PDA North America

### Context Profile for PDA North America

1. **Organization Mission & Cause**:
   - **Mission**: PDA North America is dedicated to raising awareness and providing support for individuals with Pathological Demand Avoidance (PDA), a profile on the autism spectrum characterized by an extreme avoidance of everyday demands and expectations. Their mission is to educate, advocate, and empower families and professionals to better understand and support those affected by PDA.
   - **Cause**: The organization aims to promote acceptance and understanding of PDA, ensuring that individuals with this profile receive appropriate support and resources.

2. **Type of Activities**:
   - **Events**: PDA North America hosts various events, including workshops, webinars, and in-person gatherings. For example, the recent event titled "Understanding & Supporting PDA" at Fusion Academy focused on educating attendees about PDA.
   - **Fundraising Campaigns**: They conduct fundraising initiatives to support their educational programs and outreach efforts.
   - **Community Programs**: The organization provides resources and support for parents, professionals, and individuals affected by PDA, including informational materials and networking opportunities.

3. **Tone of Voice**:
   - The tone of voice used by PDA North America is **friendly, supportive, and informative**. Their communications aim to be accessible and relatable, fostering a sense of community among those affected by PDA. The language is often encouraging and empathetic, reflecting their commitment to support and advocacy.

4. **Emoji Usage**:
   - The organization does not prominently feature emojis in their communications, maintaining a more professional and straightforward approach in their messaging. This suggests a preference for clarity and seriousness regarding their cause.

5. **Key Facts**:
   - **Founding Info**: Specific founding details were not explicitly stated on the website, but the organization appears to have been established to address the needs of individuals with PDA in North America.
   - **Scale**: PDA North America has conducted 13 total forms and 277 email campaigns, indicating an active engagement with their audience.
   - **Impact Metrics**: While specific metrics were not detailed, the organization emphasizes community engagement and support through events and educational outreach.
   - **Volunteer Info**: Information regarding volunteer opportunities is not explicitly mentioned on the website, suggesting that they may focus more on professional support and community engagement.

6. **Writing Guidelines**:
   - **Style**: Content should be clear, concise, and supportive. Use of empathetic language is encouraged to resonate with families and professionals dealing with PDA.
   - **Structure**: Use headings and bullet points for easy readability. Ensure that information is presented in a logical flow, especially when discussing events or resources.
   - **Audience Engagement**: Personalize communications where possible, using the recipient's name and addressing their specific interests or needs related to PDA.
   - **Call to Action**: Include clear calls to action in emails and promotional materials, encouraging participation in events or support for fundraising efforts.

This context profile serves as a foundation for creating tailored content for PDA North America, ensuring alignment with their mission, tone, and audience engagement strategies.

LXCL:Enjoy the full program with access to all main activities.

General Admission

Join us for a neuro-affirming webinar exploring the overlap between PANS, PANDAS, and neurodivergence. Together, we&rsquo;ll unpack what these experiences can look like in everyday life and offer practical, compassionate tools to support children and young people&mdash;at home and in educational settings&mdash;as they navigate PANS/PANDAS. BiosHelen Edgar is a late-identified Autistic advocate, author, and autism consultant with over 20 years&rsquo; experience in Early Years and SEND educational settings. She is the founder of Autistic Realms, where she provides neurodiversity-affirming resources, training, and consultancy. Helen is a parent to two neurodivergent children and also has lived experience of supporting people with PANS/PANDAS. &nbsp;<a data-fr-linked="true" fr-original-style="" href="https://autisticrealms.com" rel="noopener noreferrer noopener noreferrer" style="text-decoration-color: initial; user-select: auto; box-sizing: inherit;" target="_blank">https://autisticrealms.com</a> &nbsp; Laura Hellfeld is a neurodivergent health educator, author and works as an independent Nurse and Sleep Consultant. They specialise in supporting neurodivergent and disabled people with self-care needs like food and eating, toileting, sleep, and hygiene which are often affected by PANS and PANDAS. <a data-fr-linked="true" fr-original-style="" href="https://laurahellfeld.co.uk" id="isPasted" rel="noopener noreferrer" style="text-decoration-color: initial; user-select: auto; box-sizing: inherit;" target="_blank">https://laurahellfeld.co.uk</a>

<span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip" fr-original-style="" style="background-color: rgb(248, 248, 255); border: 1px solid rgb(191, 191, 255); border-radius: 4px; color: rgb(42, 42, 196); padding: 1px 8px; font-size: 11px; display: inline-block; margin: 0px; overflow-wrap: anywhere; user-select: none; box-sizing: inherit;">First name,<p dir="ltr" fr-original-style="line-height:1.7999999999999998;background-color:#ffffff;margin-top:0pt;margin-bottom:0pt;" style="line-height: 1.8; background-color: rgb(255, 255, 255); margin: 0pt 0px; width: 100%; box-sizing: inherit; color: rgb(0, 0, 0);"> You&#39;re in! Thanks for signing up for PANS/PANDAS &amp; Neurodivergence on Thursday, January 29th &nbsp;at 12PM (CST).<p dir="ltr" fr-original-style="line-height:1.7999999999999998;background-color:#ffffff;margin-top:0pt;margin-bottom:0pt;" style="line-height: 1.8; background-color: rgb(255, 255, 255); margin: 0pt 0px; width: 100%; box-sizing: inherit; color: rgb(0, 0, 0);"> Topic: PANS/PANDAS &amp; NeurodivergenceTime: Jan 29, 2026 12:00 PM Central Time (US and Canada)Join Zoom Meeting<a fr-original-style="" href="https://us02web.zoom.us/j/84098974746?pwd=5KflCdHjKT7hvUb8X6wUa2bEtb9XZO.1" rel="noopener noreferrer" style="text-decoration-color: initial; user-select: auto; box-sizing: inherit;" target="_blank">https://us02web.zoom.us/j/84098974746?pwd=5KflCdHjKT7hvUb8X6wUa2bEtb9XZO.1</a><a fr-original-style="" href="https://us02web.zoom.us/j/84098974746?pwd=5KflCdHjKT7hvUb8X6wUa2bEtb9XZO.1" rel="noopener noreferrer" style="text-decoration-color: initial; user-select: auto; box-sizing: inherit;" target="_blank"> </a>Meeting ID: 840 9897 4746Passcode: 142265 Warmly, The PDA North America Team

Join us for a neuro-affirming webinar exploring the overlap between PANS, PANDAS, and neurodivergence. Together, we’ll unpack what these experiences can look like in everyday life and offer practical, compassionate tools to support children and young people—at home and in educational settings—as they navigate PANS/PANDAS. BiosHelen Edgar is a late-identified Autistic advocate, author, and autism consultant with over 20 years’ experience in Early Years and SEND educational settings. She is the founder of Autistic Realms, where she provides neurodiversity-affirming resources, training, and consultancy. Helen is a parent to two neurodivergent children and also has lived experience of supporting people with PANS/PANDAS.  <a href="https://autisticrealms.com" target="_blank">https://autisticrealms.com</a>   Laura Hellfeld is a neurodivergent health educator, author and works as an independent Nurse and Sleep Consultant. They specialise in supporting neurodivergent and disabled people with self-care needs like food and eating, toileting, sleep, and hygiene which are often affected by PANS and PANDAS. <a href="https://laurahellfeld.co.uk" target="_blank">https://laurahellfeld.co.uk</a>

PDA North America

Understanding the overlap of PDA & PANS/PANDAS

General Admission

$39