Maryland Association for Parkinson Support, Inc.

### Context Profile for Maryland Association for Parkinson Support, Inc. (MAPS)

1. **Organization Mission & Cause:**
   The Maryland Association for Parkinson Support, Inc. (MAPS) is dedicated to improving the quality of life for individuals affected by Parkinson's disease and their families. Their mission is to provide support, education, and resources to enhance the lives of those living with Parkinson's. They aim to foster a community where individuals can share experiences, gain knowledge, and find encouragement in their journey with the disease.

2. **Type of Activities:**
   - **Educational Events:** MAPS organizes symposiums such as the "Rona Rosenbaum Living with Parkinson's Symposium," which features expert speakers and breakout sessions focused on various aspects of living with Parkinson's.
   - **Fundraising Campaigns:** They conduct fundraising activities, including silent auctions, to support their programs and initiatives.
   - **Community Programs:** MAPS offers various programs aimed at providing resources, support groups, and educational materials to individuals and families affected by Parkinson's.

3. **Tone of Voice:**
   The tone of the MAPS website and communications is friendly, supportive, and informative. They aim to create a welcoming environment for individuals affected by Parkinson's, using language that is accessible and encouraging. The content is often inspiring, focusing on community and resilience.

4. **Emoji Usage:**
   The website does not prominently feature emojis in its content. However, the tone remains warm and inviting without relying on emojis for expression. Future communications may consider using emojis sparingly to enhance engagement, particularly in social media or informal emails.

5. **Key Facts:**
   - **Founding Info:** The specific founding date is not mentioned on the website, but MAPS has established itself as a key resource for the Maryland Parkinson's community.
   - **Scale:** MAPS has conducted 13 email campaigns and has a variety of forms for event registrations and donations.
   - **Impact Metrics:** While specific metrics are not detailed, their events and community programs indicate a commitment to outreach and support.
   - **Volunteer Info:** The website does not provide explicit volunteer information, but community involvement is implied through their events and programs.

6. **Writing Guidelines:**
   - **Style:** Use clear, concise language that is easy to understand. Avoid jargon unless it is explained.
   - **Engagement:** Foster a sense of community by using inclusive language (e.g., "we," "together").
   - **Call to Action:** Encourage participation in events and support through donations or volunteering.
   - **Emotional Connection:** Highlight personal stories or testimonials when possible to create an emotional connection with the audience.

### Summary
This context profile provides a comprehensive overview of the Maryland Association for Parkinson Support, Inc., focusing on their mission, activities, tone, and communication style. It serves as a guide for creating personalized and effective content that resonates with their audience and supports their goals.

Bagged lunch by Milk and Honey includes chicken, egg, or tuna salad sandwich, cookie, chips, and pickle.

General Admission (Early Bird)

General Admission

*Ticket sales have closed for this event. If you would like to contact us, please email <a href="mailto:info@marylandparkinsonsupport.org">info@marylandparkinsonsupport.org</a> or call 443-470-0279. Join us for this exciting and informative event, featuring keynote speaker, Dr. Joseph Savitt. Dr. Savitt is a neurologist at the University of Maryland School of Medicine specializing in Parkinson's disease and Movement Disorders. He will present a brief overview of the on-going studies aimed at addressing the diagnosis, treatment and cure of Parkinson’s disease. Enjoy a delicious kosher lunch by Milk & Honey and the convenience of valet parking while networking with like-minded individuals who understand the challenges and triumphs of living with Parkinson's. Attend multiple breakout sessions – over nine sessions to choose from - all led by experts in their fields. And don’t forget about our silent auction, featuring premium travel, dining, and spa experiences. This will be both a fun and informative day!<h1>Schedule of Events</h1><h2>12:00-12:30: Silent Auction Opens</h2><h2>12:30-1:00: Intro, Keynote Speaker, and Lunch</h2>Dr. Joseph Savitt - The Latest in PD Diagnosis, Therapy and CureDr. Savitt will present a brief overview of the on-going studies aimed at addressing the diagnosis, treatment and cure of Parkinson Disease.<h2>1:00-1:15: Break and Silent Auction</h2><h2>1:15-1:45: Breakout #1 Options</h2>Dr. Howard Weiss - Commonly Misunderstood Behavioral Issues in Parkinson’s DiseaseParkinson disease is popularly referred to as a "movement disorder" because the disorder is diagnosed based on changes in the way people move.  However, Parkinson disease can sometimes also affect the way people think and behave. Some of these issues will be reviewed in this talk. Dr. Justin Martello - The Future of Dopamine AgonistsThe Future of Dopamine Agonists - Learn what is coming down the pipeline for the new generation of dopamine agonists and how they may be a much-needed improvement to the current versions”. (Refresher - “an agonist mimics the actions of a neurotransmitter or hormone to produce a response when it binds to a specific receptor in the brain”.) More about Dr. Martello: Parkinson’s and Movement Disorders Director, ChristianaCare Neurology Specialists, Associate Clinical Professor of Neurology, Sydney Kimmel Medical College, Thomas Jefferson University Judith Sachs - Close Contact for Couples® with PD: Giving Partners SupportCouples living with Parkinson's disease are often frustrated and disheartened as motor and non-motor symptoms progress over the years. This condition has often been called an "intruder" in the partnered relationship and can rob both individuals of their identity. The objective of this program is to assist couples, working together, by teaching partnered movement techniques and types of support, touch and communication strategies that may alleviate dissension between partners, improve mood, and prevent falls. In this pilot study, partners were given pre- and post-workshop evaluations to determine whether their cooperation in ADLs and communication techniques drew the couple closer and made them more compliant and adherent with provider-directed medication schedules, nutrition, and exercise.<h2>1:45-2:00: Break and Silent Auction</h2><h2>2:00-2:30: Breakout #2 Options</h2>Dr. Stephen Grill - Gait in PD: How Not to Fall for It!People with Parkinson’s can be more likely to experience issues with their gait and balance. Along with tremor, rigidity, slowness of movement and poor balance are common Parkinson’s motor symptoms. Sometimes Parkinson’s can cause a loss of reflexes needed to maintain an upright posture, causing some people with PD to be unstable while standing upright. Listen to Dr Stephen Grill, a neurologist with the Parkinson’s & Movement Disorders Center of Maryland and a member of Johns Hopkins Regional Physicians talk about the latest research findings related to normal gait, gait in PD and falls and how to prevent them. Patricia Wessels, PT and Ken Jones - PWR! Moves: New Research Supporting Exercise for Brain ChangeThis interactive session will introduce you to the Parkinsons Wellness Recovery program PWR! Moves® and present some of the latest scientific research about neuroplasticity and exercise for people with PD. Megan Stancill, PT - Parkinson's and Pelvic HealthUrinary incontinence is a common problem that affects people with and without Parkinson's disease. However, for the patient with Parkinson's there are unique challenges. Freezing while trying to get to the bathroom in time and difficulty coordinating pelvic floor musculature can make continence difficult. In this interactive session learn how to perform a Kegel (pelvic floor muscle contraction) as well as tips and tricks to get to the bathroom in plenty of time.<h2>2:30-2:45: Break and Silent Auction</h2><h2>2:45-3:15: Breakout #3 Options</h2>Dr. Paul Fishman, U of Maryland Medical System - Focused Ultrasound for Parkinson’s DiseaseDr. Fishman will discuss the therapeutic use of focused ultrasound in the brain for the treatment of Parkinson’s disease. This technology is a less invasive alternative to DBS. Jason Baker - Drumming Music as TherapyBaker works with the Johns Hopkins University School of Medicine - Music as Medicine team to design a music therapy drumming protocol and be the lead clinician for "The Impact of Group Drum-Based Music Therapy Intervention on Quality of Life and Motor Symptoms in Parkinson's Disease and Huntington's Disease." Mary Chaput - We Are Not Meant to Walk this Journey AloneCaregiver stress is real. Caregiver burnout is real. But we are not alone on this journey. Inviting and allowing others to walk with us can enhance the lives of our loved ones, as well as our own. Learn how to separate yourself from the disease and the role that has evolved from it and to identify and reach out to your support system.<h2>3:15-3:30: Closing Remarks and Auction Closes</h2>

Hello <span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip " style="background-color:rgb(248, 248, 255);border:1px solid rgb(191, 191, 255);border-radius:4px;color:rgb(42, 42, 196);display:inline-block;margin:0px;padding:1px 8px;font-size:11px;line-height:16px;overflow-wrap:anywhere;user-select:none;box-sizing:inherit">First name <span contenteditable="false" data-custom-variable="{{lastname}}" fr-original-class="fr-deletable styled-tag-chip " style="background-color:rgb(248, 248, 255);border:1px solid rgb(191, 191, 255);border-radius:4px;color:rgb(42, 42, 196);display:inline-block;margin:0px;padding:1px 8px;font-size:11px;line-height:16px;overflow-wrap:anywhere;user-select:none;box-sizing:inherit">Last name, Thank you for registering for our Living with Parkinson's 2023 Symposium on <span contenteditable="false" data-custom-variable="{{date-variable-33765f36-bf28-4d07-9745-f3da4525853f}}" fr-original-class="fr-deletable styled-tag-chip " style="background-color:rgb(248, 248, 255);border:1px solid rgb(191, 191, 255);border-radius:4px;color:rgb(42, 42, 196);display:inline-block;margin:0px;padding:1px 8px;font-size:11px;line-height:16px;overflow-wrap:anywhere;user-select:none;box-sizing:inherit">Date. We look forward to seeing you and will follow-up with additional details soon! Sincerely,Living with Parkinson's Symposium Committee <a href="https://www.marylandparkinsonsupport.org/">Maryland Association for Parkinson Support, Inc.</a>

*Ticket sales have closed for this event. If you would like to contact us, please email <a href="mailto:info@marylandparkinsonsupport.org">info@marylandparkinsonsupport.org</a> or call 443-470-0279. Join us for this exciting and informative event, featuring keynote speaker, Dr. Joseph Savitt. Dr. Savitt is a neurologist at the University of Maryland School of Medicine specializing in Parkinson's disease and Movement Disorders. He will present a brief overview of the on-going studies aimed at addressing the diagnosis, treatment and cure of Parkinson’s disease. Enjoy a delicious kosher lunch by Milk &amp; Honey and the convenience of valet parking while networking with like-minded individuals who understand the challenges and triumphs of living with Parkinson's. Attend multiple breakout sessions – over nine sessions to choose from - all led by experts in their fields. And don’t forget about our silent auction, featuring premium travel, dining, and spa experiences. This will be both a fun and informative day!Schedule of Events12:00-12:30: Silent Auction Opens12:30-1:00: Intro, Keynote Speaker, and LunchDr. Joseph Savitt - The Latest in PD Diagnosis, Therapy and CureDr. Savitt will present a brief overview of the on-going studies aimed at addressing the diagnosis, treatment and cure of Parkinson Disease.1:00-1:15: Break and Silent Auction1:15-1:45: Breakout #1 OptionsDr. Howard Weiss - Commonly Misunderstood Behavioral Issues in Parkinson’s DiseaseParkinson disease is popularly referred to as a "movement disorder" because the disorder is diagnosed based on changes in the way people move.  However, Parkinson disease can sometimes also affect the way people think and behave. Some of these issues will be reviewed in this talk. Dr. Justin Martello - The Future of Dopamine AgonistsThe Future of Dopamine Agonists - Learn what is coming down the pipeline for the new generation of dopamine agonists and how they may be a much-needed improvement to the current versions”. (Refresher - “an agonist mimics the actions of a neurotransmitter or hormone to produce a response when it binds to a specific receptor in the brain”.) More about Dr. Martello: Parkinson’s and Movement Disorders Director, ChristianaCare Neurology Specialists, Associate Clinical Professor of Neurology, Sydney Kimmel Medical College, Thomas Jefferson University Judith Sachs - Close Contact for Couples® with PD: Giving Partners SupportCouples living with Parkinson's disease are often frustrated and disheartened as motor and non-motor symptoms progress over the years. This condition has often been called an "intruder" in the partnered relationship and can rob both individuals of their identity. The objective of this program is to assist couples, working together, by teaching partnered movement techniques and types of support, touch and communication strategies that may alleviate dissension between partners, improve mood, and prevent falls. In this pilot study, partners were given pre- and post-workshop evaluations to determine whether their cooperation in ADLs and communication techniques drew the couple closer and made them more compliant and adherent with provider-directed medication schedules, nutrition, and exercise.1:45-2:00: Break and Silent Auction2:00-2:30: Breakout #2 OptionsDr. Stephen Grill - Gait in PD: How Not to Fall for It!People with Parkinson’s can be more likely to experience issues with their gait and balance. Along with tremor, rigidity, slowness of movement and poor balance are common Parkinson’s motor symptoms. Sometimes Parkinson’s can cause a loss of reflexes needed to maintain an upright posture, causing some people with PD to be unstable while standing upright. Listen to Dr Stephen Grill, a neurologist with the Parkinson’s &amp; Movement Disorders Center of Maryland and a member of Johns Hopkins Regional Physicians talk about the latest research findings related to normal gait, gait in PD and falls and how to prevent them. Patricia Wessels, PT and Ken Jones - PWR! Moves: New Research Supporting Exercise for Brain ChangeThis interactive session will introduce you to the Parkinsons Wellness Recovery program PWR! Moves® and present some of the latest scientific research about neuroplasticity and exercise for people with PD. Megan Stancill, PT - Parkinson's and Pelvic HealthUrinary incontinence is a common problem that affects people with and without Parkinson's disease. However, for the patient with Parkinson's there are unique challenges. Freezing while trying to get to the bathroom in time and difficulty coordinating pelvic floor musculature can make continence difficult. In this interactive session learn how to perform a Kegel (pelvic floor muscle contraction) as well as tips and tricks to get to the bathroom in plenty of time.2:30-2:45: Break and Silent Auction2:45-3:15: Breakout #3 OptionsDr. Paul Fishman, U of Maryland Medical System - Focused Ultrasound for Parkinson’s DiseaseDr. Fishman will discuss the therapeutic use of focused ultrasound in the brain for the treatment of Parkinson’s disease. This technology is a less invasive alternative to DBS. Jason Baker - Drumming Music as TherapyBaker works with the Johns Hopkins University School of Medicine - Music as Medicine team to design a music therapy drumming protocol and be the lead clinician for "The Impact of Group Drum-Based Music Therapy Intervention on Quality of Life and Motor Symptoms in Parkinson's Disease and Huntington's Disease." Mary Chaput - We Are Not Meant to Walk this Journey AloneCaregiver stress is real. Caregiver burnout is real. But we are not alone on this journey. Inviting and allowing others to walk with us can enhance the lives of our loved ones, as well as our own. Learn how to separate yourself from the disease and the role that has evolved from it and to identify and reach out to your support system.3:15-3:30: Closing Remarks and Auction Closes

Maryland Association for Parkinson Support, Inc.

Add a donation for Maryland Association for Parkinson Support, Inc.

Living with Parkinson's 2023 Symposium

3101 Fallstaff Rd

General Admission

$25