Not Defined By FND

### Context Profile for Not Defined By FND

#### 1. Organization Mission & Cause
Not Defined By FND is dedicated to supporting individuals affected by Functional Neurological Disorder (FND). Their mission is to provide a safe, welcoming, and empathetic environment for those living with FND and their supporters. They aim to foster community, understanding, and empowerment, helping individuals navigate the complexities of FND through shared experiences and support.

#### 2. Type of Activities
- **Support Groups:** They host online support groups, such as the "FND Empowerment Circle," which focuses on creating a structured environment for discussions around FND. These sessions are designed to provide practical guidance and emotional support.
- **Community Engagement:** The organization emphasizes building a community where participants can share their experiences and feelings, thus reducing isolation.
- **Educational Resources:** They likely provide resources and information about FND, although specific details were not extracted from the website.

#### 3. Tone of Voice
The tone of voice used by Not Defined By FND is:
- **Friendly and Supportive:** The language is warm and inviting, aiming to create a sense of belonging.
- **Empowering:** The communication focuses on hope and strength, encouraging participants to share and connect positively.
- **Informal yet Respectful:** The tone is casual enough to feel approachable while maintaining respect for the sensitive nature of the discussions.

#### 4. Emoji Usage
The website and communications do not prominently feature emojis. The tone is conveyed through words rather than visual elements, suggesting a focus on clarity and professionalism in their messaging.

#### 5. Key Facts
- **Founding Info:** Specific founding details were not available on the website.
- **Scale:** The organization has conducted 5 total forms and 25 total email campaigns, indicating an active engagement with their community.
- **Impact Metrics:** While specific metrics were not provided, the focus on community support suggests a commitment to fostering connections and reducing feelings of isolation among participants.
- **Volunteer Info:** The support groups are facilitated by volunteers who understand FND, emphasizing the organization's reliance on community involvement.

#### 6. Writing Guidelines
- **Clarity and Empathy:** Use clear and empathetic language to ensure that all communications are accessible and supportive.
- **Positive Framing:** Focus on positive outcomes and empowerment, encouraging participants to share their stories while maintaining an uplifting atmosphere.
- **Inclusive Language:** Ensure that the language used is inclusive and respectful, allowing for anonymity and comfort in participation.
- **Structured Content:** Organize information in a way that is easy to digest, using headings and bullet points where appropriate to enhance readability.

This context profile serves as a guide for crafting personalized content that aligns with Not Defined By FND's mission, tone, and activities, ensuring that communications resonate with their audience effectively.

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Please see our website for group rules & expectations<span fr-original-style="color: rgb(31, 31, 31); font-family: &quot;Google Sans&quot;, Roboto, Arial, sans-serif; font-size: 14px; font-style: normal; font-variant-ligatures: normal; font-variant-caps: normal; font-weight: 400; letter-spacing: normal; orphans: 2; text-align: start; text-indent: 0px; text-transform: none; widows: 2; word-spacing: 0px; -webkit-text-stroke-width: 0px; white-space: pre-wrap; background-color: rgb(240, 244, 249); text-decoration-thickness: initial; text-decoration-style: initial; text-decoration-color: initial; display: inline !important; float: none;" style="color:rgb(31, 31, 31);font-family:&quot;Google Sans&quot;, Roboto, Arial, sans-serif;font-size:14px;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:pre-wrap;background-color:rgb(240, 244, 249);text-decoration-thickness:initial;text-decoration-style:initial;text-decoration-color:initial;float:none;display:inline !important;box-sizing:inherit">: <a href="https://www.google.com/url?q=https://www.notdefinedbyfnd.org/fnd-empowerment-circle&sa=D&source=calendar&ust=1740679266293405&usg=AOvVaw0FcJRGrjqCbX4H_lnmi6Wc" style="text-decoration:underline;color:var(--gm3-sys-color-primary);font-family:&quot;Google Sans&quot;, Roboto, Arial, sans-serif;font-size:14px;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:pre-wrap;background-color:rgb(240, 244, 249);user-select:auto;box-sizing:inherit" target="_blank">https://www.notdefinedbyfnd.org/fnd-empowerment-circle</a> <span fr-original-style="color: rgb(31, 31, 31); font-family: &quot;Google Sans&quot;, Roboto, Arial, sans-serif; font-size: 14px; font-style: normal; font-variant-ligatures: normal; font-variant-caps: normal; font-weight: 400; letter-spacing: normal; orphans: 2; text-align: start; text-indent: 0px; text-transform: none; widows: 2; word-spacing: 0px; -webkit-text-stroke-width: 0px; white-space: pre-wrap; background-color: rgb(240, 244, 249); text-decoration-thickness: initial; text-decoration-style: initial; text-decoration-color: initial; display: inline !important; float: none;" style="color:rgb(31, 31, 31);font-family:&quot;Google Sans&quot;, Roboto, Arial, sans-serif;font-size:14px;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:pre-wrap;background-color:rgb(240, 244, 249);text-decoration-thickness:initial;text-decoration-style:initial;text-decoration-color:initial;float:none;display:inline !important;box-sizing:inherit">FND Empowerment Circle: Online Support Group is a virtual support group created to provide a safe, welcoming, and empathetic space for anyone affected by Functional Neurological Disorder (FND). Hosted by Not Defined by FND, this online support circle offers a sense of community, understanding, and empowerment for those living with FND and those who support them. <span fr-original-style="color: rgb(31, 31, 31); font-family: &quot;Google Sans&quot;, Roboto, Arial, sans-serif; font-size: 14px; font-style: normal; font-variant-ligatures: normal; font-variant-caps: normal; font-weight: 400; letter-spacing: normal; orphans: 2; text-align: start; text-indent: 0px; text-transform: none; widows: 2; word-spacing: 0px; -webkit-text-stroke-width: 0px; white-space: pre-wrap; background-color: rgb(240, 244, 249); text-decoration-thickness: initial; text-decoration-style: initial; text-decoration-color: initial; display: inline !important; float: none;" style="color:rgb(31, 31, 31);font-family:&quot;Google Sans&quot;, Roboto, Arial, sans-serif;font-size:14px;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:pre-wrap;background-color:rgb(240, 244, 249);text-decoration-thickness:initial;text-decoration-style:initial;text-decoration-color:initial;float:none;display:inline !important;box-sizing:inherit">This group is open to FND warriors and supporters—anyone affected by FND, including those living with the condition and their families, friends, or caregivers. Each session will focus on a specific topic related to FND, allowing for structured, meaningful discussions. Facilitated by volunteers who understand the complexities of FND, the group focuses on practical guidance, emotional well-being, and empowering individuals to better manage the daily impacts of the condition. <span fr-original-style="color: rgb(31, 31, 31); font-family: &quot;Google Sans&quot;, Roboto, Arial, sans-serif; font-size: 14px; font-style: normal; font-variant-ligatures: normal; font-variant-caps: normal; font-weight: 400; letter-spacing: normal; orphans: 2; text-align: start; text-indent: 0px; text-transform: none; widows: 2; word-spacing: 0px; -webkit-text-stroke-width: 0px; white-space: pre-wrap; background-color: rgb(240, 244, 249); text-decoration-thickness: initial; text-decoration-style: initial; text-decoration-color: initial; display: inline !important; float: none;" style="color:rgb(31, 31, 31);font-family:&quot;Google Sans&quot;, Roboto, Arial, sans-serif;font-size:14px;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:pre-wrap;background-color:rgb(240, 244, 249);text-decoration-thickness:initial;text-decoration-style:initial;text-decoration-color:initial;float:none;display:inline !important;box-sizing:inherit">While we understand that living with FND can be challenging, we strive to maintain a positive and uplifting atmosphere in each session. While it is perfectly ok to vent, we encourage participants to keep the conversation as positive as possible, focusing on hope, support, and the strength we all bring to the table. <span fr-original-style="color: rgb(31, 31, 31); font-family: &quot;Google Sans&quot;, Roboto, Arial, sans-serif; font-size: 14px; font-style: normal; font-variant-ligatures: normal; font-variant-caps: normal; font-weight: 400; letter-spacing: normal; orphans: 2; text-align: start; text-indent: 0px; text-transform: none; widows: 2; word-spacing: 0px; -webkit-text-stroke-width: 0px; white-space: pre-wrap; background-color: rgb(240, 244, 249); text-decoration-thickness: initial; text-decoration-style: initial; text-decoration-color: initial; display: inline !important; float: none;" style="color:rgb(31, 31, 31);font-family:&quot;Google Sans&quot;, Roboto, Arial, sans-serif;font-size:14px;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:pre-wrap;background-color:rgb(240, 244, 249);text-decoration-thickness:initial;text-decoration-style:initial;text-decoration-color:initial;float:none;display:inline !important;box-sizing:inherit">Participants are welcome to remain anonymous if they prefer. You can use your real name or a nickname, turn your camera on or off, and choose whether to use your microphone or stay silent. The group fully respects your privacy, allowing you to engage in a way that feels most comfortable and secure for you. <span fr-original-style="color: rgb(31, 31, 31); font-family: &quot;Google Sans&quot;, Roboto, Arial, sans-serif; font-size: 14px; font-style: normal; font-variant-ligatures: normal; font-variant-caps: normal; font-weight: 400; letter-spacing: normal; orphans: 2; text-align: start; text-indent: 0px; text-transform: none; widows: 2; word-spacing: 0px; -webkit-text-stroke-width: 0px; white-space: pre-wrap; background-color: rgb(240, 244, 249); text-decoration-thickness: initial; text-decoration-style: initial; text-decoration-color: initial; display: inline !important; float: none;" style="color:rgb(31, 31, 31);font-family:&quot;Google Sans&quot;, Roboto, Arial, sans-serif;font-size:14px;font-style:normal;font-variant-ligatures:normal;font-variant-caps:normal;font-weight:400;letter-spacing:normal;orphans:2;text-align:start;text-indent:0px;text-transform:none;widows:2;word-spacing:0px;-webkit-text-stroke-width:0px;white-space:pre-wrap;background-color:rgb(240, 244, 249);text-decoration-thickness:initial;text-decoration-style:initial;text-decoration-color:initial;float:none;display:inline !important;box-sizing:inherit">Whether you are newly diagnosed or have been living with FND for some time, or are a supporter of someone who lives with FND, this support circle helps reduce feelings of isolation, offers hope, and encourages a shared sense of strength through connection. All are welcome to join in creating a supportive, understanding, and uplifting virtual community where participants can feel heard and empowered.

Hi <span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip" fr-original-style style="background-color:rgb(248, 248, 255);border:1px solid rgb(191, 191, 255);border-radius:4px;color:rgb(42, 42, 196);padding:1px 8px;font-size:11px;display:inline-block;margin:0px;overflow-wrap:anywhere;user-select:none;box-sizing:inherit">First name , Thank you for RSVPing for our upcoming FND Empowerment Circle session! We're so glad you'll be joining us. Feel free to participate in whatever way feels right for you—camera on or off, mic on or off. This is a safe and supportive space for FND warriors, caregivers, and supporters. If you have any questions before the session, don’t hesitate to reach out. Looking forward to seeing you there! 😊💙 If you would like to contribute further, contact us to become a volunteer, or talk to your friends about our cause! — The Not Defined by FND Teamevents@notdefinedbyfnd.org

Please see our website for group rules &amp; expectations: <a href="https://www.google.com/url?q=https://www.notdefinedbyfnd.org/fnd-empowerment-circle&amp;sa=D&amp;source=calendar&amp;ust=1740679266293405&amp;usg=AOvVaw0FcJRGrjqCbX4H_lnmi6Wc" target="_blank">https://www.notdefinedbyfnd.org/fnd-empowerment-circle</a> FND Empowerment Circle: Online Support Group is a virtual support group created to provide a safe, welcoming, and empathetic space for anyone affected by Functional Neurological Disorder (FND). Hosted by Not Defined by FND, this online support circle offers a sense of community, understanding, and empowerment for those living with FND and those who support them. This group is open to FND warriors and supporters—anyone affected by FND, including those living with the condition and their families, friends, or caregivers. Each session will focus on a specific topic related to FND, allowing for structured, meaningful discussions. Facilitated by volunteers who understand the complexities of FND, the group focuses on practical guidance, emotional well-being, and empowering individuals to better manage the daily impacts of the condition. While we understand that living with FND can be challenging, we strive to maintain a positive and uplifting atmosphere in each session. While it is perfectly ok to vent, we encourage participants to keep the conversation as positive as possible, focusing on hope, support, and the strength we all bring to the table. Participants are welcome to remain anonymous if they prefer. You can use your real name or a nickname, turn your camera on or off, and choose whether to use your microphone or stay silent. The group fully respects your privacy, allowing you to engage in a way that feels most comfortable and secure for you. Whether you are newly diagnosed or have been living with FND for some time, or are a supporter of someone who lives with FND, this support circle helps reduce feelings of isolation, offers hope, and encourages a shared sense of strength through connection. All are welcome to join in creating a supportive, understanding, and uplifting virtual community where participants can feel heard and empowered.

Not Defined By FND

(Sat. PM) FND Empowerment Circle: Online Support Group

https://us06web.zoom.us/j/83655949153

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