CDG CARE

### Context Profile for CDG CARE

1. **Organization Mission & Cause**:
   - **Mission**: CDG CARE is dedicated to improving the lives of individuals affected by Congenital Disorders of Glycosylation (CDG) through advocacy, education, and support. Their goal is to foster a community that enhances awareness, understanding, and research into CDG.
   - **Cause**: CDG is a group of rare genetic disorders that affect the glycosylation process in the body, leading to various health challenges. CDG CARE aims to provide resources and support for families and individuals impacted by these disorders.

2. **Type of Activities**:
   - **Conferences**: They organize scientific and family conferences, such as the upcoming "Conferencia Científica y Familiar CDG 2026," which gathers researchers, clinicians, and families to share knowledge and foster collaboration.
   - **Fundraising Events**: CDG CARE hosts fundraising galas and campaigns to support their mission and raise awareness.
   - **Community Programs**: They provide educational resources and support networks for families affected by CDG, facilitating connections between families and researchers.

3. **Tone of Voice**:
   - The tone of voice is **friendly, supportive, and inspiring**. Communications are designed to be welcoming and inclusive, encouraging participation and collaboration among families, researchers, and advocates.
   - The language is accessible, aiming to engage a diverse audience while maintaining professionalism.

4. **Emoji Usage**:
   - The website and email communications do not prominently feature emojis. The tone remains professional and straightforward, focusing on clear communication rather than informal elements like emojis.

5. **Key Facts**:
   - **Founding Info**: Specific founding details were not found on the website; further research may be needed.
   - **Scale**: CDG CARE has organized multiple events, including the upcoming 2026 conference expected to attract over 300 attendees globally.
   - **Impact Metrics**: While specific metrics were not detailed, the organization emphasizes community building and advancing research in CDG.
   - **Volunteer Info**: Information on volunteers is not explicitly mentioned, but the community-oriented approach suggests opportunities for involvement.

6. **Writing Guidelines**:
   - **Style**: Use clear, concise language that is accessible to a broad audience. Avoid jargon unless it is explained.
   - **Engagement**: Write in a friendly and inviting tone, encouraging community involvement and support.
   - **Call to Action**: Include clear calls to action in communications, whether for event participation, donations, or sharing information.
   - **Personalization**: Utilize personalization techniques in emails (e.g., addressing recipients by name) to foster a sense of connection.

This context profile provides a comprehensive understanding of CDG CARE, enabling AI assistants to generate tailored and effective content that aligns with the organization's mission and values.

General Admission for March 1-3, 2024.

*Please note - Zeffy is a FREE platform we are honored to use for this year's event tickets. At checkout, you are able to adjust the pre-selected Contribution option to a level of your choice. A Contribution is not required for ticket transactions.

General Admission

CDG Parent/Caregiver/Family Member

CDG Patient / Sibling

*Please note - Zeffy is a FREE platform we are honored to use for this year's event tickets. At checkout, you are able to adjust the pre-selected Contribution option to a level of your choice. A Contribution is not required for ticket transactions.

General Admission (Day 1)

General Admission (Day 2)

General Admission (Day 3)

Admission for 3 days, March 1-3, 2024. 

*Please note - Zeffy is a FREE platform we are honored to use for this year's event tickets. At checkout, you are able to adjust the pre-selected Contribution option to a level of your choice. A Contribution is not required for ticket transactions.

Postdoctoral Associate

Hello <span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip " style="background-color:rgb(248, 248, 255);border:1px solid rgb(191, 191, 255);border-radius:4px;color:rgb(42, 42, 196);display:inline-block;margin:0px;padding:1px 8px;font-size:11px;line-height:16px;overflow-wrap:anywhere;user-select:none;box-sizing:inherit">First name <span contenteditable="false" data-custom-variable="{{lastname}}" fr-original-class="fr-deletable styled-tag-chip " style="background-color:rgb(248, 248, 255);border:1px solid rgb(191, 191, 255);border-radius:4px;color:rgb(42, 42, 196);display:inline-block;margin:0px;padding:1px 8px;font-size:11px;line-height:16px;overflow-wrap:anywhere;user-select:none;box-sizing:inherit">Last name, Thank you for your registration to attend the upcoming CDG Scientific & Family Conference  📭   at 1404 Vacation Rd, San Diego, CA 92109, USA⌚   On <span contenteditable="false" data-custom-variable="{{date-variable-330ebdfc-7428-4345-bd08-3dc4ee23fb25}}" fr-original-class="fr-deletable styled-tag-chip " style="background-color:rgb(248, 248, 255);border:1px solid rgb(191, 191, 255);border-radius:4px;color:rgb(42, 42, 196);display:inline-block;margin:0px;padding:1px 8px;font-size:11px;line-height:16px;overflow-wrap:anywhere;user-select:none;box-sizing:inherit">Date As a reminder, we encourage you to visit our Event Page to review the meeting agenda, learn about poster session abstract submissions, and make your hotel and additional travel reservations. Please let us know if you have any questions and we look forward to seeing you in San Diego soon! Kind regards. Andrea MillerPresident, CDG CARE

CDG CARE

Add a donation for CDG CARE

2024 Sanford Children's Health Research Center Symposium & CDG CARE Scientific and Family Conference

1404 Vacation Rd

General Admission

$350

CDG Parent/Caregiver/Family Member

$350

CDG Patient / Sibling

Free

General Admission (Day 1)

$125

General Admission (Day 2)

$125

General Admission (Day 3)

$125

Postdoctoral Associate

$150