Association de la neurofibromatose du Québec

### Context Profile for Association de la neurofibromatose du Québec (ANFQ)

#### 1. Organization Mission & Cause
The **Association de la neurofibromatose du Québec (ANFQ)** is dedicated to supporting individuals affected by neurofibromatosis (NF), a genetic disorder that causes tumors to grow on nerves. Their mission is to raise awareness about NF, provide resources and support to affected families, and promote research for better treatments and understanding of the condition. They aim to foster a community where individuals with NF can share their experiences and find solidarity.

#### 2. Type of Activities
ANFQ engages in various activities, including:
- **Awareness Campaigns**: Initiatives to educate the public about neurofibromatosis.
- **Community Events**: Such as the "Vernissage InterFace," which showcases personal stories through art and promotes dialogue about NF.
- **Fundraising Campaigns**: To support their programs and research initiatives.
- **Support Programs**: Providing resources and assistance to families affected by NF.

#### 3. Tone of Voice
The tone of voice used by ANFQ is:
- **Friendly and Inviting**: The language is warm and welcoming, encouraging participation and community engagement.
- **Inspiring**: They emphasize resilience and the beauty of personal stories, aiming to uplift and empower individuals affected by NF.
- **Informative**: They provide clear and detailed information about events and resources, ensuring that the audience understands the significance of their work.

#### 4. Emoji Usage
ANFQ incorporates emojis in their communications to enhance engagement and convey emotions. They frequently use:
- 🎨 (art-related)
- ✨ (inspiration and positivity)
- 📍 (location)
- 🗓 (dates)
- 🍸 (social events)
- 🎟️ (tickets)
The emojis are used strategically to highlight key points and create a friendly atmosphere in their messaging.

#### 5. Key Facts
- **Founding Info**: Specific founding details were not found on the website; further research may be needed.
- **Scale**: The organization has a total of 18 forms and has conducted 46 email campaigns, indicating active engagement with their community.
- **Impact Metrics**: The website emphasizes the importance of personal stories and community support, but specific metrics on impact were not detailed.
- **Volunteer Info**: Information about volunteering opportunities is not explicitly mentioned on the website; this could be an area for further development.

#### 6. Writing Guidelines
Based on their existing content patterns, the following guidelines can be used for writing:
- Use a **friendly and conversational tone** that invites engagement.
- Incorporate **inspiring language** that emphasizes resilience and community.
- Utilize **clear and concise information**, especially when detailing events and resources.
- **Include emojis** to enhance emotional connection and engagement, but use them sparingly to maintain professionalism.
- Ensure that the content is **accessible and informative**, catering to both individuals affected by NF and the general public.

This context profile will assist AI assistants in generating personalized and relevant content for the Association de la neurofibromatose du Québec, aligning with their mission, tone, and community engagement strategies.

Pour devenir membre, le don est non obligatoire. C'est seulement sur base volontaire.

Adhésion -  Professionnel de l'éducation

To become a member, donations are not required. It is voluntary.

Membership - Education professional

As a non-profit organization, the Neurofibromatosis Association draws its strength and legitimacy from its members.

Hello <span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip " fr-original-style style="background-color:rgb(248, 248, 255);border:1px solid rgb(191, 191, 255);border-radius:4px;color:rgb(42, 42, 196);display:inline-block;margin:0px;padding:1px 8px;font-size:11px;line-height:16px;overflow-wrap:anywhere;user-select:none;box-sizing:inherit">Prénom  <span contenteditable="false" data-custom-variable="{{lastname}}" fr-original-class="fr-deletable styled-tag-chip " fr-original-style style="background-color:rgb(248, 248, 255);border:1px solid rgb(191, 191, 255);border-radius:4px;color:rgb(42, 42, 196);display:inline-block;margin:0px;padding:1px 8px;font-size:11px;line-height:16px;overflow-wrap:anywhere;user-select:none;box-sizing:inherit">Nom , Thank you from the bottom of my heart for your support for neurofibromatosis and the association. You will greatly help us achieve our mission.  Thanks to your involvement and generosity, we are able to organize large-scale events every year to raise awareness of this orphan disease and break the taboos that surround it. We also continue to provide the NF community with the tools it needs, and to advance research to enable sufferers to improve their living conditions and quality of life.  These actions undertaken by our association could not be as effective without your support and involvement.  On behalf of the ANFQ and all those affected by NF, we'd like to say a HUGE thank you!  If you'd like to help in any other way, contact us to volunteer, or tell your friends and family about our cause.  THANK YOU  <img src="https://anfq.goaxi.al/wp-content/uploads/2023/08/anfq-logo-1.png" style="width:236px;display:inline-block;vertical-align:bottom;margin-right:5px;margin-left:5px;text-align:center;max-width:calc(100% - 10px);position:relative;cursor:pointer;padding:0px 1px;user-select:none;box-sizing:inherit" /> 514-385-6702www.anfq.ca

As a non-profit organization, the Neurofibromatosis Association draws its strength and legitimacy from its members.

Become a member - Education professional

En tant qu’organisme à but non lucratif, l’Association de la neurofibromatose puise sa force et sa légitimité auprès de ses membres.

Bonjour <span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip " fr-original-style style="background-color:rgb(248, 248, 255);border:1px solid rgb(191, 191, 255);border-radius:4px;color:rgb(42, 42, 196);display:inline-block;margin:0px;padding:1px 8px;font-size:11px;line-height:16px;overflow-wrap:anywhere;user-select:none;box-sizing:inherit">Prénom <span contenteditable="false" data-custom-variable="{{lastname}}" fr-original-class="fr-deletable styled-tag-chip " fr-original-style style="background-color:rgb(248, 248, 255);border:1px solid rgb(191, 191, 255);border-radius:4px;color:rgb(42, 42, 196);display:inline-block;margin:0px;padding:1px 8px;font-size:11px;line-height:16px;overflow-wrap:anywhere;user-select:none;box-sizing:inherit">Nom, Merci du fond du cœur pour votre soutien envers la neurofibromatose et l’association. Vous allez grandement nous aider à réaliser notre mission.  Grâce à votre implication et votre générosité, nous pouvons mettre en place chaque année des événements de grande envergure qui permettent de sensibiliser les gens à cette maladie orpheline et aussi briser les tabous qui l’entourent. Nous continuons également à outiller la communauté NF et à faire avancer la recherche pour permettre aux gens atteints d’améliorer leurs conditions et leur qualité de vie.  Ces actions menées par notre association ne pourraient être aussi efficaces sans votre soutien et votre implication.  Au nom de l’ANFQ et de tous les gens atteints par la NF, on vous dit un ÉNORME merci!  Si jamais vous désirez aider d’une autre manière, contactez-nous pour être bénévole ou parlez de notre cause à vos amis et votre famille.  MERCI  <img src="https://anfq.goaxi.al/wp-content/uploads/2023/08/anfq-logo-1.png" style="width:236px;display:inline-block;vertical-align:bottom;margin-right:5px;margin-left:5px;text-align:center;max-width:calc(100% - 10px);position:relative;cursor:pointer;padding:0px 1px;user-select:none;box-sizing:inherit" /> 514-385-6702www.anfq.ca

En tant qu’organisme à but non lucratif, l’Association de la neurofibromatose puise sa force et sa légitimité auprès de ses membres.

EN

Association de la neurofibromatose du Québec

Devenir membre - Professionnel de l'éducation

Adhésion - Professionnel de l'éducation

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