Sisters Hope Foundation For Hereditary Diffuse Leukoencephalop

### Context Profile for Sisters Hope Foundation

1. **Organization Mission & Cause**:
   - The Sisters Hope Foundation is dedicated to supporting and empowering families affected by Hereditary Diffuse Leukoencephalopathy with Brain Stem Involvement (ALSP) and CSF1R-related diseases. Their mission focuses on:
     - Educating the public to raise awareness about these rare diseases.
     - Advocating for increased research and funding to enhance treatment options.
     - Connecting patients and families to foster community and support.
     - Providing financial assistance and resources to those in need.

2. **Type of Activities**:
   - The foundation engages in various activities including:
     - **Educational Campaigns**: Raising awareness about ALSP and CSF1R-related diseases.
     - **Advocacy**: Promoting research and funding initiatives.
     - **Community Building**: Connecting families and patients for mutual support.
     - **Fundraising Events**: Such as donation matching campaigns and other fundraising drives.

3. **Tone of Voice**:
   - The tone of the website and communications is **friendly, supportive, and encouraging**. The language is accessible and aims to inspire action, emphasizing community and collective effort. The use of direct calls to action (e.g., "Donate," "Share," "Volunteer") conveys urgency and importance.

4. **Emoji Usage**:
   - The website and communications do not prominently feature emojis. The tone remains professional and earnest, focusing on clarity and the gravity of the cause rather than casual or playful elements.

5. **Key Facts**:
   - **Founding Information**: Specific founding details were not available on the website.
   - **Scale**: The foundation has conducted 14 forms and 11 email campaigns, indicating a structured approach to outreach and engagement.
   - **Impact Metrics**: While specific metrics were not detailed, the foundation emphasizes community impact through education, advocacy, and support.
   - **Volunteer Information**: The foundation encourages volunteering as a means to contribute, although specific volunteer opportunities are not detailed on the website.

6. **Writing Guidelines**:
   - **Style**: Content should be clear, concise, and supportive. Use direct calls to action to encourage engagement.
   - **Language**: Maintain a friendly and encouraging tone, avoiding overly technical jargon unless necessary for clarity.
   - **Structure**: Use bullet points and lists for clarity, especially when outlining ways to help or the foundation's mission.
   - **Engagement**: Encourage sharing and community involvement, fostering a sense of belonging and urgency.

This context profile serves as a foundational guide for creating personalized and effective content for the Sisters Hope Foundation, ensuring alignment with their mission, tone, and audience engagement strategies.

LXCL:A tax deductible donation to Sisters' Hope Foundation, 2-mile walk registration for 1 person and their furry friends. A custom pup bandana included and pup treats along the walking route. Virtual attendees walk anywhere. Send pictures for social media to heidi@sistershopefoundation.org

Pup Walk (Virtual or In-person)

LXCL:Kids under 12 walk for FREE.

Kids under 12

LXCL:Vendor space available for a $10 donation. Vendors are responsible for providing a table for their products, chair, tablecloth and company signage.Vendors will be promoted on Sisters' Hope Foundation social media and event pages.

Vendor

LXCL:A tax-deductible donation. You will be featured as a sponsor on all event site listings, social media posts and the Sisters' Hope Foundation website.

Sponsor

🎉 Excitement is in the air! Get ready to be part of something extraordinary at Sisters Hope Foundation&#39;s fundraising event, Hope Unleashed: Pup Walk for Brain Disorders &amp; ALSP. It&#39;s a pup-tacular event like no other, and we want you to be there with your furry friend! 🎉 The 2 mile pup friendly walk will begin at the Lebanon Valley Craft Brewery, walking to Stoever&#39;s Dam and then returning to enjoy a pup friendly barking lot party for a cause. Funds raised will support brain disorders and ALSP. Hang out from 10am - 2pm to enjoy brews, brunch and barks in the new &quot;barking lot&quot; created specifically for your bestie! Registration for the walk for you and your pup(s): $20 (tax-deductible donation), pup bandana and pup friendly treats during the walk. Enjoy dog photography, vendors, music, 50/50, raffles and a best dressed pup contest. Special guests from The Davis Dog Farm will be visiting, too.&nbsp; Interested in participating as a vendor or sponsor, contact heidi@sistershopefoundation.org.

Hi <span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip" fr-original-style="" style="background-color: rgb(248, 248, 255); border: 1px solid rgb(191, 191, 255); border-radius: 4px; color: rgb(42, 42, 196); padding: 1px 8px; font-size: 11px; display: inline-block; margin: 0px; overflow-wrap: anywhere; user-select: none; box-sizing: inherit;">First name, Thank you for registering for our event and supporting our cause. Your registration greatly helps our mission. 🚀 If you would like to contribute further, contact us to become a volunteer, sponsor, vendor or talk to your friends about our cause! Heidi Edwardsheidi@sistershopefoundation.org

🎉 Excitement is in the air! Get ready to be part of something extraordinary at Sisters Hope Foundation's fundraising event, Hope Unleashed: Pup Walk for Brain Disorders &amp; ALSP. It's a pup-tacular event like no other, and we want you to be there with your furry friend! 🎉 The 2 mile pup friendly walk will begin at the Lebanon Valley Craft Brewery, walking to Stoever's Dam and then returning to enjoy a pup friendly barking lot party for a cause. Funds raised will support brain disorders and ALSP. Hang out from 10am - 2pm to enjoy brews, brunch and barks in the new "barking lot" created specifically for your bestie! Registration for the walk for you and your pup(s): $20 (tax-deductible donation), pup bandana and pup friendly treats during the walk. Enjoy dog photography, vendors, music, 50/50, raffles and a best dressed pup contest. Special guests from The Davis Dog Farm will be visiting, too.  Interested in participating as a vendor or sponsor, contact heidi@sistershopefoundation.org.

Sisters Hope Foundation For Hereditary Diffuse Leukoencephalop

Hope Unleashed: Pup Walk for Brain Disorders & ALSP

840 N 7th St

Pup Walk (Virtual or In-person)

$20

Kids under 12

Free

Vendor

$10

Sponsor

$100

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