Prader Willi Alliance Of New York Inc

### Context Profile for Prader Willi Alliance of New York Inc.

1. **Organization Mission & Cause:**
   - The Prader Willi Alliance of New York Inc. is dedicated to supporting individuals with Prader-Willi Syndrome (PWS) and their families. Their mission focuses on providing education, advocacy, and resources to improve the quality of life for those affected by PWS. They aim to raise awareness about the syndrome and promote research for better treatment options.

2. **Type of Activities:**
   - **Conferences and Events:** The organization hosts annual conferences, such as the upcoming "Mini Conference" scheduled for May 2-3, 2025, which includes sessions for families, a meet-and-greet, and family activities.
   - **Community Programs:** They offer resources and support for families, including activity rooms for individuals with PWS during events and partnerships with local venues for family outings.
   - **Fundraising Campaigns:** They engage in fundraising activities to support their programs and initiatives, including registration fees for events.

3. **Tone of Voice:**
   - The tone of the organization is **friendly, supportive, and informative**. Communications are designed to be welcoming and encouraging, aiming to foster a sense of community among families affected by PWS. The language is straightforward and accessible, focusing on clarity and warmth.

4. **Emoji Usage:**
   - The organization does use emojis in their communications, such as in email reminders (e.g., 📍 for location). Emoji usage appears to be moderate, primarily for enhancing engagement and adding a friendly touch to messages.

5. **Key Facts:**
   - **Founding Info:** Specific founding details were not available on the website, but the organization has been active in supporting individuals with PWS for several years.
   - **Scale:** The organization appears to have a modest scale, focusing on New York with targeted events and community engagement.
   - **Impact Metrics:** While specific metrics were not detailed, the organization emphasizes community support and educational outreach as key measures of their impact.
   - **Volunteer Info:** Information regarding volunteer opportunities was not explicitly mentioned on the website, but community involvement is likely encouraged through events and programs.

6. **Writing Guidelines:**
   - **Style:** Use a friendly and supportive tone, avoiding overly technical language. Aim for clarity and accessibility.
   - **Structure:** Keep content organized with clear headings and bullet points when listing activities or resources.
   - **Engagement:** Incorporate personal touches, such as addressing the audience directly and using first names where appropriate.
   - **Visuals:** Consider using emojis sparingly to enhance engagement without overwhelming the message.
   - **Call to Action:** Encourage participation in events and support for fundraising initiatives clearly and positively.

This context profile provides a comprehensive understanding of the Prader Willi Alliance of New York Inc., enabling AI assistants to generate tailored and effective content that aligns with the organization’s mission and communication style.

LXCL:Registration includes all conference sessions and events (including the Meet and Greet Friday evening). Also included are breakfast and lunch Friday and Saturday, as well as membership in PWANY for 2026.

First Attendee (family)/ Professional

LXCL:Includes all sessions and events OR activity room participation.

Second Attendee (family)

Third Attendee (family)

Additional family attendee(s)

Join us at our 2026 Conference, where we focus on community-building, education, and support for families and individuals impacted by Prader-Willi Syndrome. We can&#39;t wait to see you there!

<span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip" fr-original-style="" style="background-color: rgb(248, 248, 255); border: 1px solid rgb(191, 191, 255); border-radius: 4px; color: rgb(42, 42, 196); padding: 1px 8px; font-size: 11px; display: inline-block; margin: 0px; overflow-wrap: anywhere; user-select: none; box-sizing: inherit;">First name, We look forward to welcoming you to the 2026 Conference in Syracuse. This event promises a wonderful opportunity for community-building, learning, and sharing. Our event website will be updated as schedules are confirmed and additional details become available. Please reach out to alliance@prader-willi.org with any questions. We are grateful to have you on this journey with us! Warm regards, The Prader Willi Alliance of New York Team<span contenteditable="false" data-button-color="{{#5555E7}}" data-custom-link="{{https://sites.google.com/view/pwany2026conference/home}}" data-custom-variable="{{custom-link-button-bbec5167-51f6-4246-a7d8-63f6ffeef203}}" data-text="{{Click here to visit event website}}" fr-original-class="fr-deletable styled-tag-button" fr-original-style="background-color: #5555E7" style="background-color: rgb(85, 85, 231); border-radius: 8px; height: 36px; color: rgb(255, 255, 255); padding: 8px 16px; font-size: 14px; line-height: 20px; font-family: Roboto; font-weight: 500; display: inline-block; margin: 0px; overflow-wrap: anywhere; user-select: none; box-sizing: inherit;">Click here to visit event website

Join us at our 2026 Conference, where we focus on community-building, education, and support for families and individuals impacted by Prader-Willi Syndrome. We can't wait to see you there!

Prader Willi Alliance Of New York Inc

PWANY 2026 Conference

DoubleTree by Hilton (6301 NY-298

First Attendee (family)/ Professional

$150

Second Attendee (family)

$100

Third Attendee (family)

$100

Additional family attendee(s)

free

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