Société Huntington du Québec

### Context Profile for Société Huntington du Québec

1. **Organization Mission & Cause**:
   - **Mission**: The Société Huntington du Québec is dedicated to supporting individuals and families affected by Huntington's disease. Their mission includes raising awareness about the disease, providing resources and support to those impacted, and advocating for research and improved care.
   - **Cause**: Huntington's disease is a hereditary neurodegenerative disorder that affects movement, cognition, and behavior. The organization aims to improve the quality of life for patients and their families through education, support services, and community engagement.

2. **Type of Activities**:
   - **Events**: The organization hosts various events, including educational webinars (e.g., "Vidéoconférence : Comprendre l'aide médicale à mourir"), fundraising galas (e.g., Soirée bénéfice ENSEMBLE 2025), and community outreach programs.
   - **Fundraising Campaigns**: Regular fundraising initiatives to support their programs and research efforts.
   - **Community Programs**: Providing resources, support groups, and information sessions for families affected by Huntington's disease.

3. **Tone of Voice**:
   - The tone of the website and communications is **friendly**, **supportive**, and **informative**. The language is accessible and empathetic, aiming to create a welcoming environment for individuals and families dealing with Huntington's disease.
   - Communications often include direct addresses to the reader, fostering a personal connection.

4. **Emoji Usage**:
   - The organization uses emojis sparingly in their communications. For instance, in recent email campaigns, a location pin emoji (📍) is used to highlight event locations. This suggests a casual yet professional approach to engagement.

5. **Key Facts**:
   - **Founding Info**: The organization was established to address the needs of those affected by Huntington's disease in Quebec.
   - **Scale**: Engages with a community of individuals and families affected by Huntington's disease, offering support and resources.
   - **Impact Metrics**: Specific metrics were not detailed on the website, but the organization emphasizes community involvement and support.
   - **Volunteer Info**: Opportunities for volunteering may be available, although specifics were not highlighted on the website.

6. **Writing Guidelines**:
   - **Style**: Use a friendly and supportive tone, addressing the audience directly (e.g., using "vous" for a personal touch).
   - **Clarity**: Ensure that information is presented clearly and concisely, avoiding overly technical language unless necessary.
   - **Engagement**: Encourage participation and connection through calls to action, such as inviting readers to events or to reach out for support.
   - **Emojis**: Use emojis to enhance communication but limit their use to maintain professionalism; consider using them to highlight key information or events.

This context profile should guide AI assistants in crafting personalized and relevant content for the Société Huntington du Québec, ensuring alignment with their mission, tone, and audience engagement strategies.

LXCL:Pour toucher un plus grand nombre de personnes, nos groupes se tiennent en visioconférence.

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Un groupe sp&eacute;cifiquement d&eacute;di&eacute; aux aidants qui vivent avec le risque de d&eacute;velopper la maladie. Anim&eacute;s par nos intervenantes, ces groupes vous offrent vous offrir un lieu s&eacute;curisant et compr&eacute;hensif, o&ugrave; vous pouvez vous sentir &eacute;cout&eacute;s et soutenus par d&rsquo;autres personnes vivant des exp&eacute;riences similaires.

Bonjour <span contenteditable="false" data-custom-variable="{{firstname}}" fr-original-class="fr-deletable styled-tag-chip" fr-original-style="" style="background-color: rgb(248, 248, 255); border: 1px solid rgb(191, 191, 255); border-radius: 4px; color: rgb(42, 42, 196); padding: 1px 8px; font-size: 11px; display: inline-block; margin: 0px; overflow-wrap: anywhere; user-select: none; box-sizing: inherit;">First name, Merci de vous &ecirc;tre inscrit(e) &agrave; notre groupe. Vous serez automatiquement ajout&eacute;(e) &agrave; notre liste d&rsquo;envoi et recevrez directement les liens pour vous connecter. Nous avons h&acirc;te de vous retrouver et de partager ces moments d&rsquo;&eacute;change et de soutien en toute bienveillance. L&#39;&eacute;quipe de la SHQ<a fr-original-style="" href="mailto:shq@huntingtonqc.org" rel="noopener noreferrer" style="text-decoration-color: initial; user-select: auto; box-sizing: inherit;" target="_blank">shq@huntingtonqc.org</a>(514) 282-4272 / 1 (877) 282-2444

Un groupe spécifiquement dédié aux aidants qui vivent avec le risque de développer la maladie. Animés par nos intervenantes, ces groupes vous offrent vous offrir un lieu sécurisant et compréhensif, où vous pouvez vous sentir écoutés et soutenus par d’autres personnes vivant des expériences similaires.

Société Huntington du Québec

Pas si seuls - Être aidant et à risque

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Gratuit

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