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Pheo Para Alliance

General Admission

BI-Monthly Support Meeting Welcome to Our Monthly Support MeetingOur support meetings offer a place where you can connect and share your experience. Whether you want to share your journey, discuss daily challenges, or listen to the insights of others, you are welcome here. We are committed to maintaining a respectful, supportive, and compassionate environment for everyone. Meeting Details<ul fr-original-style="" style="box-sizing: inherit;"><li fr-original-style="" style="box-sizing: inherit;">Duration:&nbsp;60-90 minutes</li><li fr-original-style="" style="box-sizing: inherit;">Led by: Dedicated patient volunteers who understand your journey firsthand.</li></ul>

Hello &nbsp;<span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip" fr-original-style="" style="color: rgb(42, 42, 196); overflow-wrap: anywhere; user-select: none; background-color: rgb(248, 248, 255); border: 1px solid rgb(191, 191, 255); border-radius: 4px; margin: 0px; padding: 1px 8px; font-size: 11px; display: inline-block; box-sizing: inherit;">First name, <span fr-original-style="font-size:11pt; font-family:Arial,sans-serif; color:#000000; background-color:transparent;" style="font-size: 11pt; font-family: Arial, sans-serif; color: rgb(0, 0, 0); background-color: transparent; box-sizing: inherit;">We are looking forward to seeing you at the bi-monthly support meeting. Here is the link to join the meeting&nbsp; <a fr-original-style="" href="https://us02web.zoom.us/j/83234466394" rel="noopener noreferrer" style="text-decoration-color: currentcolor; user-select: auto; box-sizing: inherit;" target="_blank">https://us02web.zoom.us/j/83234466394</a>. <span fr-original-style="font-size:11pt; font-family:Arial,sans-serif; color:#000000; background-color:transparent;" style="font-size: 11pt; font-family: Arial, sans-serif; color: rgb(0, 0, 0); background-color: transparent; box-sizing: inherit;">This group provides peer support, connection, and shared experiences among patients and caregivers. Participants are encouraged to share their journeys, challenges, and insights in a respectful and supportive environment. <span fr-original-style="font-size:11pt; font-family:Arial,sans-serif; color:#000000; background-color:transparent;" style="font-size: 11pt; font-family: Arial, sans-serif; color: rgb(0, 0, 0); background-color: transparent; box-sizing: inherit;">The support group is not intended to provide medical, clinical, or professional advice. Facilitators can help guide you to learn more about PPGL through the Pheo Para Alliance website. <span fr-original-style="font-size:11pt; font-family:Arial,sans-serif; color:#000000; background-color:transparent;" style="font-size: 11pt; font-family: Arial, sans-serif; color: rgb(0, 0, 0); background-color: transparent; box-sizing: inherit;">To ensure a positive and welcoming environment for all participants, we ask that members:<ul fr-original-style="" style="box-sizing: inherit;"><li fr-original-style="font-size:11pt; font-family:Arial,sans-serif; color:#000000; background-color:transparent;" style="font-size: 11pt; font-family: Arial, sans-serif; color: rgb(0, 0, 0); background-color: transparent; box-sizing: inherit;"><span fr-original-style="font-size:11pt; font-family:Arial,sans-serif; color:#000000; background-color:transparent;" style="font-size: 11pt; font-family: Arial, sans-serif; color: rgb(0, 0, 0); background-color: transparent; box-sizing: inherit;">Treat all participants with respect and kindness.</li><li fr-original-style="font-size:11pt; font-family:Arial,sans-serif; color:#000000; background-color:transparent;" style="font-size: 11pt; font-family: Arial, sans-serif; color: rgb(0, 0, 0); background-color: transparent; box-sizing: inherit;"><span fr-original-style="font-size:11pt; font-family:Arial,sans-serif; color:#000000; background-color:transparent;" style="font-size: 11pt; font-family: Arial, sans-serif; color: rgb(0, 0, 0); background-color: transparent; box-sizing: inherit;">Allow others the opportunity to speak and share</li><li fr-original-style="font-size:11pt; font-family:Arial,sans-serif; color:#000000; background-color:transparent;" style="font-size: 11pt; font-family: Arial, sans-serif; color: rgb(0, 0, 0); background-color: transparent; box-sizing: inherit;"><span fr-original-style="font-size:11pt; font-family:Arial,sans-serif; color:#000000; background-color:transparent;" style="font-size: 11pt; font-family: Arial, sans-serif; color: rgb(0, 0, 0); background-color: transparent; box-sizing: inherit;">Recognize that experiences and perspectives may differ.</li><li fr-original-style="font-size:11pt; font-family:Arial,sans-serif; color:#000000; background-color:transparent;" style="font-size: 11pt; font-family: Arial, sans-serif; color: rgb(0, 0, 0); background-color: transparent; box-sizing: inherit;"><span fr-original-style="font-size:11pt; font-family:Arial,sans-serif; color:#000000; background-color:transparent;" style="font-size: 11pt; font-family: Arial, sans-serif; color: rgb(0, 0, 0); background-color: transparent; box-sizing: inherit;">Respect the privacy of others in the group.</li><li fr-original-style="font-size:11pt; font-family:Arial,sans-serif; color:#000000; background-color:transparent;" style="font-size: 11pt; font-family: Arial, sans-serif; color: rgb(0, 0, 0); background-color: transparent; box-sizing: inherit;"><span fr-original-style="font-size:11pt; font-family:Arial,sans-serif; color:#000000; background-color:transparent;" style="font-size: 11pt; font-family: Arial, sans-serif; color: rgb(0, 0, 0); background-color: transparent; box-sizing: inherit;">Do Not, share personal stories, names, or identifying details discussed in the group outside the meeting.</li></ul>Best,<div fr-original-style="color: rgb(34, 34, 34); font-family: Arial, Helvetica, sans-serif; font-size: small; text-align: start; background-color: rgb(255, 255, 255);" style="color: rgb(34, 34, 34); font-family: Arial, Helvetica, sans-serif; font-size: small; text-align: start; background-color: rgb(255, 255, 255); line-height: 1.5; width: 100%; box-sizing: inherit;">Jen Marchetti&nbsp;</div><div fr-original-style="color: rgb(34, 34, 34); font-family: Arial, Helvetica, sans-serif; font-size: small; text-align: start; background-color: rgb(255, 255, 255);" style="color: rgb(34, 34, 34); font-family: Arial, Helvetica, sans-serif; font-size: small; text-align: start; background-color: rgb(255, 255, 255); line-height: 1.5; width: 100%; box-sizing: inherit;">Program Manager |&nbsp;<a fr-original-style="color: rgb(17, 85, 204);" href="http://www.pheopara.org/" style="color: rgb(17, 85, 204); text-decoration-color: currentcolor; user-select: auto; box-sizing: inherit;" target="_blank">Pheo Para Alliance</a></div><div fr-original-style="color: rgb(34, 34, 34); font-family: Arial, Helvetica, sans-serif; font-size: small; text-align: start; background-color: rgb(255, 255, 255);" style="color: rgb(34, 34, 34); font-family: Arial, Helvetica, sans-serif; font-size: small; text-align: start; background-color: rgb(255, 255, 255); line-height: 1.5; width: 100%; box-sizing: inherit;"><a fr-original-style="color: rgb(17, 85, 204);" href="mailto:jen@pheopar.org" style="color: rgb(17, 85, 204); text-decoration-color: currentcolor; user-select: auto; box-sizing: inherit;" target="_blank">jen@pheopar.org</a></div>

BI-Monthly Support Meeting Welcome to Our Monthly Support MeetingOur support meetings offer a place where you can connect and share your experience. Whether you want to share your journey, discuss daily challenges, or listen to the insights of others, you are welcome here. We are committed to maintaining a respectful, supportive, and compassionate environment for everyone. Meeting Details<ul><li>Duration: 60-90 minutes</li><li>Led by: Dedicated patient volunteers who understand your journey firsthand.</li></ul>

Pheo Para Alliance

Bi-Monthly Support Meeting

General Admission

Free