Association de la neurofibromatose du Québec

### Context Profile for Association de la neurofibromatose du Québec (ANFQ)

#### 1. Organization Mission & Cause
The **Association de la neurofibromatose du Québec (ANFQ)** is dedicated to supporting individuals affected by neurofibromatosis (NF), a genetic disorder that causes tumors to grow on nerves. Their mission is to raise awareness about NF, provide resources and support to affected families, and promote research for better treatments and understanding of the condition. They aim to foster a community where individuals with NF can share their experiences and find solidarity.

#### 2. Type of Activities
ANFQ engages in various activities, including:
- **Awareness Campaigns**: Initiatives to educate the public about neurofibromatosis.
- **Community Events**: Such as the "Vernissage InterFace," which showcases personal stories through art and promotes dialogue about NF.
- **Fundraising Campaigns**: To support their programs and research initiatives.
- **Support Programs**: Providing resources and assistance to families affected by NF.

#### 3. Tone of Voice
The tone of voice used by ANFQ is:
- **Friendly and Inviting**: The language is warm and welcoming, encouraging participation and community engagement.
- **Inspiring**: They emphasize resilience and the beauty of personal stories, aiming to uplift and empower individuals affected by NF.
- **Informative**: They provide clear and detailed information about events and resources, ensuring that the audience understands the significance of their work.

#### 4. Emoji Usage
ANFQ incorporates emojis in their communications to enhance engagement and convey emotions. They frequently use:
- 🎨 (art-related)
- ✨ (inspiration and positivity)
- 📍 (location)
- 🗓 (dates)
- 🍸 (social events)
- 🎟️ (tickets)
The emojis are used strategically to highlight key points and create a friendly atmosphere in their messaging.

#### 5. Key Facts
- **Founding Info**: Specific founding details were not found on the website; further research may be needed.
- **Scale**: The organization has a total of 18 forms and has conducted 46 email campaigns, indicating active engagement with their community.
- **Impact Metrics**: The website emphasizes the importance of personal stories and community support, but specific metrics on impact were not detailed.
- **Volunteer Info**: Information about volunteering opportunities is not explicitly mentioned on the website; this could be an area for further development.

#### 6. Writing Guidelines
Based on their existing content patterns, the following guidelines can be used for writing:
- Use a **friendly and conversational tone** that invites engagement.
- Incorporate **inspiring language** that emphasizes resilience and community.
- Utilize **clear and concise information**, especially when detailing events and resources.
- **Include emojis** to enhance emotional connection and engagement, but use them sparingly to maintain professionalism.
- Ensure that the content is **accessible and informative**, catering to both individuals affected by NF and the general public.

This context profile will assist AI assistants in generating personalized and relevant content for the Association de la neurofibromatose du Québec, aligning with their mission, tone, and community engagement strategies.

Je m'inscris comme bénévole!

I'd like to volunteer!

<span fr-original-style="font-size:11pt;font-family:Arial,sans-serif;color:#000000;background-color:transparent;font-weight:400;font-style:normal;font-variant:normal;text-decoration:none;vertical-align:baseline;white-space:pre;white-space:pre-wrap;" style="font-size:11pt;font-family:Arial, sans-serif;color:rgb(0, 0, 0);background-color:transparent;font-weight:400;font-style:normal;font-variant:normal;text-decoration:none;vertical-align:baseline;white-space:pre-wrap;box-sizing:inherit">To become an ANFQ volunteer is to join a dynamic, dedicated team that is, above all, determined to advance the cause. We're looking for motivated volunteers to help us with human and stimulating projects, according to your availability and wishes.

Hello  <span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip " fr-original-style style="background-color:rgb(248, 248, 255);border:1px solid rgb(191, 191, 255);border-radius:4px;color:rgb(42, 42, 196);display:inline-block;margin:0px;padding:1px 8px;font-size:11px;line-height:16px;overflow-wrap:anywhere;user-select:none;box-sizing:inherit">Prénom  <span contenteditable="false" data-custom-variable="{{lastname}}" fr-original-class="fr-deletable styled-tag-chip " fr-original-style style="background-color:rgb(248, 248, 255);border:1px solid rgb(191, 191, 255);border-radius:4px;color:rgb(42, 42, 196);display:inline-block;margin:0px;padding:1px 8px;font-size:11px;line-height:16px;overflow-wrap:anywhere;user-select:none;box-sizing:inherit">Nom , We have received your application to become an ANFQ volunteer. Thank you from the bottom of our hearts for your support of neurofibromatosis and the association. You will greatly help us achieve our mission.  Thanks to your involvement and generosity, we can organize large-scale events every year to raise awareness of this orphan disease and break the taboos that surround it. These actions carried out by our association could not be as effective without your support and involvement.   We look forward to hearing from you when the time comes to call on our volunteers. Your support is indispensable in the lives of those affected by neurofibromatosis.  On behalf of the ANFQ and all those affected by NF, we say a HUGE thank you!  <img src="https://anfq.goaxi.al/wp-content/uploads/2023/08/anfq-logo-1.png" style="width:236px;display:inline-block;vertical-align:bottom;margin-right:5px;margin-left:5px;text-align:center;max-width:calc(100% - 10px);position:relative;cursor:pointer;padding:0px 1px;user-select:none;box-sizing:inherit" /> 514-385-6702www.anfq.ca

To become an ANFQ volunteer is to join a dynamic, dedicated team that is, above all, determined to advance the cause. We're looking for motivated volunteers to help us with human and stimulating projects, according to your availability and wishes.

Become a volunteer

Devenir bénévole à l’ANFQ, c’est rejoindre une équipe dynamique, dévouée et surtout déterminée à faire avancer la cause. Nous sommes à la recherche de bénévoles motivés afin de nous aider dans des projets humains et stimulants, et ce, en fonction de vos disponibilités et de vos envies.

Bonjour <span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip " fr-original-style style="background-color:rgb(248, 248, 255);border:1px solid rgb(191, 191, 255);border-radius:4px;color:rgb(42, 42, 196);display:inline-block;margin:0px;padding:1px 8px;font-size:11px;line-height:16px;overflow-wrap:anywhere;user-select:none;box-sizing:inherit">Prénom <span contenteditable="false" data-custom-variable="{{lastname}}" fr-original-class="fr-deletable styled-tag-chip " fr-original-style style="background-color:rgb(248, 248, 255);border:1px solid rgb(191, 191, 255);border-radius:4px;color:rgb(42, 42, 196);display:inline-block;margin:0px;padding:1px 8px;font-size:11px;line-height:16px;overflow-wrap:anywhere;user-select:none;box-sizing:inherit">Nom, Nous avons bel et bien reçu votre demande pour devenir bénévole de l’ANFQ. Merci du fond du cœur pour votre soutien envers la neurofibromatose et l’association. Vous allez grandement nous aider à réaliser notre mission.  Grâce à votre implication et votre générosité, nous pouvons mettre en place chaque année des événements de grande envergure qui permettent de sensibiliser les gens à cette maladie orpheline et aussi briser les tabous qui l’entourent. Ces actions menées par notre association ne pourraient être aussi efficaces sans votre soutien et votre implication.  Soyez assurés que nous vous contacterons avec grand plaisir lorsque viendra le temps de faire appel à nos bénévoles.  Votre soutien est indispensable dans la vie des personnes touchées par la neurofibromatose.  Au nom de l’ANFQ et de tous les gens atteints par la NF, on vous dit un ÉNORME merci!  <img src="https://anfq.goaxi.al/wp-content/uploads/2023/08/anfq-logo-1.png" style="width:236px;display:inline-block;vertical-align:bottom;margin-right:5px;margin-left:5px;text-align:center;max-width:calc(100% - 10px);position:relative;cursor:pointer;padding:0px 1px;user-select:none;box-sizing:inherit" /> 514-385-6702www.anfq.ca

Devenir bénévole à l’ANFQ, c’est rejoindre une équipe dynamique, dévouée et surtout déterminée à faire avancer la cause. Nous sommes à la recherche de bénévoles motivés afin de nous aider dans des projets humains et stimulants, et ce, en fonction de vos disponibilités et de vos envies.

EN

Association de la neurofibromatose du Québec

Devenir bénévole

Je m'inscris comme bénévole!

Gratuit