Rare Village Foundation

### Context Profile for Rare Village Foundation

1. **Organization Mission & Cause:**
   - **Mission:** The Rare Village Foundation is dedicated to improving the lives of children with rare pediatric diseases. They focus on funding research, raising awareness, and providing support to families affected by these conditions. Their mission emphasizes the urgency of addressing the unique challenges faced by children with rare diseases, which often go overlooked in broader healthcare discussions.
   - **Cause:** The foundation aims to create a community for families dealing with rare diseases, fostering connections and providing resources for research and treatment options.

2. **Type of Activities:**
   - **Fundraising Campaigns:** The foundation runs targeted fundraising campaigns, such as the recent campaign aimed at raising $10,000 for research on rare pediatric diseases.
   - **Community Programs:** They provide support and resources for families, including educational materials and networking opportunities.
   - **Research Support:** Collaborating with medical professionals and institutions to fund and promote research into rare diseases affecting children.

3. **Tone of Voice:**
   - The tone of the Rare Village Foundation's communications is **friendly**, **inspiring**, and **professional**. Their messaging conveys empathy and urgency, aiming to connect with families and supporters on a personal level while maintaining a credible and authoritative stance on medical issues.

4. **Emoji Usage:**
   - The organization does **not** appear to use emojis in their communications. Their content is primarily text-based, focusing on clear and professional language without informal elements like emojis.

5. **Key Facts:**
   - **Founding Info:** Specific founding details were not available on the website, but the foundation is actively engaged in the rare disease community.
   - **Scale:** The organization has a total of **9 forms** and **6 email campaigns**, indicating a structured approach to outreach and engagement.
   - **Impact Metrics:** While specific metrics were not detailed, the foundation's goal of raising $10,000 for research indicates a focus on measurable outcomes in their fundraising efforts.
   - **Volunteer Info:** Information on volunteer opportunities was not explicitly mentioned on the website, suggesting that the foundation may currently focus more on fundraising and research initiatives.

6. **Writing Guidelines:**
   - **Style:** Use clear, concise language that is accessible to a broad audience. Avoid jargon unless it is explained.
   - **Empathy:** Incorporate empathetic language that resonates with families affected by rare diseases. Highlight personal stories and testimonials when possible.
   - **Call to Action:** Include strong calls to action in fundraising and event communications, encouraging immediate support and involvement.
   - **Professionalism:** Maintain a professional tone, especially when discussing medical and research topics, to establish credibility.

This context profile serves as a guide for creating personalized and effective content for the Rare Village Foundation, ensuring alignment with their mission, values, and communication style.

LXCL:Includes one entry ticket

Individual Admission

LXCL:Includes 10 tickets (one table)

Reserve a Table

Join us for an unforgettable evening at the Gala for a Cure, taking place on Friday, September 12th of 2025 at the prestigious Royal Conservatory of Music venue in Downtown Toronto, Canada. The Gala for a Cure event is an annual fundraiser for a rare paediatric condition, called Ornithine Transcarbamylase Deficiency (OTCD). This initiative is organized by CureOTCD in partnership with Rare Village Foundation as the fiscal sponsor. Funds raised will be donated to the Children's National Hospital in Washington, DC to support paediatric research for OTCD led by Dr. Ljubica Caldovic, and SickKids Hospital in Toronto to support research led by Dr. Zhenya Ivakine. This event is fully supported and endorsed by the honorable Nobel Prize Winner, Dr. Drew Weissman (2023). Together, we can cure paediatric OTCD. For more information, please visit our <a href="https://cureotcd.com/" rel="noopener noreferrer" style="text-decoration-color:initial;box-sizing:inherit;-webkit-user-select:auto" target="_blank">website</a>. Please note that there is a formal dress code for this event. Agenda and what to expect:Our MC host for the evening will be Peter Laneas. Peter is a Public Cancer Survivor & Advocate, and Board VP of EVE, End Violence Everywhere Initiative. The Gala will start with a cocktail reception at 6 pm and live music performance by Peter Han on violin, followed by dinner and more live music by Nicholas Simpson, professional Tenor and Peter Han on piano. The evening will end with dessert, an auction, and more live music by Tiffany Jazz Duo, with Tiffany Hanus singing and Jeremy Bellaviti on guitar. To learn about Sponsorship, visit the <a href="https://cureotcd.com/wp-content/uploads/2025/05/Gala_sponsorship.pdf" rel="noopener noreferrer" style="text-decoration-color:initial;box-sizing:inherit;-webkit-user-select:auto" target="_blank">Sponsorship Opportunities</a> page.   Thank you to our wonderful sponsors for supporting this event: <img src="https://res.cloudinary.com/hxn9dbuhd/image/upload/v1748433939/wysiwyg/coqdlzfdefedivfovd5b.png" style="width:157px;display:block;vertical-align:top;margin:5px auto;text-align:center;position:relative;max-width:100%;cursor:pointer;padding:0px 1px;box-sizing:inherit;-webkit-user-select:none" /><img src="https://res.cloudinary.com/hxn9dbuhd/image/upload/v1748434791/wysiwyg/csymdpfcxtuevxh929qf.png" style="width:125px;display:block;vertical-align:top;margin:5px auto;text-align:center;position:relative;max-width:100%;cursor:pointer;padding:0px 1px;box-sizing:inherit;-webkit-user-select:none" /> <img src="https://res.cloudinary.com/hxn9dbuhd/image/upload/v1754483189/wysiwyg/zdpcxid4oxwfwfjo9ld4.png" style="width:114px;display:block;vertical-align:top;margin:5px auto;text-align:center;position:relative;max-width:100%;cursor:pointer;padding:0px 1px;box-sizing:inherit;-webkit-user-select:none" /> <img src="https://res.cloudinary.com/hxn9dbuhd/image/upload/v1754017575/wysiwyg/ws1dkdo2wunnaraxc0tr.png" style="width:78px;display:block;vertical-align:top;margin:5px auto;text-align:center;position:relative;max-width:100%;cursor:pointer;padding:0px 1px;box-sizing:inherit;-webkit-user-select:none" />

Dear <span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip" fr-original-style="" style="background-color: rgb(248, 248, 255); border: 1px solid rgb(191, 191, 255); border-radius: 4px; color: rgb(42, 42, 196); padding: 1px 8px; font-size: 11px; display: inline-block; margin: 0px; overflow-wrap: anywhere; user-select: none; box-sizing: inherit;">First name, Thank you for registering for our Gala event and supporting our cause. We look forward to seeing you on September 12th to celebrate this special evening together, and to working towards improving treatment options for our rare disease community. Sincerely, CureOTCD Team&nbsp;(in partnership with the Rare Village Foundation as fiscal sponsor)

Join us for an unforgettable evening at the Gala for a Cure, taking place on Friday, September 12th of 2025 at the prestigious Royal Conservatory of Music venue in Downtown Toronto, Canada. The Gala for a Cure event is an annual fundraiser for a rare paediatric condition, called Ornithine Transcarbamylase Deficiency (OTCD). This initiative is organized by CureOTCD in partnership with Rare Village Foundation as the fiscal sponsor. Funds raised will be donated to the Children's National Hospital in Washington, DC to support paediatric research for OTCD led by Dr. Ljubica Caldovic, and SickKids Hospital in Toronto to support research led by Dr. Zhenya Ivakine. This event is fully supported and endorsed by the honorable Nobel Prize Winner, Dr. Drew Weissman (2023). Together, we can cure paediatric OTCD. For more information, please visit our <a href="https://cureotcd.com/" target="_blank">website</a>. Please note that there is a formal dress code for this event. Agenda and what to expect:Our MC host for the evening will be Peter Laneas. Peter is a Public Cancer Survivor &amp; Advocate, and Board VP of EVE, End Violence Everywhere Initiative. The Gala will start with a cocktail reception at 6 pm and live music performance by Peter Han on violin, followed by dinner and more live music by Nicholas Simpson, professional Tenor and Peter Han on piano. The evening will end with dessert, an auction, and more live music by Tiffany Jazz Duo, with Tiffany Hanus singing and Jeremy Bellaviti on guitar. To learn about Sponsorship, visit the <a href="https://cureotcd.com/wp-content/uploads/2025/05/Gala_sponsorship.pdf" target="_blank">Sponsorship Opportunities</a> page.   Thank you to our wonderful sponsors for supporting this event: <img src="https://res.cloudinary.com/hxn9dbuhd/image/upload/v1748433939/wysiwyg/coqdlzfdefedivfovd5b.png" style="width:157px;display:block;vertical-align:top;margin:5px auto;text-align:center;position:relative;cursor:pointer;padding:0px 1px;box-sizing:inherit;-webkit-user-select:none;max-width:100%" /><img src="https://res.cloudinary.com/hxn9dbuhd/image/upload/v1748434791/wysiwyg/csymdpfcxtuevxh929qf.png" style="width:125px;display:block;vertical-align:top;margin:5px auto;text-align:center;position:relative;cursor:pointer;padding:0px 1px;box-sizing:inherit;-webkit-user-select:none;max-width:100%" /> <img src="https://res.cloudinary.com/hxn9dbuhd/image/upload/v1754483189/wysiwyg/zdpcxid4oxwfwfjo9ld4.png" style="width:114px;display:block;vertical-align:top;margin:5px auto;text-align:center;position:relative;cursor:pointer;padding:0px 1px;box-sizing:inherit;-webkit-user-select:none;max-width:100%" /> <img src="https://res.cloudinary.com/hxn9dbuhd/image/upload/v1754017575/wysiwyg/ws1dkdo2wunnaraxc0tr.png" style="width:78px;display:block;vertical-align:top;margin:5px auto;text-align:center;position:relative;cursor:pointer;padding:0px 1px;box-sizing:inherit;-webkit-user-select:none;max-width:100%" />

Rare Village Foundation

Gala for a Cure

The Royal Conservatory of Music

Individual Admission

$350

Reserve a Table

$3,000

Add a donation for Rare Village Foundation