Families for Friedreich’s Ataxia

### Context Profile for Families for Friedreich’s Ataxia

1. **Organization Mission & Cause:**
   Families for Friedreich’s Ataxia (FFA) is dedicated to supporting individuals and families affected by Friedreich’s Ataxia (FA), a rare genetic disorder that affects the nervous system and the heart. Their mission is to raise awareness, fund research for treatments and a cure, and provide resources and support to those impacted by FA. They aim to create a community that fosters hope and connection among families facing the challenges of this condition.

2. **Type of Activities:**
   - **Fundraising Campaigns:** FFA organizes various fundraising events, including silent auctions (e.g., "Scramble FORE FA") where proceeds directly benefit their mission.
   - **Community Programs:** They provide resources and support for families affected by FA, including educational materials and networking opportunities.
   - **Awareness Campaigns:** FFA engages in activities to raise awareness about Friedreich’s Ataxia, including social media outreach and community events.

3. **Tone of Voice:**
   The tone of voice used by FFA is **friendly, supportive, and inspiring**. Their communications often express gratitude and encourage community involvement. The language is accessible and warm, aiming to foster a sense of belonging and hope among supporters and families affected by FA.

4. **Emoji Usage:**
   FFA uses emojis sparingly but effectively in their communications. For example, they use a 📣 emoji in their silent auction announcement to grab attention and convey excitement. The use of emojis appears to be occasional and purposeful, enhancing the friendly tone without overwhelming the message.

5. **Key Facts:**
   - **Founding Info:** Specific founding information is not detailed on the website, but the organization has been established to address the needs of families affected by FA.
   - **Scale:** The organization has engaged in multiple fundraising campaigns and community events, indicating an active involvement in outreach and support.
   - **Impact Metrics:** While specific metrics are not provided, the organization emphasizes the importance of community support and fundraising efforts to drive research and provide resources.
   - **Volunteer Info:** The website encourages community involvement and may provide opportunities for volunteers, although specific details are not highlighted.

6. **Writing Guidelines:**
   - **Use a Friendly and Supportive Tone:** Communications should reflect warmth and encouragement, making readers feel part of a community.
   - **Incorporate Gratitude:** Regularly express thanks to supporters and participants in events.
   - **Be Clear and Accessible:** Use straightforward language that is easy to understand, avoiding jargon.
   - **Engage with Calls to Action:** Encourage participation in events and fundraising efforts with clear and motivating calls to action.
   - **Occasional Emoji Use:** Use emojis to enhance messages, particularly in event announcements, but maintain professionalism in more formal communications.

This context profile provides a comprehensive overview of Families for Friedreich’s Ataxia, enabling AI assistants to craft tailored and effective content that aligns with the organization’s mission, tone, and activities.

5  Raffle Tickets

20 Raffle Tickets

60 Raffle Tickets

Raffle and Silent Auction will be before the band starts- please note if you are coming to enjoy the band there are no raffle or silent auction items.-Raffle tickets will also be available for purchase at the event-Your will receive your raffle tickets upon check in.  Just SOME of our amazing raffle prizes!-A Spa basket with  THREE 1 hour massage gift cards-A 36" Blackstone with hardcover and folding shelves-An Ugly Dog Distillery Basket with a tour-Many wonderful baskets from some of our favorite Chelsea Business owners-A date night basket with Common Grill gift card and tickets for the Purple Rose Theater-A Chelsea Favorites - with gift cars form Jets, Uptown Coney Island, and Grateful Crow  See you on March 1, 2025!

Hi <span data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip" fr-original-style style="background-color:rgb(248, 248, 255);border:1px solid rgb(191, 191, 255);border-radius:4px;color:rgb(42, 42, 196);padding:1px 8px;font-size:11px;display:inline-block;margin:0px;overflow-wrap:anywhere;user-select:none;box-sizing:inherit">First name , Thank you for you purchasing a raffle ticket and supporting our cause.  You will receive your tickets upon checking in at the event.   If you would like to contribute further, contact us directly to become a volunteer, or talk to your friends about our cause! Thank you once again for your support. Rachel Menkedickfamiliesforfa@gmail.com

Raffle and Silent Auction will be before the band starts- please note if you are coming to enjoy the band there are no raffle or silent auction items.-Raffle tickets will also be available for purchase at the event-Your will receive your raffle tickets upon check in.  Just SOME of our amazing raffle prizes!-A Spa basket with  THREE 1 hour massage gift cards-A 36" Blackstone with hardcover and folding shelves-An Ugly Dog Distillery Basket with a tour-Many wonderful baskets from some of our favorite Chelsea Business owners-A date night basket with Common Grill gift card and tickets for the Purple Rose Theater-A Chelsea Favorites - with gift cars form Jets, Uptown Coney Island, and Grateful Crow  See you on March 1, 2025!

Families for Friedreich’s Ataxia

Add a donation for Families for Friedreich’s Ataxia

Raffle Tickets: Night at Revel Run '25