Join our Virtual CSS Conference 2026 💻 on Zoom

After you purchase this ticket, we will email you the included recordings.

The suggested price is $50 per family. 

Pay what you can starting at $25. 

If you need a scholarship, please email us: [email protected] 

Recorded Sessions from the Coffin-Siris Syndrome Foundation Conference include: 

• CSS Foundation Opening Remarks  Carissa Robinson, Chairperson 
• Registry and Research Updates Dr. Samantha Vergano, MD, FAAP, FACMG, Associate Medical Director for Outpatient Services for Genetic Medicine at Seattle Children’s Hospital and Professor of Pediatrics, University of Washington
• Building tools to understand methylation difference in Coffin-Siris Syndrome, Dr. Danny Miller, MD, PhD, FACMG, Assistant Professor, University of Washington School of Medicine, Division of Genetic Medicine, Department of Pediatrics | Department of Laboratory Medicine and Pathology, Attending Physician, Medical Genetics, Seattle Children’s Hospital
• Understanding Autism,  Dr. Alexis Bancroft, PhD, Clinical Director, Learning Spring School and Bancroft Psychology NYC
• Epilepsy Foundation of Georgia and Florida Epilepsy Services(Video),  Dr. Courtney Dean, PhD, CRC, NCC 
• Simons Searchlight, Dr. Astrid Rasmussen, MD, PhD, Project Director, Simons Searchlight, Department of Pediatrics, Division of Genetics and Genomics, Boston Children’s Hospital, Harvard Medical School Teaching Hospital 

 Three additional presentations that were pre-recorded that will also be emailed to you:  

• Sleep in Children with Coffin-Siris Syndrome, Dr. Maida Lynn Chen, MD, Director of Sleep Medicine, Seattle Children’s Hospital Professor of Pediatrics, UW School of Medicine, Adjunct Professor of Oral Health Sciences
• Update on Coffin-Siris Syndrome Research, Prof. Gijs Santen, MD, Clinical Geneticist, Leiden University Medical Center 
• Exploring neurobiological mechanisms underlying ARID1B-related disorders using mouse models, Dr. Woo-Yang Kim, PhD, Professor, Department of Biological Sciences, Kent State University