Pheo Para Alliance

**Context Profile for Pheo Para Alliance**

1. **Organization Mission & Cause:**
   - The Pheo Para Alliance is dedicated to supporting individuals affected by pheochromocytoma and paraganglioma, which are rare neuroendocrine tumors. Their mission is to provide education, support, and advocacy for patients and families, while also advancing research and awareness to find a cure for these conditions. They aim to ensure that no patient faces these challenges alone.

2. **Type of Activities:**
   - **Support and Education:** The organization offers resources and educational materials to patients and caregivers navigating these complex diagnoses.
   - **Community Connection:** They facilitate community events and connections to help those affected find support and share experiences.
   - **Research and Collaboration:** The Pheo Para Alliance actively works to advance research and foster collaboration among clinicians to improve treatment and care.
   - **Centers of Excellence:** They focus on expanding access to specialized care by growing their network of Centers of Excellence.
   - **Fundraising Campaigns:** Regular fundraising initiatives, such as the "Move Hope Forward" campaign, aim to raise funds for research and patient support.

3. **Tone of Voice:**
   - The tone is professional yet compassionate, aiming to inspire hope and convey urgency in their mission. Communications are supportive and informative, emphasizing community and collaboration.

4. **Emoji Usage:**
   - The organization does not prominently use emojis in their formal communications, maintaining a more professional and straightforward presentation.

5. **Key Facts:**
   - **Founding Info:** Specific founding details are not prominently featured on the website.
   - **Scale and Impact:** The organization has a focused scope with targeted campaigns and educational outreach. They manage a small number of forms and email campaigns, indicating a tailored approach to engagement.
   - **Volunteer Info:** While specific volunteer details are not highlighted, the emphasis on community suggests opportunities for involvement in various capacities.

6. **Writing Guidelines:**
   - **Clarity and Compassion:** Ensure all communications are clear, compassionate, and supportive, reflecting the organization's commitment to patient care and community.
   - **Professional and Informative:** Maintain a professional tone that is also informative, providing valuable insights and updates on research and support initiatives.
   - **Engagement and Urgency:** Use language that encourages engagement and conveys the urgency of their mission, particularly in fundraising and advocacy efforts.
   - **Avoidance of Emojis:** Stick to a formal style without the use of emojis to maintain the organization's professional image.

This context profile should guide AI assistants in crafting content that aligns with the Pheo Para Alliance's mission, tone, and communication style, ensuring it resonates with their audience and supports their goals effectively.

1 Ticket

5 Tickets

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15 Tickets

To kick-off our new Caregiver Resource page, we are raffling off 5 signed copies of Bethel Stevens&#39; book, Not a Cinderella Story: A Powerful Story of Love, Loss, and Perseverance When Life Goes Off Script. Bethel will very kindly be tailoring her signature to the recipient of her book, so make sure to get your raffle tickets for a chance at a personalized signature! Learn more about Bethel&#39;s powerful memoir and our new Caregiver Resource page <a fr-original-style="" href="https://pheopara.org/caregivers" rel="noopener noreferrer" style="text-decoration-color: initial; user-select: auto; box-sizing: inherit;" target="_blank">here</a>! Your participation in our raffle is not only a chance to win an incredible prize--it also serves as a vital role in supporting our mission. Each ticket you purchase directly contributes to our efforts in making a meaningful impact in our community.&nbsp; Thank you for your support. Every contribution, big or small, makes a significant difference! ✨

Hi <span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip" fr-original-style="" style="background-color: rgb(248, 248, 255); border: 1px solid rgb(191, 191, 255); border-radius: 4px; color: rgb(42, 42, 196); padding: 1px 8px; font-size: 11px; display: inline-block; margin: 0px; overflow-wrap: anywhere; user-select: none; box-sizing: inherit;">First name, Thank you so much for purchasing a raffle ticket and supporting our cause! Your purchase and generosity greatly helps in launching our mission to new heights. 🚀 We will be drawing winners on Monday,&nbsp;February 23rd at 11am. You can continue to purchase tickets until that time.&nbsp; Thank you again! Phearlessly Yours,&nbsp;<div fr-original-style="color: rgb(34, 34, 34); font-family: Arial, Helvetica, sans-serif; font-size: small; font-style: normal; font-variant-ligatures: normal; font-variant-caps: normal; font-weight: 400; letter-spacing: normal; orphans: 2; text-align: start; text-indent: 0px; text-transform: none; widows: 2; word-spacing: 0px; -webkit-text-stroke-width: 0px; white-space: normal; background-color: rgb(255, 255, 255); text-decoration-thickness: initial; text-decoration-style: initial; text-decoration-color: initial;" style="color: rgb(34, 34, 34); font-family: Arial, Helvetica, sans-serif; font-size: small; font-style: normal; font-variant-ligatures: normal; font-variant-caps: normal; font-weight: 400; letter-spacing: normal; orphans: 2; text-align: start; text-indent: 0px; text-transform: none; widows: 2; word-spacing: 0px; -webkit-text-stroke-width: 0px; white-space: normal; background-color: rgb(255, 255, 255); text-decoration-thickness: initial; text-decoration-style: initial; text-decoration-color: initial; line-height: 1.5; box-sizing: inherit;"> </div> Cindy ChenProgram Coordinator |&nbsp;Pheo Para Alliance<a fr-original-style="" href="mailto:cindy@pheopara.org" rel="noopener noreferrer" style="text-decoration-color: initial; user-select: auto; box-sizing: inherit;" target="_blank">cindy@pheopara.org</a> <div fr-original-style="color: rgb(34, 34, 34); font-family: Arial, Helvetica, sans-serif; font-size: small; font-style: normal; font-variant-ligatures: normal; font-variant-caps: normal; font-weight: 400; letter-spacing: normal; orphans: 2; text-align: start; text-indent: 0px; text-transform: none; widows: 2; word-spacing: 0px; -webkit-text-stroke-width: 0px; white-space: normal; background-color: rgb(255, 255, 255); text-decoration-thickness: initial; text-decoration-style: initial; text-decoration-color: initial;" style="color: rgb(34, 34, 34); font-family: Arial, Helvetica, sans-serif; font-size: small; font-style: normal; font-variant-ligatures: normal; font-variant-caps: normal; font-weight: 400; letter-spacing: normal; orphans: 2; text-align: start; text-indent: 0px; text-transform: none; widows: 2; word-spacing: 0px; -webkit-text-stroke-width: 0px; white-space: normal; background-color: rgb(255, 255, 255); text-decoration-thickness: initial; text-decoration-style: initial; text-decoration-color: initial; line-height: 1.5; box-sizing: inherit;"> </div><div fr-original-style="color: rgb(34, 34, 34); font-family: Arial, Helvetica, sans-serif; font-size: small; font-style: normal; font-variant-ligatures: normal; font-variant-caps: normal; font-weight: 400; letter-spacing: normal; orphans: 2; text-align: start; text-indent: 0px; text-transform: none; widows: 2; word-spacing: 0px; -webkit-text-stroke-width: 0px; white-space: normal; background-color: rgb(255, 255, 255); text-decoration-thickness: initial; text-decoration-style: initial; text-decoration-color: initial;" style="color: rgb(34, 34, 34); font-family: Arial, Helvetica, sans-serif; font-size: small; font-style: normal; font-variant-ligatures: normal; font-variant-caps: normal; font-weight: 400; letter-spacing: normal; orphans: 2; text-align: start; text-indent: 0px; text-transform: none; widows: 2; word-spacing: 0px; -webkit-text-stroke-width: 0px; white-space: normal; background-color: rgb(255, 255, 255); text-decoration-thickness: initial; text-decoration-style: initial; text-decoration-color: initial; line-height: 1.5; box-sizing: inherit;"><img width="200" height="45" src="https://res.cloudinary.com/hxn9dbuhd/image/upload/v1770404232/wysiwyg/i7xmylspizb5qj6xoiob.png" fr-original-style="" fr-original-class="fr-draggable" style="cursor: pointer; padding: 0px 1px; user-select: none; position: relative; max-width: 100%; box-sizing: inherit;"></div>

To kick-off our new Caregiver Resource page, we are raffling off 5 signed copies of Bethel Stevens' book, Not a Cinderella Story: A Powerful Story of Love, Loss, and Perseverance When Life Goes Off Script. Bethel will very kindly be tailoring her signature to the recipient of her book, so make sure to get your raffle tickets for a chance at a personalized signature! Learn more about Bethel's powerful memoir and our new Caregiver Resource page <a href="https://pheopara.org/caregivers" target="_blank">here</a>! Your participation in our raffle is not only a chance to win an incredible prize--it also serves as a vital role in supporting our mission. Each ticket you purchase directly contributes to our efforts in making a meaningful impact in our community.  Thank you for your support. Every contribution, big or small, makes a significant difference! ✨

Pheo Para Alliance

Caregiver Resource Page Kick-Off: Signed Copies of Bethel Stevens' Book!

1 Ticket

$10

5 Tickets

$45

10 Tickets

$85

15 Tickets

$125

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