Cushings Support And Research Foundation Incorporated

### Context Profile for Cushings Support And Research Foundation Incorporated

#### 1. Organization Mission & Cause
The Cushings Support And Research Foundation (CSRF) is dedicated to supporting individuals affected by Cushing's syndrome through education, advocacy, and research. Their mission emphasizes improving the quality of life for patients and their families while promoting awareness and understanding of the condition. CSRF aims to foster a community where patients can share experiences and access vital resources.

#### 2. Type of Activities
CSRF engages in a variety of activities, including:
- **Educational Conferences**: They organize annual conferences that provide patients and caregivers with information on Cushing's syndrome, treatment options, and coping strategies.
- **Support Groups**: The foundation facilitates support groups that allow individuals to connect and share their experiences.
- **Research Funding**: CSRF actively supports research initiatives aimed at better understanding Cushing's syndrome and developing effective treatments.
- **Awareness Campaigns**: They run campaigns to raise awareness about Cushing's syndrome, its symptoms, and the importance of early diagnosis.

#### 3. Tone of Voice
The tone of voice used by CSRF is:
- **Friendly and Supportive**: The language is approachable, aiming to create a sense of community and support among patients and families.
- **Informative and Professional**: While maintaining a friendly tone, the content is also educational, providing clear and factual information about Cushing's syndrome.
- **Inspiring**: The foundation's messaging often encourages hope and resilience, motivating individuals to seek help and connect with others.

#### 4. Emoji Usage
The website and other communications do not prominently feature emojis. The tone remains professional and focused on conveying important information without the casualness that emojis might imply.

#### 5. Key Facts
- **Founding Information**: CSRF was founded to address the needs of individuals affected by Cushing's syndrome, although specific founding dates may not be detailed on the website.
- **Scale**: CSRF operates on a national level, providing resources and support to individuals across the United States.
- **Impact Metrics**: The foundation highlights its impact through testimonials and success stories from patients who have benefited from their programs and support.
- **Volunteer Information**: While specific volunteer metrics are not detailed, CSRF likely encourages community involvement and may have opportunities for individuals to contribute to their mission.

#### 6. Writing Guidelines
When creating content for CSRF, consider the following guidelines:
- **Use Clear and Accessible Language**: Avoid jargon and ensure that information is easy to understand for a diverse audience.
- **Maintain a Supportive Tone**: Content should reflect empathy and understanding, acknowledging the challenges faced by individuals with Cushing's syndrome.
- **Focus on Education and Empowerment**: Highlight resources, support options, and educational materials that can help patients and their families.
- **Encourage Community Engagement**: Invite readers to participate in events, share their stories, and connect with others in the community.

This context profile serves as a foundation for generating personalized and relevant content for the Cushings Support And Research Foundation, aligning with their mission and values.

Donación mínima sugerida para la misión de la reunión.

Conferencia de Pacientes de Dos Días - Registro Temprano

LXCL:Suggested minimum contribution. The full cost per person to host an event like this can easily be $200+ and we are grateful to be able to offer a subsidized rate through sponsorships. If this amount is not possible for you, we offer two discount codes: CSRF10 for 50% off, and CSRF20 which makes the registration free.

Patient Conference

LXCL:Suggested minimum contribution. If this amount is not possible for you, we offer two discount codes: CSRF10 for 50% off, and CSRF20 which makes the registration free.

Virtual Attendance

Viernes 11/7:&nbsp;-Pista Complejo Carney 10:00am-5:45pm-Pista CSRF 1:30-5:45pm S&aacute;bado 11/8:-Pista AIU 10:00am-4:30pm-Pista CSRF 10:00am-4:30pm-Celebraci&oacute;n del 30 Aniversario de CSRF para todos 7:00-10:00pm

&nbsp;Hola First name, Gracias por registrarte para nuestro evento y apoyar nuestra causa; tu participaci&oacute;n es parte de nuestra misi&oacute;n. 🚀 Si necesitas alojamiento durante tu estancia en Phoenix, tenemos dos hoteles con tarifas negociadas para reservas directas: Hampton Inn est&aacute; pr&aacute;cticamente en el campus, a pocos pasos de nuestra sala de conferencias. &nbsp;Home2Suites / Tru by Hilton est&aacute; a unas cuadras de distancia.&nbsp; <img src="https://res.cloudinary.com/hxn9dbuhd/image/upload/v1748300763/wysiwyg/lczy8at0yhjbdz7gapn6.jpg" style="width: 273px; position: relative; max-width: 100%; cursor: pointer; padding: 0px 1px; user-select: none; box-sizing: inherit;" fr-original-style="width: 273px;" fr-original-class="fr-draggable">Hampton Inn 160 W Catalina Dr Phoenix, AZ 85013 $174.00 / noche + impuestos desayuno y estacionamiento gratis&nbsp;<span contenteditable="false" data-button-color="{{#5555E7}}" data-custom-link="{{https://www.hilton.com/en/attend-my-event/csrfpatientconference/}}" data-custom-variable="{{custom-link-button-d7d434ae-7fca-4ac8-8057-e94fab36bee0}}" data-text="{{Click here to book Hampton Inn}}" fr-original-style="" style="box-sizing: inherit;">Haz clic aqu&iacute; para reservar Hampton Inn <img src="https://res.cloudinary.com/hxn9dbuhd/image/upload/v1748300874/wysiwyg/bl6zosuqd71ecd1ogo4t.jpg" style="width: 278px; position: relative; max-width: 100%; cursor: pointer; padding: 0px 1px; user-select: none; box-sizing: inherit;" fr-original-style="width: 278px;" fr-original-class="fr-draggable">Home2 Suites / Tru by Hilton 3150 N Central Ave Phoenix, AZ 85012 $156.00 / noche + impuestos desayuno gratis, $10 estacionamiento<span contenteditable="false" data-button-color="{{#5555E7}}" data-custom-link="{{csrf.net}}" data-custom-variable="{{custom-link-button-69c7d9a2-f993-4623-8c71-39f86ebe85cb}}" data-text="{{Click here to book Home2Suites / Tru by Hilton}}" fr-original-style="" style="box-sizing: inherit;">Haz clic aqu&iacute; para reservar Home2Suites / Tru by Hilton Nos mantendremos en contacto con actualizaciones y la agenda completa tan pronto como est&eacute; disponible. &nbsp;Si tienes alguna pregunta en cualquier momento, por favor env&iacute;a un correo electr&oacute;nico a: Alex Hafez, Gerente de Proyecto - CSRF<a fr-original-style="" href="mailto:alex@csrf.net" rel="noopener noreferrer" style="text-decoration-color: initial; user-select: auto; box-sizing: inherit;" target="_blank">alex@csrf.net</a> Leslie Edwin, Presidenta - CSRF<a fr-original-style="" href="mailto:leslie@csrf.net" rel="noopener noreferrer noopener noreferrer" style="text-decoration-color: initial; user-select: auto; box-sizing: inherit;" target="_blank">leslie@csrf.net</a> Jennifer Knapp, Presidenta AIUxxxx ______, Presidenta CNCCxxxxxx

Viernes 11/7: -Pista Complejo Carney 10:00am-5:45pm-Pista CSRF 1:30-5:45pm Sábado 11/8:-Pista AIU 10:00am-4:30pm-Pista CSRF 10:00am-4:30pm-Celebración del 30 Aniversario de CSRF para todos 7:00-10:00pm

7-8 de noviembre, 2025 Conferencia

JOIN US for two days of education, support, and community! &nbsp;Access the agenda and session descriptions <a fr-original-style="" href="https://simplebooklet.com/cortisolsummit2025" rel="noopener noreferrer" style="text-decoration-color: initial; user-select: auto; box-sizing: inherit;" target="_blank">here</a>. Our conference will be held at Barrow Neurological Institute in Phoenix, AZ. &nbsp;Room blocks have been set up with three local hotels within 0.2-0.5 mile of the conference entrance. &nbsp;Your confirm email will provide a link, but <a fr-original-style="" href="https://csrf.net/2025summit-hotels/" rel="noopener noreferrer" style="text-decoration-color: initial; user-select: auto; box-sizing: inherit;" target="_blank">here they are</a> if you&#39;d like to consider them now. &nbsp;If you need lodging, we encourage you to book soon because our holds have technically already released but these properties have granted us a few more days of our special rates. Saturday night we are throwing a 30th anniversary party at a location across the street from Barrow. &nbsp;Everyone is invited to come as they are, or dress up if they have the spoons for it! &nbsp;Our space will be warmly lit by dedication luminarias that will be offered as a fundraiser for CSRF&#39;s inaugural memorial scholarship, which we will announce at the meeting. &nbsp;Virtual and live attendees can participate in the fundraiser; details coming soon. If a travel stipend would mean the difference between making it to Phoenix or not due to financial hardship, we have a limited assistance fund to help cover some of the expense of traveling to the meeting and/or lodging while at the meeting. &nbsp;Please <a fr-original-style="" href="https://www.surveymonkey.com/r/2025summitaid" rel="noopener noreferrer" style="text-decoration-color: initial; user-select: auto; box-sizing: inherit;" target="_blank">click here for the application</a> (the link will also be in the confirmation email you will get after completing your registration here). &nbsp;This offer is for all in-person attendees regardless of their focus diagnosis.

Hi <span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip" fr-original-style="" style="background-color: rgb(248, 248, 255); border: 1px solid rgb(191, 191, 255); border-radius: 4px; color: rgb(42, 42, 196); padding: 1px 8px; font-size: 11px; display: inline-block; margin: 0px; overflow-wrap: anywhere; user-select: none; box-sizing: inherit;">First name, Thank you for registering for our event and supporting our cause; your participation is part of our mission. &nbsp;If you have registered for virtual attendance, we will be in touch soon with more information on how to connect on November 7 and 8. &nbsp;The nearly-complete <a fr-original-style="" href="https://simplebooklet.com/cortisolsummit2025#page=1" rel="noopener noreferrer" style="text-decoration-color: initial; user-select: auto; box-sizing: inherit;" target="_blank">agenda and session descriptions can be found here</a>. If you need lodging while in Phoenix, our negotiated hotel rates have technically expired but both properties have agreed to honor them for just a few more days. &nbsp;Please move quickly if you need lodging in Phoenix! &nbsp;<a fr-original-style="" href="https://csrf.net/2025summit-hotels/" rel="noopener noreferrer" style="text-decoration-color: initial; user-select: auto; box-sizing: inherit;" target="_blank">Click here for lodging options and links to book.</a>&nbsp; Would a travel stipend help alleviate financial hardship? &nbsp;We have a limited assistance fund and invite you to apply if you want to come but need some help getting there. &nbsp;<a fr-original-style="" href="https://www.surveymonkey.com/r/2025summitaid" rel="noopener noreferrer" style="text-decoration-color: initial; user-select: auto; box-sizing: inherit;" target="_blank">Click here for the aid application.</a> We are adding a dedicated shuttle that will travel between the hotels and the conference entrance during the conference, between the hotels and the party spot Saturday night, and will make certain scheduled trips to/from the airport. &nbsp;If you would like to reserve the shuttle to bring you from the airport or back to it, we are setting up an rsvp system that will ask for your flight # and scheduled time to arrive and depart PHX. &nbsp;Once that is ready we will reach out to all attendees so they can use it!&nbsp; We&#39;re excited to spend time with you in November, and if you have any questions or comments in the meantime, please reach out to the appropriate contact listed below. Leslie Edwin, President - CSRF<a fr-original-style="" href="mailto:leslie@csrf.net" rel="noopener noreferrer noopener noreferrer" style="text-decoration-color: initial; user-select: auto; box-sizing: inherit;" target="_blank">leslie@csrf.net</a> Alex Hafez, Project Manager - CSRF<a fr-original-style="" href="mailto:alex@csrf.net" rel="noopener noreferrer noopener noreferrer noopener noreferrer" style="text-decoration-color: initial; user-select: auto; box-sizing: inherit;" target="_blank">alex@csrf.net</a> Jennifer Knapp, President AIU<a fr-original-style="" href="mailto:jennifer.k@aiunited.org" rel="noopener noreferrer noopener noreferrer" style="text-decoration-color: initial; user-select: auto; box-sizing: inherit;" target="_blank">jennifer.k@aiunited.org</a> Kerri Engebrecht, Executive Director AIU<a fr-original-style="" href="mailto:kerri.e@aiunited.org" rel="noopener noreferrer noopener noreferrer" style="text-decoration-color: initial; user-select: auto; box-sizing: inherit;" target="_blank">kerri.e@aiunited.org</a> Ellen&nbsp;Bouma, President CNCC<a href="mailto:lizbouma@comcast.net" rel="noopener noreferrer noopener noreferrer noopener noreferrer noopener noreferrer" target="_blank" fr-original-style="" style="text-decoration-color: initial; user-select: auto; box-sizing: inherit;"></a><a fr-original-style="" href="mailto:carneycomplexcoalition@gmail.com" rel="noopener noreferrer" style="text-decoration-color: initial; user-select: auto; box-sizing: inherit;" target="_blank">carneycomplexcoalition@gmail.com</a>

JOIN US for two days of education, support, and community!  Access the agenda and session descriptions <a href="https://simplebooklet.com/cortisolsummit2025" target="_blank">here</a>. Our conference will be held at Barrow Neurological Institute in Phoenix, AZ.  Room blocks have been set up with three local hotels within 0.2-0.5 mile of the conference entrance.  Your confirm email will provide a link, but <a href="https://csrf.net/2025summit-hotels/" target="_blank">here they are</a> if you'd like to consider them now.  If you need lodging, we encourage you to book soon because our holds have technically already released but these properties have granted us a few more days of our special rates. Saturday night we are throwing a 30th anniversary party at a location across the street from Barrow.  Everyone is invited to come as they are, or dress up if they have the spoons for it!  Our space will be warmly lit by dedication luminarias that will be offered as a fundraiser for CSRF's inaugural memorial scholarship, which we will announce at the meeting.  Virtual and live attendees can participate in the fundraiser; details coming soon. If a travel stipend would mean the difference between making it to Phoenix or not due to financial hardship, we have a limited assistance fund to help cover some of the expense of traveling to the meeting and/or lodging while at the meeting.  Please <a href="https://www.surveymonkey.com/r/2025summitaid" target="_blank">click here for the application</a> (the link will also be in the confirmation email you will get after completing your registration here).  This offer is for all in-person attendees regardless of their focus diagnosis.

EN

Cushings Support And Research Foundation Incorporated

7-8 de noviembre, 2025 Conferencia

2910 N 3rd Ave

Conferencia de Pacientes de Dos Días - Registro Temprano

$20

Virtual Attendance

$20

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