Obras maestras de Myhre: Subasta de arte del Día de las Enfermedades Raras 2025
For Mila - 16x20 Watercolor
$40
Puja inicial
Justin Smith created this piece and said, “Every morning, I sit and have a devotional, and this is similar to a painting I look at during my quiet time. I was inspired to do it because I always thought I could paint something similar, and it means a lot to me because, during those quiet mornings, I often pray for Mila. She is our miracle with Myhre and the heartbeat of our family. She is 8 years old and the mightiest, most brave and outgoing girl we have ever known. Her smile brightens the room, her confidence attracts everyone to her, and she attacks everything with bravery and poise. Because of her, we have learned to worship our Lord Jesus in the peaks and valleys, through the graves and gardens. That's why we bought the painting in the first place. For Mila.”
Justin Smith created this piece and said, “Every morning, I sit and have a devotional, and this is similar to a painting I look at during my quiet time. I was inspired to do it because I always thought I could paint something similar, and it means a lot to me because, during those quiet mornings, I often pray for Mila. She is our miracle with Myhre and the heartbeat of our family. She is 8 years old and the mightiest, most brave and outgoing girl we have ever known. Her smile brightens the room, her confidence attracts everyone to her, and she attacks everything with bravery and poise. Because of her, we have learned to worship our Lord Jesus in the peaks and valleys, through the graves and gardens. That's why we bought the painting in the first place. For Mila.”
Scientists At Work - A4 paper
$25
Puja inicial
Magda, who lives in Spain and has Myhre syndrome, drew this fantastic depiction of scientists working on SMAD4, the gene that has the mutation that causes Myhre.
Magda, who lives in Spain and has Myhre syndrome, drew this fantastic depiction of scientists working on SMAD4, the gene that has the mutation that causes Myhre.
Where Flowers Bloom So Does Hope - 8x10 Canvas
$40
Puja inicial
Taimy Alvarez is a Cuban-American independent photojournalist based in South Florida. With a passion for storytelling over 27 years, she has utilized her photography, videography, and video editing skills to amplify the marginalized’s voices, document pivotal moments in history, and evoke powerful emotions through her lens. Her work has garnered recognition from esteemed institutions in film, journalism, and photography, including the Academy of Television Arts and Sciences (Emmy) and the Pulitzer Prize.
Taimy is also a mixed media artist who incorporated photography, painting, and textiles to create pieces that examine her Cuban heritage and explore the places around the world she’s visited. Her most recent artwork is shown at the Gasper Arts Center in Hollywood, Florida for their Hispanic Heritage Exhibition.
Taimy’s passion for travel, cuisine, culture, and art has taken her around the world.
https://www.taimyalvarez.com/
Taimy Alvarez is a Cuban-American independent photojournalist based in South Florida. With a passion for storytelling over 27 years, she has utilized her photography, videography, and video editing skills to amplify the marginalized’s voices, document pivotal moments in history, and evoke powerful emotions through her lens. Her work has garnered recognition from esteemed institutions in film, journalism, and photography, including the Academy of Television Arts and Sciences (Emmy) and the Pulitzer Prize.
Taimy is also a mixed media artist who incorporated photography, painting, and textiles to create pieces that examine her Cuban heritage and explore the places around the world she’s visited. Her most recent artwork is shown at the Gasper Arts Center in Hollywood, Florida for their Hispanic Heritage Exhibition.
Taimy’s passion for travel, cuisine, culture, and art has taken her around the world.
https://www.taimyalvarez.com/
Winter Skies - 8x10 Framed, Oil on Canvas
$80
Puja inicial
Patti Gordon lives in Billings, Montana, and her nephew Patrick has Myhre syndrome.
Patti reflected, "My inspiration for these paintings stems from an appreciation of nature, the miracle of everyday things that God puts before us, and my desire to share that joy with others. Even on the coldest winter days, there is beauty to be found in the landscapes of Montana. It makes one appreciate the warmth and beauty of Spring, Summer, and Fall, as well.
Patti Gordon lives in Billings, Montana, and her nephew Patrick has Myhre syndrome.
Patti reflected, "My inspiration for these paintings stems from an appreciation of nature, the miracle of everyday things that God puts before us, and my desire to share that joy with others. Even on the coldest winter days, there is beauty to be found in the landscapes of Montana. It makes one appreciate the warmth and beauty of Spring, Summer, and Fall, as well.
Lucy the Lucky Panda - 8x10 Paint on Canvas
$25
Puja inicial
This adorable panda was created by Emma Lynn, a 9-year-old (4th grader). Emma is the niece of Katie White, who has Myhre syndrome, and the granddaughter of Ines White, our MSF Board President!
This adorable panda was created by Emma Lynn, a 9-year-old (4th grader). Emma is the niece of Katie White, who has Myhre syndrome, and the granddaughter of Ines White, our MSF Board President!
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$25
Puja inicial
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Everyone Else - 10x10 Acrylic on Canvas
$40
Puja inicial
Showing everyone different and you are not alone with what you're going through.
Livia is the inspiration for this piece. She is an 8-year-old girl from Washington State, USA. She was diagnosed last year with Myhre syndrome but shows mild signs. She is active in after-school theater camp and is currently learning to swim at the local pool. Livia is a happy, intelligent, empathetic young girl who adores Taylor Swift and dreams of being a singer one day. Peyton and Livia are close friends, like sisters really. Their bond drives Peyton to paint for Myhre. Thank you! Packaging and shipping will be included.
Showing everyone different and you are not alone with what you're going through.
Livia is the inspiration for this piece. She is an 8-year-old girl from Washington State, USA. She was diagnosed last year with Myhre syndrome but shows mild signs. She is active in after-school theater camp and is currently learning to swim at the local pool. Livia is a happy, intelligent, empathetic young girl who adores Taylor Swift and dreams of being a singer one day. Peyton and Livia are close friends, like sisters really. Their bond drives Peyton to paint for Myhre. Thank you! Packaging and shipping will be included.
Cabin in the Woods - 8x10 Oil on Canvas
$50
Puja inicial
By Susan Murphy, proud mom to Patrick who has Myhre syndrome. Susan from Billings, Montana was inspired by the Flathead area and the Mission Mountains in Northwest Montana. This is a place to leave everything behind and enjoy! Our son, Patrick is 34 years old and was diagnosed with Myhre syndrome at 27. He has debilitating joint pain, Restrictive Lung Disease, OCD, and has to wear thick corrective lenses. He is extremely smart and loves history, soaking in all information that is available to him. He loves football (Denver Broncos), gaming and cats, though all animals love him! He has a wonderful heart and a huge faith. He would love to one day do live streaming as a business. Most of all, he wants to walk without pain, and breathe easily . We anxiously await the day in the near future for a cure for this progressive disease.
By Susan Murphy, proud mom to Patrick who has Myhre syndrome. Susan from Billings, Montana was inspired by the Flathead area and the Mission Mountains in Northwest Montana. This is a place to leave everything behind and enjoy! Our son, Patrick is 34 years old and was diagnosed with Myhre syndrome at 27. He has debilitating joint pain, Restrictive Lung Disease, OCD, and has to wear thick corrective lenses. He is extremely smart and loves history, soaking in all information that is available to him. He loves football (Denver Broncos), gaming and cats, though all animals love him! He has a wonderful heart and a huge faith. He would love to one day do live streaming as a business. Most of all, he wants to walk without pain, and breathe easily . We anxiously await the day in the near future for a cure for this progressive disease.
Misty Morning - 15x18 Framed, Oil on Canvas
$100
Puja inicial
By Susan Murphy, proud mom to Patrick, who has Myhre syndrome.
Susan from Billings, Montana, said the painting was inspired by the Stillwater River in Montana. I am not sure why it's called Stillwater, the water is not still but it is a spectacular place. We enjoyed the Stillwater as kids with family and floated on inner tubes, usually all day until our lips were blue.
Our son, Patrick is 34 years old and was diagnosed with Myhre syndrome at 27. He has debilitating joint pain, Restrictive Lung Disease, OCD, and has to wear thick corrective lenses. He is extremely smart and loves history, soaking in all information that is available to him. He loves football (Denver Broncos), gaming and cats, though all animals love him! He has a wonderful heart and a huge faith. He would love to one day do live streaming as a business. Most of all, he wants to walk without pain, and breathe easily . We anxiously await the day in the near future for a cure for this progressive disease.
By Susan Murphy, proud mom to Patrick, who has Myhre syndrome.
Susan from Billings, Montana, said the painting was inspired by the Stillwater River in Montana. I am not sure why it's called Stillwater, the water is not still but it is a spectacular place. We enjoyed the Stillwater as kids with family and floated on inner tubes, usually all day until our lips were blue.
Our son, Patrick is 34 years old and was diagnosed with Myhre syndrome at 27. He has debilitating joint pain, Restrictive Lung Disease, OCD, and has to wear thick corrective lenses. He is extremely smart and loves history, soaking in all information that is available to him. He loves football (Denver Broncos), gaming and cats, though all animals love him! He has a wonderful heart and a huge faith. He would love to one day do live streaming as a business. Most of all, he wants to walk without pain, and breathe easily . We anxiously await the day in the near future for a cure for this progressive disease.
Winter Shapes - approx 11x16 Watercolor on Paper
$25
Puja inicial
Margot, 8, from New York, has Myhre syndrome and painted these perfect winter shapes.
Margot, 8, from New York, has Myhre syndrome and painted these perfect winter shapes.
Sunset at Swan Lake - 8x10 Oil on Canvas
$40
Puja inicial
By Susan Murphy, proud mom to Patrick, who has Myhre syndrome.
Susan from Billings, Montana, said Swan Lake, near Glacier National Park, is our favorite Montana getaway in the summer. Ice cold and 300 feet deep and crystal clear, paintings or photos cannot capture its beauty fully.
Our son, Patrick is 34 years old and was diagnosed with Myhre syndrome at 27. He has debilitating joint pain, Restrictive Lung Disease, OCD, and has to wear thick corrective lenses. He is extremely smart and loves history, soaking in all information that is available to him. He loves football (Denver Broncos), gaming and cats, though all animals love him! He has a wonderful heart and a huge faith. He would love to one day do live streaming as a business. Most of all, he wants to walk without pain, and breathe easily . We anxiously await the day in the near future for a cure for this progressive disease.
By Susan Murphy, proud mom to Patrick, who has Myhre syndrome.
Susan from Billings, Montana, said Swan Lake, near Glacier National Park, is our favorite Montana getaway in the summer. Ice cold and 300 feet deep and crystal clear, paintings or photos cannot capture its beauty fully.
Our son, Patrick is 34 years old and was diagnosed with Myhre syndrome at 27. He has debilitating joint pain, Restrictive Lung Disease, OCD, and has to wear thick corrective lenses. He is extremely smart and loves history, soaking in all information that is available to him. He loves football (Denver Broncos), gaming and cats, though all animals love him! He has a wonderful heart and a huge faith. He would love to one day do live streaming as a business. Most of all, he wants to walk without pain, and breathe easily . We anxiously await the day in the near future for a cure for this progressive disease.
Yellowstone River - 8x10 Framed, Oil on Canvas
$40
Puja inicial
By Susan Murphy, proud mom to Patrick, who has Myhre syndrome.
Susan from Billings, Montana, said the Yellowstone River flows out of Yellowstone Park and through Billings at various places, peacefully moving and, at other places, raging. I have appreciated and loved God's art all of my life. It's impossible to copy, but here is my rendition.
Our son, Patrick is 34 years old and was diagnosed with Myhre syndrome at 27. He has debilitating joint pain, Restrictive Lung Disease, OCD, and has to wear thick corrective lenses. He is extremely smart and loves history, soaking in all information that is available to him. He loves football (Denver Broncos), gaming and cats, though all animals love him! He has a wonderful heart and a huge faith. He would love to one day do live streaming as a business. Most of all, he wants to walk without pain, and breathe easily . We anxiously await the day in the near future for a cure for this progressive disease.
By Susan Murphy, proud mom to Patrick, who has Myhre syndrome.
Susan from Billings, Montana, said the Yellowstone River flows out of Yellowstone Park and through Billings at various places, peacefully moving and, at other places, raging. I have appreciated and loved God's art all of my life. It's impossible to copy, but here is my rendition.
Our son, Patrick is 34 years old and was diagnosed with Myhre syndrome at 27. He has debilitating joint pain, Restrictive Lung Disease, OCD, and has to wear thick corrective lenses. He is extremely smart and loves history, soaking in all information that is available to him. He loves football (Denver Broncos), gaming and cats, though all animals love him! He has a wonderful heart and a huge faith. He would love to one day do live streaming as a business. Most of all, he wants to walk without pain, and breathe easily . We anxiously await the day in the near future for a cure for this progressive disease.
Girl With The Blue Hair - 10x10 Acrylic on Canvas
$40
Puja inicial
This piece represents feeling like others are taking up your space with negativity (feeling like you are not enough or feeling trapped).
Livia is the inspiration for this piece. She is an 8-year-old girl from Washington State. She was diagnosed last year with Myhre syndrome but shows mild signs. She is active in after-school theater camp and is currently learning to swim at the local pool. She enjoys reading, roller skating and the monkey bars at the park. Livia is a happy, intelligent, empathetic young girl who adores Taylor Swift and dreams of being a singer one day. Peyton and Livia are close friends, like sisters really. Their bond drives Peyton to paint for Myhre. Thank you! Packaging and shipping will be included.
This piece represents feeling like others are taking up your space with negativity (feeling like you are not enough or feeling trapped).
Livia is the inspiration for this piece. She is an 8-year-old girl from Washington State. She was diagnosed last year with Myhre syndrome but shows mild signs. She is active in after-school theater camp and is currently learning to swim at the local pool. She enjoys reading, roller skating and the monkey bars at the park. Livia is a happy, intelligent, empathetic young girl who adores Taylor Swift and dreams of being a singer one day. Peyton and Livia are close friends, like sisters really. Their bond drives Peyton to paint for Myhre. Thank you! Packaging and shipping will be included.
Pepper - 10x8 Pencil Drawing
$25
Puja inicial
Anna is 27 years old and was diagnosed with Myhre syndrome when she was 16.
She loves life and lives it to the fullest. She works in the cafeteria at a middle school and is cherished by her coworkers. When not at work, she loves to be active, enjoying her workouts at the gym, special Olympics bocce, pickleball, and bowling, and signing up for any cooking or craft class she can find. Cooking is her passion, and she tries out new recipes and prepares meals every Saturday night to the delight of her mom.
Myhre syndrome has left its mark on Anna. She was recently hospitalized due to her heart failure and has a communication disorder and a hearing impairment, but she doesn’t let anything slow her down.
She’s hoping you support the Myhre Syndrome Foundation by buying one of her artworks in hopes that we can find treatments and a cure for Myhre syndrome.
Anna is 27 years old and was diagnosed with Myhre syndrome when she was 16.
She loves life and lives it to the fullest. She works in the cafeteria at a middle school and is cherished by her coworkers. When not at work, she loves to be active, enjoying her workouts at the gym, special Olympics bocce, pickleball, and bowling, and signing up for any cooking or craft class she can find. Cooking is her passion, and she tries out new recipes and prepares meals every Saturday night to the delight of her mom.
Myhre syndrome has left its mark on Anna. She was recently hospitalized due to her heart failure and has a communication disorder and a hearing impairment, but she doesn’t let anything slow her down.
She’s hoping you support the Myhre Syndrome Foundation by buying one of her artworks in hopes that we can find treatments and a cure for Myhre syndrome.
The Waterfall - 8x10, Oil on Canvas
$50
Puja inicial
By Susan Murphy, proud mom to Patrick, who has Myhre syndrome.
Susan from Billings, Montana, is inspired by the many waterfalls in Montana. I love how light plays on the rocks and how light is reflected in the water.
Our son, Patrick is 34 years old and was diagnosed with Myhre syndrome at 27. He has debilitating joint pain, Restrictive Lung Disease, OCD, and has to wear thick corrective lenses. He is extremely smart and loves history, soaking in all information that is available to him. He loves football (Denver Broncos), gaming and cats, though all animals love him! He has a wonderful heart and a huge faith. He would love to one day do live streaming as a business. Most of all, he wants to walk without pain, and breathe easily . We anxiously await the day in the near future for a cure for this progressive disease.
By Susan Murphy, proud mom to Patrick, who has Myhre syndrome.
Susan from Billings, Montana, is inspired by the many waterfalls in Montana. I love how light plays on the rocks and how light is reflected in the water.
Our son, Patrick is 34 years old and was diagnosed with Myhre syndrome at 27. He has debilitating joint pain, Restrictive Lung Disease, OCD, and has to wear thick corrective lenses. He is extremely smart and loves history, soaking in all information that is available to him. He loves football (Denver Broncos), gaming and cats, though all animals love him! He has a wonderful heart and a huge faith. He would love to one day do live streaming as a business. Most of all, he wants to walk without pain, and breathe easily . We anxiously await the day in the near future for a cure for this progressive disease.
Pitcher - Glazed Pottery 6.75" Tall 7" Wide
$30
Puja inicial
Allen from Washington State enjoys creating pottery pieces and donated these pieces in honor of his grandson, who has Myhre syndrome.
This pitcher is thrown on the wheel with the handle applied by hand. The flower designs are hand-etched. The glaze is hand-applied. It is fired at cone 6. Dishwasher and microwave safe.
Allen from Washington State enjoys creating pottery pieces and donated these pieces in honor of his grandson, who has Myhre syndrome.
This pitcher is thrown on the wheel with the handle applied by hand. The flower designs are hand-etched. The glaze is hand-applied. It is fired at cone 6. Dishwasher and microwave safe.
Winter Stream - 6x6 Framed, Oil on Canvas
$70
Puja inicial
Patti Gordon lives in Billings, Montana, and her nephew Patrick has Myhre syndrome.
Patti reflected, "My inspiration for these paintings stems from an appreciation of nature, the miracle of everyday things that God puts before us, and my desire to share that joy with others. Even on the coldest winter days, there is beauty to be found in the landscapes of Montana. It makes one appreciate the warmth and beauty of Spring, Summer, and Fall, as well.
Patti Gordon lives in Billings, Montana, and her nephew Patrick has Myhre syndrome.
Patti reflected, "My inspiration for these paintings stems from an appreciation of nature, the miracle of everyday things that God puts before us, and my desire to share that joy with others. Even on the coldest winter days, there is beauty to be found in the landscapes of Montana. It makes one appreciate the warmth and beauty of Spring, Summer, and Fall, as well.
Black Cat Blue Sky - 5x7 Painting on Canvas
$25
Puja inicial
Anna is 27 years old and was diagnosed with Myhre syndrome when she was 16. This painting is of Pickle and his food bowl.
She loves life and lives it to the fullest. She works in the cafeteria at a middle school and is cherished by her coworkers. When not at work, she loves to be active, enjoying her workouts at the gym, special Olympics bocce, pickleball, and bowling, and signing up for any cooking or craft class she can find. Cooking is her passion, and she tries out new recipes and prepares meals every Saturday night to the delight of her mom.
Myhre syndrome has left its mark on Anna. She was recently hospitalized due to her heart failure and has a communication disorder and a hearing impairment, but she doesn’t let anything slow her down.
She’s hoping you support the Myhre Syndrome Foundation by buying one of her artworks in hopes that we can find treatments and a cure for Myhre syndrome.
Anna is 27 years old and was diagnosed with Myhre syndrome when she was 16. This painting is of Pickle and his food bowl.
She loves life and lives it to the fullest. She works in the cafeteria at a middle school and is cherished by her coworkers. When not at work, she loves to be active, enjoying her workouts at the gym, special Olympics bocce, pickleball, and bowling, and signing up for any cooking or craft class she can find. Cooking is her passion, and she tries out new recipes and prepares meals every Saturday night to the delight of her mom.
Myhre syndrome has left its mark on Anna. She was recently hospitalized due to her heart failure and has a communication disorder and a hearing impairment, but she doesn’t let anything slow her down.
She’s hoping you support the Myhre Syndrome Foundation by buying one of her artworks in hopes that we can find treatments and a cure for Myhre syndrome.
Watercolor Handpainted Cards x 6
$20
Puja inicial
Mary from Virginia, sister to Anna, who has Myhre syndrome, painted these beautiful cards (with envelopes) to send to someone special.
Mary from Virginia, sister to Anna, who has Myhre syndrome, painted these beautiful cards (with envelopes) to send to someone special.
Spring Iris - 6x6, Framed, Oil on Canvas
$40
Puja inicial
Patti Gordon lives in Billings, Montana, and her nephew Patrick has Myhre syndrome.
Patti reflected, "My inspiration for these paintings stems from an appreciation of nature, the miracle of everyday things that God puts before us, and my desire to share that joy with others. Even on the coldest winter days, there is beauty to be found in the landscapes of Montana. It makes one appreciate the warmth and beauty of Spring, Summer, and Fall, as well.
Patti Gordon lives in Billings, Montana, and her nephew Patrick has Myhre syndrome.
Patti reflected, "My inspiration for these paintings stems from an appreciation of nature, the miracle of everyday things that God puts before us, and my desire to share that joy with others. Even on the coldest winter days, there is beauty to be found in the landscapes of Montana. It makes one appreciate the warmth and beauty of Spring, Summer, and Fall, as well.
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