Rare Sisters Batten Foundation Inc

**Context Profile for Rare Sisters Batten Foundation Inc**

1. **Organization Mission & Cause:**
   - The Rare Sisters Batten Foundation Inc is dedicated to raising awareness and funding for research into Batten disease, a rare and fatal neurodegenerative disorder that primarily affects children. Their mission is to support families affected by Batten disease and to promote research that could lead to a cure. The foundation is inspired by personal stories and aims to bring hope and resources to those battling this condition.

2. **Type of Activities:**
   - **Fundraising Campaigns:** The foundation actively engages in fundraising through various campaigns, including the "Rare Sisters Boutique," where purchases directly support their mission.
   - **Community Programs:** They organize events and initiatives to raise awareness about Batten disease and to support affected families.
   - **Online Shop:** The foundation operates an online shop as part of their fundraising efforts, emphasizing that each purchase contributes to their cause.

3. **Tone of Voice:**
   - The tone of the Rare Sisters Batten Foundation is friendly, inspiring, and supportive. Their communications emphasize hope and community, aiming to connect with families and supporters on a personal level. They maintain a professional yet approachable demeanor, ensuring that their message is both heartfelt and credible.

4. **Emoji Usage:**
   - The organization uses emojis sparingly but effectively to add warmth and engagement to their communications. For example, a shopping bag emoji (🛍️) is used in their boutique campaign to create a friendly and inviting atmosphere.

5. **Key Facts:**
   - **Founding Info:** The foundation was established to combat Batten disease, inspired by personal connections to the cause.
   - **Scale & Impact:** While specific impact metrics are not detailed, the foundation operates multiple campaigns and engages with a broad community through their online presence and events.
   - **Volunteer Info:** The website and campaigns suggest a reliance on community support and volunteer involvement, though specific volunteer opportunities are not detailed.

6. **Writing Guidelines:**
   - **Language Style:** Use a warm, supportive, and hopeful tone. Language should be inclusive and empathetic, focusing on community and shared goals.
   - **Content Structure:** Communications should be clear and concise, with a focus on the impact of donations and purchases. Highlight personal stories and the tangible benefits of supporting the foundation.
   - **Visuals & Emojis:** Incorporate visuals and emojis to enhance engagement, but keep them relevant and not overwhelming. Use imagery that resonates with family and community themes.
   - **Call to Action:** Encourage participation through clear calls to action, emphasizing the direct impact of contributions on the foundation's mission.

This context profile should guide AI assistants in generating content that aligns with the foundation's mission and communication style, ensuring messages are both impactful and authentic.

LXCL:Includes Meal for One Adult

Adult BBQ

LXCL:Includes Meal for One Child 12 &amp; Under

Child BBQ (12 & Under)

LXCL:Includes 2 Adult meals and 3 Child (12 and under) meals

Family 5 Pack

LXCL:<ul class="lxcl-ul"><li value="1" class="lxcl-listItem" dir="ltr">Title Event Sponsor</li><li value="2" class="lxcl-listItem" dir="ltr">Premier logo placement on all event materials</li><li value="3" class="lxcl-listItem" dir="ltr">Recognition on main event banner</li><li value="4" class="lxcl-listItem" dir="ltr">Featured social media and website recognition</li><li value="5" class="lxcl-listItem" dir="ltr">Verbal recognition during event announcements</li><li value="6" class="lxcl-listItem" dir="ltr">Opportunity to provide branded giveaway item</li><li value="7" class="lxcl-listItem" dir="ltr">10 event tickets</li></ul>

Pitmaster Sponsor

LXCL:<ul class="lxcl-ul"><li value="1" class="lxcl-listItem" dir="ltr">Large logo placement on event signage</li><li value="2" class="lxcl-listItem" dir="ltr">Featured social media recognition</li><li value="3" class="lxcl-listItem" dir="ltr">Recognition during event announcements</li><li value="4" class="lxcl-listItem" dir="ltr">Opportunity to provide promotional items</li><li value="5" class="lxcl-listItem" dir="ltr">6 event tickets</li></ul>

Smokehouse Sponsor

LXCL:<ul class="lxcl-ul"><li value="1" class="lxcl-listItem" dir="ltr">Logo on sponsor signage</li><li value="2" class="lxcl-listItem" dir="ltr">Recognition on social media and website</li><li value="3" class="lxcl-listItem" dir="ltr">4 event tickets</li></ul>

Brisket Sponsor

LXCL:<ul class="lxcl-ul"><li value="1" class="lxcl-listItem" dir="ltr">Logo on sponsor signage and website</li><li value="2" class="lxcl-listItem" dir="ltr">2 event tickets</li></ul>

Backyard BBQ sponsor

If you wish to mail a check, please send to:  Rare Sisters Batten Foundation, PO Box 746561, Arvada CO 80006

BBQ for BATTEN benefiting the Rare Sisters Batten Foundation is a great way to cap off your summer. &nbsp;Join us for delicious BBQ made with live, music, fun for the kids, silent auction, and community.

Hi <span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip" fr-original-style="" style="background-color: rgb(248, 248, 255); border: 1px solid rgb(191, 191, 255); border-radius: 4px; color: rgb(42, 42, 196); padding: 1px 8px; font-size: 11px; display: inline-block; margin: 0px; overflow-wrap: anywhere; user-select: none; box-sizing: inherit;">First name, Thank you for registering for BBQ for BATTEN 🔥 If you would like to contribute further, contact us to become a volunteer, or talk to your friends about our cause! Beth Friesfoundation@raresisters.org

BBQ for BATTEN benefiting the Rare Sisters Batten Foundation is a great way to cap off your summer.  Join us for delicious BBQ made with live, music, fun for the kids, silent auction, and community.

Rare Sisters Batten Foundation Inc

BBQ for Batten

R0100012

Adult BBQ

$25

Child BBQ (12 & Under)

$15

Family 5 Pack

$85

Pitmaster Sponsor

$3,000

Smokehouse Sponsor

$2,000

Brisket Sponsor

$1,000

Backyard BBQ sponsor

$500

Add a donation for Rare Sisters Batten Foundation Inc