A teal and orange background displays text announcing a monthly peer support meeting for PHEO PARA, with the website pheopara.org and meeting times listed in the foreground.

Pheo Para Alliance

**Context Profile for Pheo Para Alliance**

1. **Organization Mission & Cause:**
   - The Pheo Para Alliance is dedicated to supporting individuals affected by pheochromocytoma and paraganglioma, which are rare neuroendocrine tumors. Their mission is to provide education, support, and advocacy for patients and families, while also advancing research and awareness to find a cure for these conditions. They aim to ensure that no patient faces these challenges alone.

2. **Type of Activities:**
   - **Support and Education:** The organization offers resources and educational materials to patients and caregivers navigating these complex diagnoses.
   - **Community Connection:** They facilitate community events and connections to help those affected find support and share experiences.
   - **Research and Collaboration:** The Pheo Para Alliance actively works to advance research and foster collaboration among clinicians to improve treatment and care.
   - **Centers of Excellence:** They focus on expanding access to specialized care by growing their network of Centers of Excellence.
   - **Fundraising Campaigns:** Regular fundraising initiatives, such as the "Move Hope Forward" campaign, aim to raise funds for research and patient support.

3. **Tone of Voice:**
   - The tone is professional yet compassionate, aiming to inspire hope and convey urgency in their mission. Communications are supportive and informative, emphasizing community and collaboration.

4. **Emoji Usage:**
   - The organization does not prominently use emojis in their formal communications, maintaining a more professional and straightforward presentation.

5. **Key Facts:**
   - **Founding Info:** Specific founding details are not prominently featured on the website.
   - **Scale and Impact:** The organization has a focused scope with targeted campaigns and educational outreach. They manage a small number of forms and email campaigns, indicating a tailored approach to engagement.
   - **Volunteer Info:** While specific volunteer details are not highlighted, the emphasis on community suggests opportunities for involvement in various capacities.

6. **Writing Guidelines:**
   - **Clarity and Compassion:** Ensure all communications are clear, compassionate, and supportive, reflecting the organization's commitment to patient care and community.
   - **Professional and Informative:** Maintain a professional tone that is also informative, providing valuable insights and updates on research and support initiatives.
   - **Engagement and Urgency:** Use language that encourages engagement and conveys the urgency of their mission, particularly in fundraising and advocacy efforts.
   - **Avoidance of Emojis:** Stick to a formal style without the use of emojis to maintain the organization's professional image.

This context profile should guide AI assistants in crafting content that aligns with the Pheo Para Alliance's mission, tone, and communication style, ensuring it resonates with their audience and supports their goals effectively.

General Admission

Welcome to Our Monthly Support MeetingOur support meetings offer a place where you can connect and share your experience. Whether you want to share your journey, discuss daily challenges, or listen to the insights of others, you are welcome here. We are committed to maintaining a respectful, supportive, and compassionate environment for everyone. Meeting Details<ul fr-original-style="" style="box-sizing: inherit;"><li fr-original-style="" style="box-sizing: inherit;">Duration: 90 minutes</li><li fr-original-style="" style="box-sizing: inherit;">Led by: Dedicated patient volunteers who understand your journey firsthand.</li></ul>

Hi <span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip" fr-original-style="" style="color: rgb(42, 42, 196); overflow-wrap: anywhere; user-select: none; background-color: rgb(248, 248, 255); border: 1px solid rgb(191, 191, 255); border-radius: 4px; margin: 0px; padding: 1px 8px; font-size: 11px; display: inline-block; box-sizing: inherit;">First name<p fr-original-style="line-height:1.656; background-color:#ffffff;" id="isPasted" style="line-height: 1.656; background-color: rgb(255, 255, 255); margin: 0px; width: 100%; box-sizing: inherit; color: rgb(0, 0, 0);"><span fr-original-style="font-size:11pt; font-family:Arial,sans-serif; color:#000000; background-color:transparent;" style="font-size: 11pt; font-family: Arial, sans-serif; color: rgb(0, 0, 0); background-color: transparent; box-sizing: inherit;">We are looking forward to seeing you at the monthly support meeting every first Tuesday of the month. <span fr-original-style="font-size:11pt; font-family:Arial,sans-serif; color:#000000; background-color:transparent;" id="isPasted" style="font-size: 11pt; font-family: Arial, sans-serif; color: rgb(0, 0, 0); background-color: transparent; box-sizing: inherit;">&nbsp;<a data-fr-linked="true" fr-original-style="" href="https://us02web.zoom.us/j/2624417839?pwd=bmb9q8TDMZLJUUu5j94yUTSInJi3ar.1&omn=86344230730" id="isPasted" rel="noopener noreferrer noopener noreferrer" style="text-decoration-color: currentcolor; user-select: auto; box-sizing: inherit;" target="_blank">ttps://us02web.zoom.us/j/2624417839?pwd=bmb9q8TDMZLJUUu5j94yUTSInJi3ar.1&amp;omn=86344230730</a>. <span fr-original-style="font-size:11pt; font-family:Arial,sans-serif; color:#000000; background-color:transparent;" style="font-size: 11pt; font-family: Arial, sans-serif; color: rgb(0, 0, 0); background-color: transparent; box-sizing: inherit;">This group provides peer support, connection, and shared experiences among patients and caregivers. Participants are encouraged to share their journeys, challenges, and insights in a respectful and supportive environment.<span fr-original-style="font-size:11pt; font-family:Arial,sans-serif; color:#000000; background-color:transparent;" style="font-size: 11pt; font-family: Arial, sans-serif; color: rgb(0, 0, 0); background-color: transparent; box-sizing: inherit;">The support group is not intended to provide medical, clinical, or professional advice. Facilitators can help guide you to learn more about PPGL through the Pheo Para Alliance website.<span fr-original-style="font-size:11pt; font-family:Arial,sans-serif; color:#000000; background-color:transparent;" style="font-size: 11pt; font-family: Arial, sans-serif; color: rgb(0, 0, 0); background-color: transparent; box-sizing: inherit;">To ensure a positive and welcoming environment for all participants, we ask that members:<ul fr-original-style="" style="box-sizing: inherit;"><li fr-original-style="font-size:11pt; font-family:Arial,sans-serif; color:#000000; background-color:transparent;" style="font-size: 11pt; font-family: Arial, sans-serif; color: rgb(0, 0, 0); background-color: transparent; box-sizing: inherit;"><span fr-original-style="font-size:11pt; font-family:Arial,sans-serif; color:#000000; background-color:transparent;" style="font-size: 11pt; font-family: Arial, sans-serif; color: rgb(0, 0, 0); background-color: transparent; box-sizing: inherit;">Treat all participants with respect and kindness.</li><li fr-original-style="font-size:11pt; font-family:Arial,sans-serif; color:#000000; background-color:transparent;" style="font-size: 11pt; font-family: Arial, sans-serif; color: rgb(0, 0, 0); background-color: transparent; box-sizing: inherit;"><span fr-original-style="font-size:11pt; font-family:Arial,sans-serif; color:#000000; background-color:transparent;" style="font-size: 11pt; font-family: Arial, sans-serif; color: rgb(0, 0, 0); background-color: transparent; box-sizing: inherit;">Allow others the opportunity to speak and share</li><li fr-original-style="font-size:11pt; font-family:Arial,sans-serif; color:#000000; background-color:transparent;" style="font-size: 11pt; font-family: Arial, sans-serif; color: rgb(0, 0, 0); background-color: transparent; box-sizing: inherit;"><span fr-original-style="font-size:11pt; font-family:Arial,sans-serif; color:#000000; background-color:transparent;" style="font-size: 11pt; font-family: Arial, sans-serif; color: rgb(0, 0, 0); background-color: transparent; box-sizing: inherit;">Recognize that experiences and perspectives may differ.</li><li fr-original-style="font-size:11pt; font-family:Arial,sans-serif; color:#000000; background-color:transparent;" style="font-size: 11pt; font-family: Arial, sans-serif; color: rgb(0, 0, 0); background-color: transparent; box-sizing: inherit;"><span fr-original-style="font-size:11pt; font-family:Arial,sans-serif; color:#000000; background-color:transparent;" style="font-size: 11pt; font-family: Arial, sans-serif; color: rgb(0, 0, 0); background-color: transparent; box-sizing: inherit;">Respect the privacy of others in the group.</li><li fr-original-style="font-size:11pt; font-family:Arial,sans-serif; color:#000000; background-color:transparent;" style="font-size: 11pt; font-family: Arial, sans-serif; color: rgb(0, 0, 0); background-color: transparent; box-sizing: inherit;"><span fr-original-style="font-size:11pt; font-family:Arial,sans-serif; color:#000000; background-color:transparent;" style="font-size: 11pt; font-family: Arial, sans-serif; color: rgb(0, 0, 0); background-color: transparent; box-sizing: inherit;">Do Not, share personal stories, names, or identifying details discussed in the group.&nbsp;</li></ul> Best,<p fr-original-style="line-height:1.7999999999999998; background-color:#ffffff;" style="line-height: 1.8; background-color: rgb(255, 255, 255); margin: 0px; width: 100%; box-sizing: inherit; color: rgb(0, 0, 0);"><span fr-original-style="font-size:11pt; font-family:Arial,sans-serif; color:#5d380e; background-color:transparent;" style="font-size: 11pt; font-family: Arial, sans-serif; color: rgb(93, 56, 14); background-color: transparent; box-sizing: inherit;">Jen Marchetti&nbsp;<p fr-original-style="line-height:1.7999999999999998; background-color:#ffffff;" style="line-height: 1.8; background-color: rgb(255, 255, 255); margin: 0px; width: 100%; box-sizing: inherit; color: rgb(0, 0, 0);"><span fr-original-style="font-size:11pt; font-family:Arial,sans-serif; color:#222222; background-color:transparent;" style="font-size: 11pt; font-family: Arial, sans-serif; color: rgb(34, 34, 34); background-color: transparent; box-sizing: inherit;">Program Manager&nbsp;<span fr-original-style="font-size:11pt; font-family:Arial,sans-serif; color:#000000; background-color:transparent;" style="font-size: 11pt; font-family: Arial, sans-serif; color: rgb(0, 0, 0); background-color: transparent; box-sizing: inherit;">|&nbsp;<a fr-original-style="" href="http://www.pheopara.org/" style="text-decoration-color: currentcolor; user-select: auto; box-sizing: inherit;" target="_blank"><span fr-original-style="font-size:11pt; font-family:Arial,sans-serif; color:#1155cc; background-color:transparent;" style="font-size: 11pt; font-family: Arial, sans-serif; color: rgb(17, 85, 204); background-color: transparent; box-sizing: inherit;">Pheo Para Alliance</a><p fr-original-style="line-height:1.7999999999999998; background-color:#ffffff;" style="line-height: 1.8; background-color: rgb(255, 255, 255); margin: 0px; width: 100%; box-sizing: inherit; color: rgb(0, 0, 0);"><span fr-original-style="font-size:11pt; font-family:Arial,sans-serif; color:#1155cc; background-color:transparent;" style="font-size: 11pt; font-family: Arial, sans-serif; color: rgb(17, 85, 204); background-color: transparent; box-sizing: inherit;">jen@pheopar.org

Welcome to Our Monthly Support MeetingOur support meetings offer a place where you can connect and share your experience. Whether you want to share your journey, discuss daily challenges, or listen to the insights of others, you are welcome here. We are committed to maintaining a respectful, supportive, and compassionate environment for everyone. Meeting Details<ul><li>Duration: 90 minutes</li><li>Led by: Dedicated patient volunteers who understand your journey firsthand.</li></ul>

Pheo Para Alliance

Monthly Support Meeting

General Admission

Free