, the event's theme will feature the colors green and white, symbolizing hope and purity—values that resonate deeply with our mission to support those affected by PMM2-CDG.
PMM2-CDG is one of the many types of CDG, a group of rare inherited conditions caused by defects in glycosylation, a critical process in the body. PMM2-CDG, in particular, affects multiple systems, leading to a range of symptoms including developmental delays, coordination problems, and organ dysfunction. Due to its rarity, research and support for this disorder are significantly underfunded, leaving affected families with limited resources and options. This charity event is a vital step toward changing that narrative.
This will be an annual event, with each year's tournament building on the success of the last. Our goal is to establish a lasting tradition that not only raises funds but also increases awareness and understanding of PMM2-CDG. By making this tournament an annual occurrence, we aim to create a sustained impact that will benefit families and researchers in their ongoing fight against this rare disorder.
The CDG Charity Golf Tournament will bring together golf enthusiasts, community leaders, and compassionate individuals who are united in their desire to make a difference. Participants will enjoy a full day of golf at a prestigious course, with opportunities to win prizes, participate in raffles, support a silent auction hosted by Palm Beach Autographs, and enjoy a post-tournament lunch at Walk-On's Sports Bistreaux immediately following the awards ceremony.
By participating in or supporting this tournament, you are not just playing a round of golf; you are contributing to the fight against PMM2-CDG and helping to improve the lives of those affected by this rare disorder. Join us on May 16th in making a difference, one swing at a time.
Revolution Fitness LLC is proud to announce the First Annual CDG Charity Golf Tournament, dedicated to raising awareness and funds for PMM2-CDG, a rare and challenging genetic disorder. This event, hosted by Revolution Fitness and in partnership with CDG CARE, is not just a golf tournament; it's a symbol of hope and support for families affected by PMM2-CDG, including our very own CEO, Jay Hebert, whose son Christian battles this condition every day.
The tournament will take place on May 16th, a date of particular significance as it coincides with World CDG Awareness Day. On this day, people around the globe join forces to raise awareness for Congenital Disorders of Glycosylation (CDG), making it the perfect occasion for this charitable event. In solidarity with the cause, the event's theme will feature the colors green and white, symbolizing hope and purity—values that resonate deeply with our mission to support those affected by PMM2-CDG.
PMM2-CDG is one of the many types of CDG, a group of rare inherited conditions caused by defects in glycosylation, a critical process in the body. PMM2-CDG, in particular, affects multiple systems, leading to a range of symptoms including developmental delays, coordination problems, and organ dysfunction. Due to its rarity, research and support for this disorder are significantly underfunded, leaving affected families with limited resources and options. This charity event is a vital step toward changing that narrative.
This will be an annual event, with each year's tournament building on the success of the last. Our goal is to establish a lasting tradition that not only raises funds but also increases awareness and understanding of PMM2-CDG. By making this tournament an annual occurrence, we aim to create a sustained impact that will benefit families and researchers in their ongoing fight against this rare disorder.
The CDG Charity Golf Tournament will bring together golf enthusiasts, community leaders, and compassionate individuals who are united in their desire to make a difference. Participants will enjoy a full day of golf at a prestigious course, with opportunities to win prizes, participate in raffles, support a silent auction hosted by Palm Beach Autographs, and enjoy a post-tournament lunch at Walk-On's Sports Bistreaux immediately following the awards ceremony.
By participating in or supporting this tournament, you are not just playing a round of golf; you are contributing to the fight against PMM2-CDG and helping to improve the lives of those affected by this rare disorder. Join us on May 16th in making a difference, one swing at a time.