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EHE Foundation

Event Registration

Join Denise Robinson, Executive Director, and Kristi Oristian, Director of Research, for an interactive community conversation about why individual patient experiences are a critical need and an important component in unlocking progress for everyone affected by EHE. If you have EHE, you are one in a million, and you hold a key that can lead to advancements in science, a better understanding of the disease, and ultimately a better future for everyone diagnosed with EHE.&nbsp; This discussion is for people newly diagnosed and those who have lived with an EHE diagnosis for years. Spend one hour learning how you can open doors to a better future for everyone with EHE.

Hi <span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip" fr-original-style="" style="color: rgb(42, 42, 196); overflow-wrap: anywhere; user-select: none; background-color: rgb(248, 248, 255); border: 1px solid rgb(191, 191, 255); border-radius: 4px; margin: 0px; padding: 1px 8px; font-size: 11px; display: inline-block; box-sizing: inherit;">First name, Thank you for registering for EHE 360 Connect: Be the Key - How one in a million can unlock progress!<ul fr-original-style="" style="box-sizing: inherit;"><li fr-original-style="" id="isPasted" style="box-sizing: inherit;">🕐 <span contenteditable="false" data-custom-variable="{{date-variable-fallback-reminder}}" fr-original-class="fr-deletable styled-tag-chip" fr-original-style="" style="color: rgb(42, 42, 196); overflow-wrap: anywhere; user-select: none; background-color: rgb(248, 248, 255); border: 1px solid rgb(191, 191, 255); border-radius: 4px; margin: 0px; padding: 1px 8px; font-size: 11px; display: inline-block; box-sizing: inherit;">Date</li></ul> <span contenteditable="false" data-button-color="{{#da5b5d}}" data-custom-link="{{https://events.zoom.us/ej/ArwkYK3IvgHxG6z0dXSW-uKnn3oHGteMMG8LHwZSZRd1kTOWtJot~A1Xg3lyAkar7jxlc-IErkQsrFMb9vjB2c-pxKCvYdmoCPHuRZ9-W8QPR0QBSw}}" data-custom-variable="{{custom-link-button-e4a3ac51-b9b4-4bb4-8c4a-fafc49c37c5e}}" data-text="{{Join Event}}" fr-original-class="fr-deletable styled-tag-button" fr-original-style="background-color: #da5b5d" style="background-color: rgb(218, 91, 93); color: rgb(255, 255, 255); overflow-wrap: anywhere; user-select: none; box-sizing: inherit; border-radius: 8px; height: 36px; margin: 0px; padding: 8px 16px; font-family: Roboto; font-size: 14px; font-weight: 500; line-height: 20px; display: inline-block;">Join Event<a href="https://events.zoom.us/ej/ArwkYK3IvgHxG6z0dXSW-uKnn3oHGteMMG8LHwZSZRd1kTOWtJot~A1Xg3lyAkar7jxlc-IErkQsrFMb9vjB2c-pxKCvYdmoCPHuRZ9-W8QPR0QBSw" rel="noopener noreferrer noopener noreferrer" target="_blank" fr-original-style="" style="text-decoration-color: currentcolor; user-select: auto; box-sizing: inherit;"></a> Thank you for joining us to advance EHE research. ❤️💛See you soon! EHE Foundation You have been added to the EHE Foundation&#39;s monthly newsletter. You may unsubscribe at any time.

Join Denise Robinson, Executive Director, and Kristi Oristian, Director of Research, for an interactive community conversation about why individual patient experiences are a critical need and an important component in unlocking progress for everyone affected by EHE. If you have EHE, you are one in a million, and you hold a key that can lead to advancements in science, a better understanding of the disease, and ultimately a better future for everyone diagnosed with EHE.  This discussion is for people newly diagnosed and those who have lived with an EHE diagnosis for years. Spend one hour learning how you can open doors to a better future for everyone with EHE.

EHE Foundation

EHE 360 Connect: Be the Key - How 1 in a million can unlock progress!

Event Registration

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