#AbbyStrong Fights NPC

### Context Profile for #AbbyStrong Fights NPC

1. **Organization Mission & Cause:**
   - **Mission:** AbbyStrong Fights NPC is dedicated to fighting Niemann-Pick Type C (NPC), a rare disease often referred to as "childhood dementia." The organization aims to ensure that no family faces the challenges of this disease alone, advocating for essential care, support, and research towards life-saving treatments.
   - **Cause:** The organization focuses on providing hope and support to children and families affected by NPC, emphasizing the importance of community, education, and awareness in the fight against childhood dementia.

2. **Type of Activities:**
   - **Advocacy:** Raising awareness about NPC and its impact on children and families.
   - **Support Programs:** Offering educational resources and advocacy to assist families navigating the complexities of the disease.
   - **Research Funding:** Allocating donations towards critical research efforts aimed at finding effective treatments for NPC.
   - **Fundraising Campaigns:** Engaging the community through campaigns like "Save Abby & Cure Childhood Dementia" to raise funds and awareness.

3. **Tone of Voice:**
   - The tone is **inspiring**, **empathetic**, and **supportive**. The language used is accessible and warm, aiming to connect emotionally with readers. Phrases like "together, we can bring light and strength" reflect a collaborative and hopeful approach.

4. **Emoji Usage:**
   - The website does not prominently feature emojis in its content. The tone remains professional and heartfelt without the use of emojis, focusing on clear and impactful messaging.

5. **Key Facts:**
   - **Founding Info:** AbbyStrong Fights NPC is a 501(c)(3) nonprofit organization, indicating its tax-exempt status and commitment to charitable activities.
   - **Impact Metrics:** The organization emphasizes the direct impact of donations on supporting families, funding research, and raising awareness.
   - **Volunteer Info:** While specific volunteer opportunities are not detailed on the website, the organization likely encourages community involvement through donations and advocacy efforts.

6. **Writing Guidelines:**
   - **Style:** Use clear, concise language that conveys empathy and urgency. Focus on storytelling to illustrate the challenges faced by families dealing with NPC.
   - **Structure:** Use headings, bullet points, and short paragraphs to enhance readability. Highlight key messages and calls to action prominently.
   - **Emotional Appeal:** Incorporate personal stories or testimonials that resonate with the audience's emotions, fostering a sense of community and shared purpose.
   - **Call to Action:** Always include a strong call to action, encouraging donations and participation in advocacy efforts.

This context profile will guide AI assistants in crafting personalized and impactful content that aligns with the mission and values of AbbyStrong Fights NPC.

LXCL:Your registration includes:• 4 Person Captain’s Choice tournament play • Golf cart and unlimited range balls • Tournament lunch • Cold beverages • Awards dinner • Individual and team prizes • Closest to the Pin and Longest Drive contests • Putting and Driving Range contests • Complimentary cigars

Foursome Team Registration

LXCL:Your registration includes:• Being matched to a 4 Person Captain’s Choice team • Golf cart and unlimited range balls • Tournament lunch • Cold beverages • Awards dinner • Individual and team prizes • Closest to the Pin and Longest Drive contests • Putting and Driving Range contests • Complimentary cigars

Individual Golfer

LXCL:Includes 2 Mulligans, 1 Poker Game Card, and 1 entry into the Wheelbarrow of Cheer raffle.

Play to Win Package

Check made out to AbbyStrong Fights NPC
Address to send check: 231 Eastman Rd. Richmond, Va. 23236

Join us for the inaugural AbbyStrong Classic! This is a 4 Person Captain&rsquo;s Choice tournament benefiting AbbyStrong Fights NPC and families facing childhood dementia. This is more than a round of golf. It is a day to rally around children whose lives are threatened by rare, progressive brain diseases. It is a day to stand beside families who wake up every morning fighting for time, access to treatment, and hope. AbbyStrong was born from one little girl&rsquo;s courage. Abby was diagnosed with Niemann Pick Disease Type C, an ultra-rare, terminal and progressive form of childhood dementia. What began as one family&rsquo;s fight has grown into a mission to advocate for more than 140 genetic disorders that cause childhood dementia worldwide. Abby is a superhero and her strength in fight for survival has inspired so many.&nbsp; <a fr-original-style="" href="https://www.12onyourside.com/2024/04/25/parents-fight-access-help-child-with-illness-similar-dementia/" rel="noopener noreferrer" style="text-decoration-color: initial; user-select: auto; box-sizing: inherit;" target="_blank">Abby&#39;s Story on NBC12</a> On April 13, we gather at Brandermill Country Club not just to compete, but to make an impact. Your registration includes:<ul fr-original-style="" style="box-sizing: inherit;"><li fr-original-style="" style="box-sizing: inherit;">4 Person Captain&rsquo;s Choice tournament play</li><li fr-original-style="" style="box-sizing: inherit;">Golf cart and unlimited range balls</li><li fr-original-style="" style="box-sizing: inherit;">Tournament lunch</li><li fr-original-style="" style="box-sizing: inherit;">Cold beverages</li><li fr-original-style="" style="box-sizing: inherit;">Awards dinner</li><li fr-original-style="" style="box-sizing: inherit;">Individual and team prizes</li><li fr-original-style="" style="box-sizing: inherit;">Closest to the Pin and Longest Drive contests</li><li fr-original-style="" style="box-sizing: inherit;">Putting and Driving Range contests</li><li fr-original-style="" style="box-sizing: inherit;">Complimentary cigars</li></ul>Tournament Schedule:10:30 AM Registration Opens and Driving Range Opens11:00 AM Tournament Lunch11:45 AM Putting Contest Finals11:55 AM Tournament Rules12:00 PM Shotgun Start5:30 PM Awards Dinner Make the most of your day by participating in our Poker Mulligan Game and Wheelbarrow of Cheer raffle. Enter contests, support local sponsors, and help us raise critical funds for advocacy, research awareness, and family support. Whether you are registering a team, becoming a sponsor, or simply showing up to stand with us, your presence moves this mission forward. Together, we are fighting childhood dementia. Together, we are AbbyStrong.<img src="https://res.cloudinary.com/hxn9dbuhd/image/upload/v1771525094/wysiwyg/pgv5zxtjqh2lnuzg4hxh.jpg" style="width: 137px; display: block; vertical-align: top; margin: 5px auto; text-align: center; position: relative; max-width: 100%; cursor: pointer; padding: 0px 1px; user-select: none; box-sizing: inherit; border-radius: 10px; background-clip: padding-box;" fr-original-style="width: 137px; display: block; vertical-align: top; margin: 5px auto; text-align: center;" fr-original-class="fr-draggable fr-rounded"><img src="https://res.cloudinary.com/hxn9dbuhd/image/upload/v1771603859/wysiwyg/rpaa9uqpa57vzafwdfpf.jpg" style="width: 133px; display: block; vertical-align: top; margin: 5px auto; text-align: center; position: relative; max-width: 100%; cursor: pointer; padding: 0px 1px; user-select: none; box-sizing: inherit;" fr-original-style="width: 133px; display: block; vertical-align: top; margin: 5px auto; text-align: center;" fr-original-class="fr-draggable">

<span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip" fr-original-style="" style="background-color: rgb(248, 248, 255); border: 1px solid rgb(191, 191, 255); border-radius: 4px; color: rgb(42, 42, 196); padding: 1px 8px; font-size: 11px; display: inline-block; margin: 0px; overflow-wrap: anywhere; user-select: none; box-sizing: inherit;">First name, Get ready to have fun and make history! We are so grateful for your registration for the AbbyStrong Classic. Your commitment means the world to us and the families we support. By joining us for this event, you&#39;re standing with families battling childhood dementia, bringing hope and advocacy to those who need it most. This is more than just a day of golf; it&#39;s an opportunity to make a lasting impact. We can&#39;t wait to share this meaningful day with you and make a difference together. Thank you for being a part of our mission. Together, we are AbbyStrong.<a fr-original-style="" href="https://www.abbynpc.org" rel="noopener noreferrer" style="text-decoration-color: initial; user-select: auto; box-sizing: inherit;" target="_blank">Learn More About Childhood Dementia</a>

Join us for the inaugural AbbyStrong Classic! This is a 4 Person Captain’s Choice tournament benefiting AbbyStrong Fights NPC and families facing childhood dementia. This is more than a round of golf. It is a day to rally around children whose lives are threatened by rare, progressive brain diseases. It is a day to stand beside families who wake up every morning fighting for time, access to treatment, and hope. AbbyStrong was born from one little girl’s courage. Abby was diagnosed with Niemann Pick Disease Type C, an ultra-rare, terminal and progressive form of childhood dementia. What began as one family’s fight has grown into a mission to advocate for more than 140 genetic disorders that cause childhood dementia worldwide. Abby is a superhero and her strength in fight for survival has inspired so many.  <a href="https://www.12onyourside.com/2024/04/25/parents-fight-access-help-child-with-illness-similar-dementia/" target="_blank">Abby's Story on NBC12</a> On April 13, we gather at Brandermill Country Club not just to compete, but to make an impact. Your registration includes:<ul><li>4 Person Captain’s Choice tournament play</li><li>Golf cart and unlimited range balls</li><li>Tournament lunch</li><li>Cold beverages</li><li>Awards dinner</li><li>Individual and team prizes</li><li>Closest to the Pin and Longest Drive contests</li><li>Putting and Driving Range contests</li><li>Complimentary cigars</li></ul>Tournament Schedule:10:30 AM Registration Opens and Driving Range Opens11:00 AM Tournament Lunch11:45 AM Putting Contest Finals11:55 AM Tournament Rules12:00 PM Shotgun Start5:30 PM Awards Dinner Make the most of your day by participating in our Poker Mulligan Game and Wheelbarrow of Cheer raffle. Enter contests, support local sponsors, and help us raise critical funds for advocacy, research awareness, and family support. Whether you are registering a team, becoming a sponsor, or simply showing up to stand with us, your presence moves this mission forward. Together, we are fighting childhood dementia. Together, we are AbbyStrong.<img src="https://res.cloudinary.com/hxn9dbuhd/image/upload/v1771525094/wysiwyg/pgv5zxtjqh2lnuzg4hxh.jpg" style="width:137px;display:block;vertical-align:top;margin:5px auto;text-align:center;position:relative;cursor:pointer;padding:0px 1px;user-select:none;box-sizing:inherit;border-radius:10px;max-width:100%" /><img src="https://res.cloudinary.com/hxn9dbuhd/image/upload/v1771603859/wysiwyg/rpaa9uqpa57vzafwdfpf.jpg" style="width:133px;display:block;vertical-align:top;margin:5px auto;text-align:center;position:relative;cursor:pointer;padding:0px 1px;user-select:none;box-sizing:inherit;max-width:100%" />

#AbbyStrong Fights NPC

The AbbyStrong Classic 2026 – Player Registration

3700 Brandermill Pkwy

Foursome Team Registration

$600

Individual Golfer

$150

Play to Win Package

$20

Add a donation for #AbbyStrong Fights NPC