Alliance of PKU Families

### Context Profile for Alliance of PKU Families

1. **Organization Mission & Cause**:
   - The Alliance of PKU Families is dedicated to supporting individuals and families affected by Phenylketonuria (PKU) and allied disorders. Their mission is to provide education, resources, and community support to improve the quality of life for those impacted by these rare metabolic disorders. They aim to foster connections among families and advocate for better treatment options and awareness.

2. **Type of Activities**:
   - **Community Programs**: They organize events such as Camp Huber, which provides a supportive environment for campers with PKU and allied disorders.
   - **Fundraising Campaigns**: Initiatives like "Rare Grams" allow supporters to send personalized messages to campers, enhancing their experience at camp while raising funds for the organization.
   - **Educational Resources**: They offer information and resources for families navigating the challenges of PKU.
   - **Advocacy**: The organization engages in advocacy efforts to raise awareness about PKU and promote better healthcare solutions.

3. **Tone of Voice**:
   - The tone of the website and communications is **friendly, supportive, and inspiring**. The language is inclusive and encourages community involvement, emphasizing the importance of connection and support among families affected by PKU. The use of phrases like "make a camper feel rare and remarkable" conveys warmth and positivity.

4. **Emoji Usage**:
   - The organization utilizes emojis sparingly but effectively in their communications. For example, they use the sparkle emoji (✨) in the "Rare Grams" campaign to add a cheerful and celebratory tone. Emoji usage appears to enhance emotional engagement without overwhelming the text.

5. **Key Facts**:
   - **Founding Info**: Specific founding details were not available on the website.
   - **Scale**: The organization has a total of 12 forms and has conducted 52 email campaigns, indicating an active engagement with their community.
   - **Impact Metrics**: While specific metrics were not detailed, the emphasis on community support and engagement suggests a focus on building a strong network for families affected by PKU.
   - **Volunteer Info**: The website encourages volunteer involvement, highlighting the importance of community support in their initiatives.

6. **Writing Guidelines**:
   - **Style**: Use a friendly and supportive tone, focusing on community and connection. 
   - **Language**: Incorporate inclusive language that resonates with families and individuals affected by PKU. 
   - **Call to Action**: Use clear and encouraging calls to action, such as "Join us in supporting our rare community!" or "Make a camper feel rare and remarkable!"
   - **Emojis**: Use emojis to add warmth and positivity, but keep them relevant and minimal to maintain professionalism.

This context profile should guide the creation of personalized and engaging content for the Alliance of PKU Families, ensuring alignment with their mission, values, and communication style.

Camp Huber 2025 is located at Innabah Camp and Retreat Center (712 Pughtown Road, Spring City, PA 19475) June 6-9th 2025.

Vendor Table Camp Huber

PKU in the Park in Pennsylvania is located at Hershey Park August ____ 2025.

Vendor Table PKU in the Park - PA

PKU in the Park in Viriginia is located in Busch Gardens Williamsburg, VA October 11th 2025.

Vendor Table PKU in the Park - VA

Bundled Package - all 3 events

The Alliance of PKU Families proudly serves Maryland, Virginia, Pennsylvania, Washington, D.C., and West Virginia. Our mission is to advocate for the welfare of individuals affected by PKU, provide education on managing a restrictive diet and supplemental therapies, and foster a supportive community across our region. Last year, we hosted two highly successful events—Camp Huber and PKU in the Park—each drawing over 100 participants. This year, we’re excited to expand our efforts with a new event at Busch Gardens in Virginia, where we anticipate another strong turnout of 100 participants. A key component of our events is the vendor fair, which offers families the opportunity to explore a variety of formulas, medical foods, and resources. Your support as a vendor would be invaluable to the success of these events.We invite your organization to participate with a vendor table for the following fees: * Camp Huber - $3,000* PKU in the Park - PA - $2,000* PKU in the Park - VA - $1,000* All three events bundled package - $5,000 This fee secures your presence at the event and provides a unique opportunity to connect with the PKU community. We deeply appreciate your consideration and hope to see you at our events this year. Please let us know if you have any questions or require additional information.

Hi <span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip " fr-original-style style="background-color:rgb(248, 248, 255);border:1px solid rgb(191, 191, 255);border-radius:4px;color:rgb(42, 42, 196);padding:1px 8px;font-size:11px;display:inline-block;margin:0px;overflow-wrap:anywhere;user-select:none;box-sizing:inherit">First name , Thank you for paying for a vendor table for one of our 2025 events and supporting our mission! Your participation is a vital part of helping us promote the welfare of individuals affected by PKU, and we are so grateful for your involvement.  Please feel free to reach out with any further questions! We will be in contact with you soon with more details. Sincerely,Melissa Scobell TobiaszPresident Alliance of PKU Families<a href="mailto:melissa.apf.19@gmail.com" style="text-decoration-color:initial;user-select:auto;box-sizing:inherit">melissa.apf.19@gmail.com</a>410-961-0952

The Alliance of PKU Families proudly serves Maryland, Virginia, Pennsylvania, Washington, D.C., and West Virginia. Our mission is to advocate for the welfare of individuals affected by PKU, provide education on managing a restrictive diet and supplemental therapies, and foster a supportive community across our region. Last year, we hosted two highly successful events—Camp Huber and PKU in the Park—each drawing over 100 participants. This year, we’re excited to expand our efforts with a new event at Busch Gardens in Virginia, where we anticipate another strong turnout of 100 participants. A key component of our events is the vendor fair, which offers families the opportunity to explore a variety of formulas, medical foods, and resources. Your support as a vendor would be invaluable to the success of these events.We invite your organization to participate with a vendor table for the following fees: * Camp Huber - $3,000* PKU in the Park - PA - $2,000* PKU in the Park - VA - $1,000* All three events bundled package - $5,000 This fee secures your presence at the event and provides a unique opportunity to connect with the PKU community. We deeply appreciate your consideration and hope to see you at our events this year. Please let us know if you have any questions or require additional information.

Alliance of PKU Families

Alliance of PKU Families Vendor Fee 2025

Vendor Table Camp Huber

$3,000

Vendor Table PKU in the Park - PA

$2,000

Vendor Table PKU in the Park - VA

$1,000

Bundled Package - all 3 events

$5,000