Prader Willi Alliance Of New York Inc

### Context Profile for Prader Willi Alliance of New York Inc.

1. **Organization Mission & Cause:**
   - The Prader Willi Alliance of New York Inc. is dedicated to supporting individuals with Prader-Willi Syndrome (PWS) and their families. Their mission focuses on providing education, advocacy, and resources to improve the quality of life for those affected by PWS. They aim to raise awareness about the syndrome and promote research for better treatment options.

2. **Type of Activities:**
   - **Conferences and Events:** The organization hosts annual conferences, such as the upcoming "Mini Conference" scheduled for May 2-3, 2025, which includes sessions for families, a meet-and-greet, and family activities.
   - **Community Programs:** They offer resources and support for families, including activity rooms for individuals with PWS during events and partnerships with local venues for family outings.
   - **Fundraising Campaigns:** They engage in fundraising activities to support their programs and initiatives, including registration fees for events.

3. **Tone of Voice:**
   - The tone of the organization is **friendly, supportive, and informative**. Communications are designed to be welcoming and encouraging, aiming to foster a sense of community among families affected by PWS. The language is straightforward and accessible, focusing on clarity and warmth.

4. **Emoji Usage:**
   - The organization does use emojis in their communications, such as in email reminders (e.g., 📍 for location). Emoji usage appears to be moderate, primarily for enhancing engagement and adding a friendly touch to messages.

5. **Key Facts:**
   - **Founding Info:** Specific founding details were not available on the website, but the organization has been active in supporting individuals with PWS for several years.
   - **Scale:** The organization appears to have a modest scale, focusing on New York with targeted events and community engagement.
   - **Impact Metrics:** While specific metrics were not detailed, the organization emphasizes community support and educational outreach as key measures of their impact.
   - **Volunteer Info:** Information regarding volunteer opportunities was not explicitly mentioned on the website, but community involvement is likely encouraged through events and programs.

6. **Writing Guidelines:**
   - **Style:** Use a friendly and supportive tone, avoiding overly technical language. Aim for clarity and accessibility.
   - **Structure:** Keep content organized with clear headings and bullet points when listing activities or resources.
   - **Engagement:** Incorporate personal touches, such as addressing the audience directly and using first names where appropriate.
   - **Visuals:** Consider using emojis sparingly to enhance engagement without overwhelming the message.
   - **Call to Action:** Encourage participation in events and support for fundraising initiatives clearly and positively.

This context profile provides a comprehensive understanding of the Prader Willi Alliance of New York Inc., enabling AI assistants to generate tailored and effective content that aligns with the organization’s mission and communication style.

Family Conference

Huck Finn's Playland: $15 per person (Thanks to one of our sponsors, we can offer this EARLY BIRD rate until April 4, 2025. Prices after this date will be subject to availability.)

PlayLand

Your membership helps us to support those with PWS across New York State! Having a diverse membership from across the state strengthens our voice as we advocate with policy creators and community agencies. It also keeps us connected with your family as we seek feedback regarding the needs in our state, learn about research opportunities, and organize future events.

Membership fees

Only Pre-Approved winners.  No Conference Fees required.

2025 Raffle Winner

Registration for sponsors and presenters.  No cost to register.

Sponsor-Presenter

May 2-3, 2025Hyatt Place Albany (82 Montgomery Street; Albany, NY)Friday evening: "Meet & Greet" at 7PMSaturday morning: Conference sessions starting at 8AM until 12 noon.Activity room available for individuals with PWS and their siblings during Meet & Greet and presentations.Saturday afternoon (12:00- 4:00 pm): Family Day at Huck Finn's Playland (Check out their website at <a href="https://hucksplayland.com/" rel="nofollow noopener noreferrer" style="text-decoration-color:initial;user-select:auto;box-sizing:inherit" target="_blank">Huck Finn's Playland | HUCK FINN’S PLAYLAND 72nd SEASON</a>)  Cost covers a wristband for unlimited rides (for riders and chaperones who will accompany their child on a ride). There is no entry fee to the park itself. FeesConference Registration: $25 per familyThere is no charge for the activity room. Meals are not included.Huck Finn's Playland: $15 per person (Thanks to one of our sponsors, we can offer this EARLY BIRD rate until April 4, 2025. Prices after this date will be subject to availability.) To reserve a room at the hotel and take advantage of our conference rate ($179/ night), use the following link BEFORE April 4, 2025.<a href="https://go.hyatt.com/link/v2/eae__BdRcgIuVYSL_crqRYXz0BgIcN43HbNQd" rel="nofollow noopener noreferrer" style="text-decoration-color:initial;user-select:auto;box-sizing:inherit" target="_blank">PWANY Block at Hyatt Place </a>Please be aware that if you reserve after April 4 or make your own arrangements, you will not be guaranteed the conference rate.

Hi <span data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip" fr-original-style style="background-color:rgb(248, 248, 255);border:1px solid rgb(191, 191, 255);border-radius:4px;color:rgb(42, 42, 196);padding:1px 8px;font-size:11px;display:inline-block;margin:0px;overflow-wrap:anywhere;user-select:none;box-sizing:inherit">First name , Thank you for registering for our event and supporting our cause. Your registration greatly helps our mission. 🚀 If you would like to contribute further, contact us to become a volunteer, or talk to your friends about our cause! Barbara McManusb.mcm2224@gmail.com

May 2-3, 2025Hyatt Place Albany (82 Montgomery Street; Albany, NY)Friday evening: "Meet &amp; Greet" at 7PMSaturday morning: Conference sessions starting at 8AM until 12 noon.Activity room available for individuals with PWS and their siblings during Meet &amp; Greet and presentations.Saturday afternoon (12:00- 4:00 pm): Family Day at Huck Finn's Playland (Check out their website at <a href="https://hucksplayland.com/" target="_blank">Huck Finn's Playland | HUCK FINN’S PLAYLAND 72nd SEASON</a>)  Cost covers a wristband for unlimited rides (for riders and chaperones who will accompany their child on a ride). There is no entry fee to the park itself. FeesConference Registration: $25 per familyThere is no charge for the activity room. Meals are not included.Huck Finn's Playland: $15 per person (Thanks to one of our sponsors, we can offer this EARLY BIRD rate until April 4, 2025. Prices after this date will be subject to availability.) To reserve a room at the hotel and take advantage of our conference rate ($179/ night), use the following link BEFORE April 4, 2025.<a href="https://go.hyatt.com/link/v2/eae__BdRcgIuVYSL_crqRYXz0BgIcN43HbNQd" target="_blank">PWANY Block at Hyatt Place </a>Please be aware that if you reserve after April 4 or make your own arrangements, you will not be guaranteed the conference rate.

Prader Willi Alliance Of New York Inc

Mini Conference May 2 & 3, 2025

82 Montgomery St