Coffin-Siris Syndrome Foundation

### Context Profile for Coffin-Siris Syndrome Foundation

1. **Organization Mission & Cause**:
   - The Coffin-Siris Syndrome Foundation (CSSF) was established in 2017 with the mission to connect, support, and inform the Coffin-Siris Syndrome (CSS) community while promoting related research. The foundation aims to raise awareness about CSS and provide resources and support for individuals and families affected by the syndrome.

2. **Type of Activities**:
   - **Events**: The CSSF organizes various events, including the annual "CSS Walk, Run, Roll," which allows participants to engage in the event from anywhere during a designated weekend. They also host monthly virtual Q&A sessions with medical advisors, parent and sibling support groups, and an annual conference that attracts around 400 community members.
   - **Fundraising Campaigns**: The foundation runs multiple fundraising initiatives, such as the "Wild About Inclusion" fundraiser, which supports their programs and community outreach.
   - **Community Programs**: CSSF provides information packets to newly diagnosed families, sends care packages to hospitalized families, and offers AAC devices through Emily's Fund. They also maintain a clinical registry to support research efforts.

3. **Tone of Voice**:
   - The tone of the CSSF's communications is **friendly**, **supportive**, and **inspiring**. The language is accessible and warm, aiming to foster a sense of community and encouragement among families and individuals affected by CSS. The use of phrases like "Thank you from the bottom of our wild hearts!" exemplifies their heartfelt and engaging tone.

4. **Emoji Usage**:
   - The CSSF does not prominently feature emojis in their communications. Their written content maintains a professional yet approachable style without the use of emojis, focusing instead on clear and heartfelt messaging.

5. **Key Facts**:
   - **Founding Info**: Established in 2017.
   - **Scale**: The organization has a total of 144 forms and has conducted 28 email campaigns.
   - **Impact Metrics**: The annual conference attracted 400 attendees, and they provide various support services and resources to the CSS community.
   - **Volunteer Info**: The foundation includes a board of young adult self-advocates with CSS, indicating active involvement from the community.

6. **Writing Guidelines**:
   - **Style**: Use clear, concise language that is warm and welcoming. Avoid jargon and ensure that the content is accessible to a broad audience, including families and caregivers.
   - **Structure**: Use headings and bullet points to organize information effectively, making it easy for readers to navigate.
   - **Engagement**: Incorporate a friendly and encouraging tone, emphasizing community support and the positive impact of contributions.
   - **Calls to Action**: Clearly state how readers can get involved, whether through donations, participation in events, or sharing information about CSS.

This context profile provides a comprehensive overview of the Coffin-Siris Syndrome Foundation, enabling AI assistants to generate personalized and relevant content that aligns with the organization's mission and values.

LXCL:Brunch buffet.

Brunch Ticket Ages 10 to Adult

Brunch Ages 3-9

Brunch Ages 0-3

Join us for Brunch at Chef Mickey&#39;s on Saturday, July 26th at 12:25pm. This breakfast buffet will be held in a private accessible space at Chef Mickey&#39;s for our CSS community attending the conference this year. &nbsp;These tickets first come, first serve, with no refunds available. There is limited availability for this event. This ticket is your reservation, and a ticket is required to attend. Registration will close immediately once we hit capacity. Prepare for a Character-filled, all-you-care-to-enjoy breakfast buffet at Disney&rsquo;s Contemporary Resort. &nbsp;&nbsp; Experience Character Dining and a delicious buffet meal in a bright, happy space. As the monorail whizzes by, soak up the expansive views of Bay Lake and behold the stunning 90-foot-high mural by Disney Legend Mary Blair that overlooks the festive eatery. Each table will receive a special, autographed card keepsake from Mickey Mouse and his friends. Throughout the dining experience, Mickey Mouse and some of his favorite pals will make surprise appearances in each of the dining rooms. See them move throughout the restaurant, waving hello as rollicking music fills the air. The CSS Foundation is offering discounted tickets to the event. The cost per guest ages 10-adult is $35, and the cost for children ages 3-9 is $25. If you&#39;d like to make an additional donation to support the Foundation&#39;s cost of subsidizing these tickets, we would really appreciate your generosity. Children ages 0-3 are free. &nbsp; While your kiddos ages 0&ndash;3 are free, they still require a ticket to have an accurate headcount for the venue and our reservation. Delight in a Bountiful Breakfast. Start the day off right with a selection of some of your favorite breakfast dishes. Drinks including juice, milk, and Coke products are included. A la carte beverages are available at an additional cost. Highlights include:<ul fr-original-style="margin: 0px 0px 20px 20px; padding: 0px; border: 0px; font-style: normal; font-variant-ligatures: normal; font-variant-caps: normal; font-variant-numeric: inherit; font-variant-east-asian: inherit; font-variant-alternates: inherit; font-variant-position: inherit; font-variant-emoji: inherit; font-weight: 400; font-stretch: inherit; font-size: 18px; line-height: 26px; font-family: InspireTWDC, Arial, sans-serif, Arial, sans-serif; font-optical-sizing: inherit; font-size-adjust: inherit; font-kerning: inherit; font-feature-settings: inherit; font-variation-settings: inherit; font-language-override: inherit; vertical-align: baseline; list-style: none; letter-spacing: 0.2px; color: rgb(0, 35, 60); orphans: 2; text-align: start; text-indent: 0px; text-transform: none; widows: 2; word-spacing: 0px; -webkit-text-stroke-width: 0px; white-space: normal; background-color: rgb(255, 255, 255); text-decoration-thickness: initial; text-decoration-style: initial; text-decoration-color: initial;" style="margin: 0px 0px 20px 20px; padding: 0px; border: 0px; font-style: normal; font-variant-ligatures: normal; font-variant-caps: normal; font-variant-numeric: inherit; font-variant-east-asian: inherit; font-variant-alternates: inherit; font-variant-position: inherit; font-variant-emoji: inherit; font-weight: 400; font-stretch: inherit; font-size: 18px; line-height: 26px; font-family: InspireTWDC, Arial, sans-serif, Arial, sans-serif; font-optical-sizing: inherit; font-size-adjust: inherit; font-kerning: inherit; font-feature-settings: inherit; font-variation-settings: inherit; font-language-override: inherit; vertical-align: baseline; list-style: none; letter-spacing: 0.2px; color: rgb(0, 35, 60); orphans: 2; text-align: start; text-indent: 0px; text-transform: none; widows: 2; word-spacing: 0px; -webkit-text-stroke-width: 0px; white-space: normal; background-color: rgb(255, 255, 255); text-decoration-thickness: initial; text-decoration-style: initial; text-decoration-color: initial; box-sizing: inherit;"><li fr-original-style="margin: 0px; padding: 0px; border: 0px; font: inherit; vertical-align: baseline; display: list-item; list-style-type: disc; text-align: left;" style="margin: 0px; padding: 0px; border: 0px; font: inherit; vertical-align: baseline; display: list-item; list-style-type: disc; text-align: left; box-sizing: inherit;">Sweet and Savory Breads</li><li fr-original-style="margin: 0px; padding: 0px; border: 0px; font: inherit; vertical-align: baseline; display: list-item; list-style-type: disc; text-align: left;" style="margin: 0px; padding: 0px; border: 0px; font: inherit; vertical-align: baseline; display: list-item; list-style-type: disc; text-align: left; box-sizing: inherit;">Scrambled Eggs</li><li fr-original-style="margin: 0px; padding: 0px; border: 0px; font: inherit; vertical-align: baseline; display: list-item; list-style-type: disc; text-align: left;" style="margin: 0px; padding: 0px; border: 0px; font: inherit; vertical-align: baseline; display: list-item; list-style-type: disc; text-align: left; box-sizing: inherit;">Smoked Bacon</li><li fr-original-style="margin: 0px; padding: 0px; border: 0px; font: inherit; vertical-align: baseline; display: list-item; list-style-type: disc; text-align: left;" style="margin: 0px; padding: 0px; border: 0px; font: inherit; vertical-align: baseline; display: list-item; list-style-type: disc; text-align: left; box-sizing: inherit;">Sliced Honey Ham and Corn Beef Hash</li><li fr-original-style="margin: 0px; padding: 0px; border: 0px; font: inherit; vertical-align: baseline; display: list-item; list-style-type: disc; text-align: left;" style="margin: 0px; padding: 0px; border: 0px; font: inherit; vertical-align: baseline; display: list-item; list-style-type: disc; text-align: left; box-sizing: inherit;">Mickey Waffles</li></ul>Plus, enjoy a rotating collection of Chef Mickey&#39;s Signature offerings, such as:<ul fr-original-style="margin: 0px 0px 20px 20px; padding: 0px; border: 0px; font-style: normal; font-variant-ligatures: normal; font-variant-caps: normal; font-variant-numeric: inherit; font-variant-east-asian: inherit; font-variant-alternates: inherit; font-variant-position: inherit; font-variant-emoji: inherit; font-weight: 400; font-stretch: inherit; font-size: 18px; line-height: 26px; font-family: InspireTWDC, Arial, sans-serif, Arial, sans-serif; font-optical-sizing: inherit; font-size-adjust: inherit; font-kerning: inherit; font-feature-settings: inherit; font-variation-settings: inherit; font-language-override: inherit; vertical-align: baseline; list-style: none; letter-spacing: 0.2px; color: rgb(0, 35, 60); orphans: 2; text-align: start; text-indent: 0px; text-transform: none; widows: 2; word-spacing: 0px; -webkit-text-stroke-width: 0px; white-space: normal; background-color: rgb(255, 255, 255); text-decoration-thickness: initial; text-decoration-style: initial; text-decoration-color: initial;" style="margin: 0px 0px 20px 20px; padding: 0px; border: 0px; font-style: normal; font-variant-ligatures: normal; font-variant-caps: normal; font-variant-numeric: inherit; font-variant-east-asian: inherit; font-variant-alternates: inherit; font-variant-position: inherit; font-variant-emoji: inherit; font-weight: 400; font-stretch: inherit; font-size: 18px; line-height: 26px; font-family: InspireTWDC, Arial, sans-serif, Arial, sans-serif; font-optical-sizing: inherit; font-size-adjust: inherit; font-kerning: inherit; font-feature-settings: inherit; font-variation-settings: inherit; font-language-override: inherit; vertical-align: baseline; list-style: none; letter-spacing: 0.2px; color: rgb(0, 35, 60); orphans: 2; text-align: start; text-indent: 0px; text-transform: none; widows: 2; word-spacing: 0px; -webkit-text-stroke-width: 0px; white-space: normal; background-color: rgb(255, 255, 255); text-decoration-thickness: initial; text-decoration-style: initial; text-decoration-color: initial; box-sizing: inherit;"><li fr-original-style="margin: 0px; padding: 0px; border: 0px; font: inherit; vertical-align: baseline; display: list-item; list-style-type: disc; text-align: left;" style="margin: 0px; padding: 0px; border: 0px; font: inherit; vertical-align: baseline; display: list-item; list-style-type: disc; text-align: left; box-sizing: inherit;">Buttermilk Biscuits and Gravy</li><li fr-original-style="margin: 0px; padding: 0px; border: 0px; font: inherit; vertical-align: baseline; display: list-item; list-style-type: disc; text-align: left;" style="margin: 0px; padding: 0px; border: 0px; font: inherit; vertical-align: baseline; display: list-item; list-style-type: disc; text-align: left; box-sizing: inherit;">Warm Cinnamon Rolls</li><li fr-original-style="margin: 0px; padding: 0px; border: 0px; font: inherit; vertical-align: baseline; display: list-item; list-style-type: disc; text-align: left;" style="margin: 0px; padding: 0px; border: 0px; font: inherit; vertical-align: baseline; display: list-item; list-style-type: disc; text-align: left; box-sizing: inherit;">Ham and Cheese Omelet</li><li fr-original-style="margin: 0px; padding: 0px; border: 0px; font: inherit; vertical-align: baseline; display: list-item; list-style-type: disc; text-align: left;" style="margin: 0px; padding: 0px; border: 0px; font: inherit; vertical-align: baseline; display: list-item; list-style-type: disc; text-align: left; box-sizing: inherit;">Vegetable Omelet</li></ul>Visit the Chef Mickey website to learn more. https://disneyworld.disney.go.com/dining/contemporary-resort/chef-mickeys/?CMP=OKC-90001369_GM_WDW_dining_chefmickeys_NA You are responsible for tips, ala carte beverages, and transportation to/from the event. Chef Mickey&#39;s is a 20 minute drive from the Drury. If you chose to take the Drury shuttle, to the Transportation and Ticket Center and then ride the Monorail to Contemporary Resort, there are a couple of security check points and metal detectors, so plan ahead. This option can take up to an hour. The Drury Shuttle schedule is released a few weeks ahead of the event.&nbsp; Questions? Email us conference@coffinsiris.org

Hi <span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip" fr-original-style="" style="background-color: rgb(248, 248, 255); border: 1px solid rgb(191, 191, 255); border-radius: 4px; color: rgb(42, 42, 196); padding: 1px 8px; font-size: 11px; display: inline-block; margin: 0px; overflow-wrap: anywhere; user-select: none; box-sizing: inherit;">First name, We are looking forward to seeing you at Chef Mickey&#39;s on Saturday July 26 at 12:25pm.&nbsp; Read more about Chef Mickey&#39;s on their website,&nbsp; Gaylen Mohregaylen@coffinsiris.org

Join us for Brunch at Chef Mickey's on Saturday, July 26th at 12:25pm. This breakfast buffet will be held in a private accessible space at Chef Mickey's for our CSS community attending the conference this year.  These tickets first come, first serve, with no refunds available. There is limited availability for this event. This ticket is your reservation, and a ticket is required to attend. Registration will close immediately once we hit capacity. Prepare for a Character-filled, all-you-care-to-enjoy breakfast buffet at Disney’s Contemporary Resort.    Experience Character Dining and a delicious buffet meal in a bright, happy space. As the monorail whizzes by, soak up the expansive views of Bay Lake and behold the stunning 90-foot-high mural by Disney Legend Mary Blair that overlooks the festive eatery. Each table will receive a special, autographed card keepsake from Mickey Mouse and his friends. Throughout the dining experience, Mickey Mouse and some of his favorite pals will make surprise appearances in each of the dining rooms. See them move throughout the restaurant, waving hello as rollicking music fills the air. The CSS Foundation is offering discounted tickets to the event. The cost per guest ages 10-adult is $35, and the cost for children ages 3-9 is $25. If you'd like to make an additional donation to support the Foundation's cost of subsidizing these tickets, we would really appreciate your generosity. Children ages 0-3 are free.   While your kiddos ages 0–3 are free, they still require a ticket to have an accurate headcount for the venue and our reservation. Delight in a Bountiful Breakfast. Start the day off right with a selection of some of your favorite breakfast dishes. Drinks including juice, milk, and Coke products are included. A la carte beverages are available at an additional cost. Highlights include:<ul><li>Sweet and Savory Breads</li><li>Scrambled Eggs</li><li>Smoked Bacon</li><li>Sliced Honey Ham and Corn Beef Hash</li><li>Mickey Waffles</li></ul>Plus, enjoy a rotating collection of Chef Mickey's Signature offerings, such as:<ul><li>Buttermilk Biscuits and Gravy</li><li>Warm Cinnamon Rolls</li><li>Ham and Cheese Omelet</li><li>Vegetable Omelet</li></ul>Visit the Chef Mickey website to learn more. https://disneyworld.disney.go.com/dining/contemporary-resort/chef-mickeys/?CMP=OKC-90001369_GM_WDW_dining_chefmickeys_NA You are responsible for tips, ala carte beverages, and transportation to/from the event. Chef Mickey's is a 20 minute drive from the Drury. If you chose to take the Drury shuttle, to the Transportation and Ticket Center and then ride the Monorail to Contemporary Resort, there are a couple of security check points and metal detectors, so plan ahead. This option can take up to an hour. The Drury Shuttle schedule is released a few weeks ahead of the event.  Questions? Email us conference@coffinsiris.org

Coffin-Siris Syndrome Foundation

Chef Mickey's Saturday Brunch CSS Conference 2026

4600 World Dr

Brunch Ticket Ages 10 to Adult

$35

Brunch Ages 3-9

$23

Brunch Ages 0-3

Free

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