spina bifida of western new york inc

### Context Profile for Spina Bifida of Western New York Inc.

#### 1. Organization Mission & Cause
**Mission:** Spina Bifida of Western New York Inc. is dedicated to improving the quality of life for individuals with spina bifida and their families. Their mission focuses on providing support, education, and advocacy to enhance the well-being of those affected by this condition. They aim to raise awareness about spina bifida and promote inclusivity within the community.

**Cause:** The organization emphasizes the importance of community support, education, and resources for individuals with spina bifida, aiming to empower them to lead fulfilling lives.

#### 2. Type of Activities
- **Community Programs:** They offer various programs aimed at supporting individuals with spina bifida and their families, including educational workshops and social events.
- **Fundraising Campaigns:** The organization conducts fundraising campaigns to support their initiatives, including merchandise sales (e.g., T-shirts).
- **Awareness Events:** They participate in and organize events to raise awareness about spina bifida and related issues.
- **Support Services:** They provide resources and support for families navigating the challenges associated with spina bifida.

#### 3. Tone of Voice
The tone of voice on the website is **friendly, supportive, and informative**. The language is accessible and aims to foster a sense of community and belonging. The organization uses positive and encouraging language to inspire hope and empowerment among individuals and families affected by spina bifida.

#### 4. Emoji Usage
The website does not prominently feature emojis in its communications. However, in the recent campaign form and thank-you email, there is a friendly and warm tone that could benefit from occasional emoji usage to enhance engagement, though it is not currently a part of their established communication style.

#### 5. Key Facts
- **Founding Information:** Specific founding details were not listed on the website.
- **Scale:** The organization has a total of 42 forms and has conducted at least one email campaign.
- **Impact Metrics:** The website does not provide specific metrics on impact but emphasizes community engagement and support.
- **Volunteer Information:** There is no specific volunteer information available on the website, but they likely encourage community involvement and support.

#### 6. Writing Guidelines
- **Style:** Maintain a friendly and supportive tone, using clear and accessible language.
- **Content Structure:** Use headings and bullet points to enhance readability, especially for educational content.
- **Engagement:** Incorporate personal stories or testimonials to connect with the audience emotionally.
- **Call to Action:** Use clear and motivating calls to action, encouraging support and participation in programs and events.

This context profile should serve as a foundational guide for generating personalized and effective content for Spina Bifida of Western New York Inc., aligning with their mission and communication style.

LXCL:Registration for 2026 Walk and Roll for SBWNY 
Date: May 16th 2026
Time: 1p - 4p
Event Address: Cheektowaga Town Park 2600 Harlem Rd., Cheektowaga, NY 14225
Contact us at sbofwny@gmail.com 

It is free to register

General admission

<span fr-original-style='color: rgb(8, 8, 9); font-family: "Segoe UI Historic", "Segoe UI", Helvetica, Arial, sans-serif; font-size: 15px; font-style: normal; font-variant-ligatures: normal; font-variant-caps: normal; font-weight: 400; letter-spacing: normal; orphans: 2; text-align: start; text-indent: 0px; text-transform: none; widows: 2; word-spacing: 0px; -webkit-text-stroke-width: 0px; white-space: normal; background-color: rgb(255, 255, 255); text-decoration-thickness: initial; text-decoration-style: initial; text-decoration-color: initial; display: inline !important; float: none;' style='color: rgb(8, 8, 9); font-family: "Segoe UI Historic", "Segoe UI", Helvetica, Arial, sans-serif; font-size: 15px; font-style: normal; font-variant-ligatures: normal; font-variant-caps: normal; font-weight: 400; letter-spacing: normal; orphans: 2; text-align: start; text-indent: 0px; text-transform: none; widows: 2; word-spacing: 0px; -webkit-text-stroke-width: 0px; white-space: normal; background-color: rgb(255, 255, 255); text-decoration-thickness: initial; text-decoration-style: initial; text-decoration-color: initial; float: none; display: inline !important; box-sizing: inherit;'>Join us for our fifth annual Walk &amp; Roll for Spina Bifida of Western New York at the Lions Pavillion in Cheektowaga Town Park! A family-friendly wheelchair-accessible 1-mile walk aimed to raise funds, celebrate the lives and accomplishments of the people we serve, and raise community awareness of the day-to-day challenges people with Spina Bifida face.&nbsp;

<span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip" fr-original-style="" style="background-color: rgb(248, 248, 255); border: 1px solid rgb(191, 191, 255); border-radius: 4px; color: rgb(42, 42, 196); padding: 1px 8px; font-size: 11px; display: inline-block; margin: 0px; overflow-wrap: anywhere; user-select: none; box-sizing: inherit;">First name, Thank you so much for registering for our upcoming Spina Bifida of Western New York Walk &amp; Roll event. Your commitment to helping raise awareness and support for our community means the world to us. This event is more than just a walk&mdash;it&#39;s a celebration of the strength and achievements of those living with spina bifida. We are truly grateful for your support and can&rsquo;t wait to share this joyous day with all participants soon! Warm regards, The Spina Bifida of Western New York Team

Join us for our fifth annual Walk &amp; Roll for Spina Bifida of Western New York at the Lions Pavillion in Cheektowaga Town Park! A family-friendly wheelchair-accessible 1-mile walk aimed to raise funds, celebrate the lives and accomplishments of the people we serve, and raise community awareness of the day-to-day challenges people with Spina Bifida face.

spina bifida of western new york inc

Spina Bifida of Western New York walk and roll 2026

2600 Harlem Rd

General admission

Free