#AbbyStrong Fights NPC

### Context Profile for #AbbyStrong Fights NPC

1. **Organization Mission & Cause:**
   - **Mission:** AbbyStrong Fights NPC is dedicated to fighting Niemann-Pick Type C (NPC), a rare disease often referred to as "childhood dementia." The organization aims to ensure that no family faces the challenges of this disease alone, advocating for essential care, support, and research towards life-saving treatments.
   - **Cause:** The organization focuses on providing hope and support to children and families affected by NPC, emphasizing the importance of community, education, and awareness in the fight against childhood dementia.

2. **Type of Activities:**
   - **Advocacy:** Raising awareness about NPC and its impact on children and families.
   - **Support Programs:** Offering educational resources and advocacy to assist families navigating the complexities of the disease.
   - **Research Funding:** Allocating donations towards critical research efforts aimed at finding effective treatments for NPC.
   - **Fundraising Campaigns:** Engaging the community through campaigns like "Save Abby & Cure Childhood Dementia" to raise funds and awareness.

3. **Tone of Voice:**
   - The tone is **inspiring**, **empathetic**, and **supportive**. The language used is accessible and warm, aiming to connect emotionally with readers. Phrases like "together, we can bring light and strength" reflect a collaborative and hopeful approach.

4. **Emoji Usage:**
   - The website does not prominently feature emojis in its content. The tone remains professional and heartfelt without the use of emojis, focusing on clear and impactful messaging.

5. **Key Facts:**
   - **Founding Info:** AbbyStrong Fights NPC is a 501(c)(3) nonprofit organization, indicating its tax-exempt status and commitment to charitable activities.
   - **Impact Metrics:** The organization emphasizes the direct impact of donations on supporting families, funding research, and raising awareness.
   - **Volunteer Info:** While specific volunteer opportunities are not detailed on the website, the organization likely encourages community involvement through donations and advocacy efforts.

6. **Writing Guidelines:**
   - **Style:** Use clear, concise language that conveys empathy and urgency. Focus on storytelling to illustrate the challenges faced by families dealing with NPC.
   - **Structure:** Use headings, bullet points, and short paragraphs to enhance readability. Highlight key messages and calls to action prominently.
   - **Emotional Appeal:** Incorporate personal stories or testimonials that resonate with the audience's emotions, fostering a sense of community and shared purpose.
   - **Call to Action:** Always include a strong call to action, encouraging donations and participation in advocacy efforts.

This context profile will guide AI assistants in crafting personalized and impactful content that aligns with the mission and values of AbbyStrong Fights NPC.

LXCL:The Ara Parseghian Medical Research Fund was founded after Notre Dame Coach Ara Parseghian lost three of his grandchildren to Niemann-Pick Type C. Since then, the Fund has driven world-class research at the University of Notre Dame and beyond, accelerating breakthroughs that directly led to treatments now available to families like ours. The 2026 Parseghian Classic is an invitation-only golf fundraiser benefiting Niemann-Pick Type C research through the Ara Parseghian Medical Research Fund at the University of Notre Dame. This is not a discounted travel package.It is a premier, full-value philanthropic experience at one of the most iconic golf destinations in the world. Package Includes: • Registration for two guests (double occupancy)• Three-night stay at The Lodge at Pebble Beach• Tee times at Pebble Beach Golf Course and Spyglass Hill Golf Links• Putting contest• Private dinner and reception at The Beach Club featuring special guest comedian Aaron Weber• Full access to the event itinerary and activities Package value: $12,800Opening bid reflects full fair market value. By securing this experience, you are not only enjoying world-class golf and accommodations, you are advancing critical research for Niemann-Pick Type C, a devastating and fatal childhood disease. Travel and airfare not included.Valid for July 24 to July 27, 2026 event dates only. Full itinerary available at parseghianfund.nd.edu.

Pebble Beach Golf Getaway

Hi <span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip" fr-original-style="" style="background-color: rgb(248, 248, 255); border: 1px solid rgb(191, 191, 255); border-radius: 4px; color: rgb(42, 42, 196); padding: 1px 8px; font-size: 11px; display: inline-block; margin: 0px; overflow-wrap: anywhere; -webkit-touch-callout: none; -webkit-user-select: none; box-sizing: inherit;">First name, We hope this message finds you well. We wanted to take a moment to express our sincere gratitude for your participation in our recent silent auction. While we regret to inform you that you were not the winning bidder for the item(s) you selected, please know that your support and generosity have not gone unnoticed. Your contribution plays a vital role in helping us continue our mission and make a difference. You can always support our cause in other ways by donating, volunteering, or attending any of our upcoming fundraiser events. Thank you again for your participation, Warm regards, Garland Alveygalvey@abbynpc.org

The Stronger Together Silent Auction helps AbbyStrong Fights NPC support children and families facing Niemann-Pick Type C, often called &ldquo;childhood dementia.&rdquo; Every bid becomes part of the practical help, advocacy, and research that families urgently need. 🎗️ Browse the items, place your best bid, and know exactly what your participation does: it fuels resources for families, spreads awareness, and pushes research toward better treatments. Thank you for standing with kids like Abby and the community fighting beside her. 💛

<span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip" fr-original-style="" style="background-color: rgb(248, 248, 255); border: 1px solid rgb(191, 191, 255); border-radius: 4px; color: rgb(42, 42, 196); padding: 1px 8px; font-size: 11px; display: inline-block; margin: 0px; overflow-wrap: anywhere; -webkit-touch-callout: none; -webkit-user-select: none; box-sizing: inherit;">First name, Your commitment to making a difference is truly inspiring. Thank you for being a part of our The Stronger Together Silent Auction on Zeffy. Every bid you placed helps us support children and families battling Niemann-Pick Type C, often called &quot;childhood dementia.&quot; 🎗️ Your contribution not only fuels essential resources and research but also brings hope to kids like Abby and their families. Together, we&#39;re creating a brighter future for all affected by this rare disease. With heartfelt gratitude, The AbbyStrong Fights NPC TeamUniversity of Notre DameAra Parseghian Medical Research Fund

The Stronger Together Silent Auction helps AbbyStrong Fights NPC support children and families facing Niemann-Pick Type C, often called “childhood dementia.” Every bid becomes part of the practical help, advocacy, and research that families urgently need. 🎗️ Browse the items, place your best bid, and know exactly what your participation does: it fuels resources for families, spreads awareness, and pushes research toward better treatments. Thank you for standing with kids like Abby and the community fighting beside her. 💛